Scoliosis

[Mandy8888]

Hi is there anyone on here with Scoliosis?
my 19 year old son has recently being diagnosed with it and just want to hear some life stories to how it is through life and how it has affected you to hopefully learn and advise my son

Find out how severe it is, I was diagnosed at a similar age and had no treatment. Now older it has caused some issues, since mid forties onwards. I would recommend he sees a physiotherapist for exercises. He needs to stretch and keep core strength.

As mentioned, depends on the severity. I was diagnosed as a teen, no treatment but have found yoga/pilates really helpful. I just think you have to take greater care and build a good core to support your back.

Sorry I didn’t think to mention severity, it is 58%, I looked it up and is says severe, he gets by but has discomfort in back knees and feet

I was thinking that but thanks for clarifying, sadly it’s not nhs physio they said

He is doing welding in college, and I am also wondering how that will be for him as a career

Can you afford a pilates class, if so, find one run by a physio as a lot seem to be. It will help with core.

My ds has scoliosis (and some other issues) he has nhs physio for it though.

Never heard of it lol but appreciate the information and will take your advice on board

I’ve had scoliosis since I was 13. Very slow progressing so no surgery. I’m 54, very active and I do what exercise I can but am limited.. yeah I get aches and pains but it’s standard for me. However it has progressed over time and is now around 80 degrees for the thoracic curve and I have quite a rib hump.

In all honesty, I hate it, always have, esp from a cosmetic point of view. Its caused me mental health issues, esp anxiety and low self esteem. I hated feeling different to everyone else, I was paranoid that everyone could tell and was looking at me. I’ve only in the last 5 years accepted it’s part of me but it’s been a real bane. If my son developed it… (I keep an eye on him for it) as hard as it would be.. I’d tell him to get the surgery whilst he’s young.

sorry, not a positive post.. I’d suggest discussions with your son around it, esp the psychologist effects of the condition. X x

I was diagnosed with this as a child. Monitored extensively through childhood and into early adulthood and no surgical intervention needed. I am no 50 and since I turned about 45 I have had horrible problems. Back pain, bad knee pain and pain in my shins and feet as a result. I was warned 'back then' that this could happen as I reached my 40's but its pretty shit if I am honest.

Sorry for your experience, my son is happy with appearance which is why he refused surgery as it’s cosmetic and not worth risk as this stage

Sorry for your experience and thank you for Sharing x

I have scoliosis and had surgery when I was 13, I am now 39. My spine was an S shape I can't remember the degrees of curves but at the time of the surgery I had no discomfort. I have no ill effects other than occasional lower back ache

A shape sounds severe which is probably why surgery was done, my son is a right curve, thank you for sharing

I meant s shape but didn’t notice the error till I sent

My partner has scoliosis hsd an op when he was a teenager he is now 65.
He used to get lots of hip and knee pain then he started wearing barefoot shoes and its sooo much better hardly any pain at all.

I have it - diagnosed in my late 30s.

I have a bit of rightsided rib pain and some neck pain but its 'a bit achy when I wake up or sit too long' pain not something that hugely impacts my quality of life.

My right arm/shoulder doesn't quite move the way it should but that only is apparent when I'm doing yoga and only in warrior type poses that require me holding my arms out.

It has very little real impact on my life but I do a lot of yoga, swimming and core stuff which I think really helps. I had to give up my short lived attempts at running as it absolutely fecked my hip and I hated the wonkyness I could see in the gym mirrors.

Will look into them thanks for sharing

Thank you for sharing

Appreciate your stories peeps thank you

Pleasure.. after my comments about aches and pains, I’m really struggling today.. over exercised probably 😬😬

So how would you deal with that now?

Our experience isn’t that relevant as my daughter had surgery when she was 14.

I would recommend joining the Scoliosis Association https://ssr.org.uk/ for advice and support. They run regular online sessions by age group with a counsellor and the magazine features people with all kinds and grades of scoliosis

Hi there, we're just embarking on this journey! My son is 13 and was diagnosed in January with severe scoliosis with an 's' curve with cobb angles of 48° and 50°. He is under an orthopaedic surgeon and we are in the process of getting him a brace as he is still growing but I understand there is only a 1:3 chance of it stopping the progression. It is likely he will need surgery in future. He has some pain if standing or walking for too long (about 30 mins is his limit)
I understand private physios who are qualified to carry out the 'Scroth method' of therapy are good for helping manage pain and swimming is also good.
Wishing you all the best 💐

I was diagnosed at 14 with a 40 degree curve. At the time I was just below the threshold for surgery, but had to wear a solid, uncomfortable brace for two years, which was very tough for a teenager. Along with an exercise sheet, that was the extent of my NHS treatment, but since I turned 30 I have had regular sessions of chiropractic, physio and acupuncture. I am now in my sixties and lead a completely normal life. I do find I get backache these days if I'm on my feet for a long time in a queue or at a concert, but apart from that, no major issues. Good luck to your son!

I’ve taken painkillers which I don’t need often tbh, I’ve put bio freeze gel on the really sore parts! I see a chiropractor every 4 weeks which really helps keep me moving well.. but like others have said like standing for too long like at a concert or on a train, gives me low back ache. Mine is an ‘s’ shape also.. for context.