Ulcerative colitis anyone. ??????

[Bubbletrouble2]

Same as my heading can anyone who is diagnosed please reply

Or even any other IBD

I’ve got crohns. Don’t know if I can help, but I can try.

I have ulcerative colitis. Feel free to ask me anything x

Hi ladies so my husband has suspected IBD he has a colonoscopy on 2 weeks but today he has some jelly like substance with he’s stool.. some of it is a normal colour but some looks like red thick jelly … any ideas if this is any where near normal for IBD

Definitely normal.
Most likely mucus (caused by inflammation) mixed with blood.
It's good he is getting seen as the quicker he is on an effective medication regime the better x

I agree with @Autumnal589 . I have UC.

Hi @Bubbletrouble2 weve spoken in another thread about UC.

Yes, it's normal for UC, it's most likely to be mucus mixed with blood as @Autumnal589 says.

Does he have an IBD nurse helpline he can contact at the hospital? Is he on steroids?

Alot of helpful info here

crohnsandcolitis.org.uk

@ColitisSucks no he’s not diagnosed yet… so I don’t know who to call the surgeons referred him through a&e… he’s not on any medication the poor thing is suffering every day

I would add an image but it’s grim 🥴

I would avoid fibrous foods as well for now. This will also help with the upcoming colonoscopy prep.
I feel for him. I was going to the toilet continuously and having accidents in the night. Once there is a diagnosis, it becomes easier.

I have ulcerative colitis and had similar symptoms. It's good that he has a colonoscopy soon. I found things improved quite quickly once I had medication but for some it can take a while to find the best approach. The colonoscopy prep and days afterwards can be quite exhausting.

I find the pharmacists and GP surgery get confused about the different types of meds, they have to order them in as they're unusual and may give you the wrong thing so you have to check and be persistent.

My DD has IBD and yes she had the jelly like stuff before her diagnosis. It then turned to actual blood which is really frightening when you don't know what it is. She also started vomiting for two weeks straight and ended up in hospital so do keep an eye on things.

Once you've been diagnosed a treatment plan will be agreed - usually steroids and immunosuppressants if the disease is very active or foam enemas or granuals.

DD is now on infusions of a drug called infliximab every 6 weeks and azathioprine to suppress her immune system and has been in remission for almost two years now.

Yes, mucus is a sign of IBD. Bleeding can be too. As @Autumnal589 suggests less fibre can help when things are flaring. Look up low residue diet. I hope you get some answers soon.

Thanks all for your support I do not know where we would be without this wider community.. I just want the 2 weeks to fly by so we can get some answers … google tells us it’s bowel cancer and we need to stay off it.. DH seems not bothered but I think he’s just been a typical man .. @AngelsWithSilverWings yes it’s Kelly like and blood his dripping when he opens he’s bowers he had a couple good days but today all the bloody show has started again

@Bubbletrouble2 try not to worry. Like you I was fearing bowel cancer after consulting doctor Google and that worry didn't stop until after we got the biopsies back after the colonoscopy.

My DD literally had blood pouring out of her by the time she was admitted to hospital. Her FC level was 1800

We were told straight after the scopes that it was most likely to be UC and we got the biopsies back a week later to say it was all good and a treatment plan agreed very quickly.

Has he had a FC test done yet?

@AngelsWithSilverWings thanks for that reassurance ❤️ yes he did a when he’s bleeding started about 6 weeks ago and it was 400 but maybe it stone more now as the bleeding is more .. did ur daughter have fatigue and sometimes diareah sometimes constipation?

Lots of fatigue and still does as that's an on going issue with IBD even when the main symptoms are under control. She has had two iron infusions due to that. Iron tablets are not recommended with IBD as far as ai know.

She mainly has constipation but occasionally it goes the other way.

UC is often triggered by stress - has he been under any stress leading up to his symptoms appearing? My mum had UC when she was in a very stressful job and it l went away completely soon after she retired.

We think DD's was triggered by Covid as she became ill a month after testing positive and then had a flare after her second bout of Covid. The consultant seemed to think there may have been a link. DD was only 12 at diagnosis - it has been a difficult illness for her to deal with but now the right combination of meds are sorted it's just the fatigue and occasional pain that bothers her.

My son has this. Think I was on your other thread. It's a really worrying time but the very high calprotectin does point more to IBD the levels rise as the inflammation worsens.

Son's levels are now 103 two years in and he's a lot better though he had a worrying week at work last week and it did flare a bit.
He is on azathioprine and inflixamab injections rather than infusions ...he even went for 3 months to Australia/NZ and Japan with all his meds which was hard as the inflixamab needs refrigeration.

It's a long wait for you but keep going.

@Bubbletrouble2 meant to say he also feels tired a lot which at 29 he finds frustrating.

Hi all sorry just seen these messages can I ask did anyone have flat shaped stools with blood streaks in them

Yes, normal for UC.
My symptoms were
Severe diarrhoea with night time visits also.
Having accidents regularly as couldn't control my bowels.
Vomiting episodes.
Sometimes just passing mucus or blood on it's own.
Blood mixed into poo.
Griping stomach pains

It's such a horrible time when you don't know what's going on but having a diagnosis and treatment plan does ease the anxiety.

And ur stool looked flat ? Ribbon like ? I’m so scared I can’t eat or anything I’m so sorry if I’m been a pest on here 😳

When is the Gastro appointment OP, do you have a date yet?
I'm guessing the flat poo is because it isn't staying in the bowel long enough to fully form, so is just sitting on the bottom. As you have been assured, sadly, passing lots of blood is very normal with IBD. (I have UC.) Once diagnosed and on meds it should improve greatly.

I was in such a state @Bubbletrouble2 that it wasn't really formed, just diarrhoea or pure blood and mucus. A few days before I did the prep for my colonoscopy, it turned green. Trust me, I had all the horrible symptoms you described. After the colonoscopy, I was given steroids which really settled things down and then started on medication. I am doing much better now and this was almost 7 years ago.
I do understand how frightened you are. I remember the blind terror. But once that colonoscopy is done, things will get easier as there will be a proper diagnosis, treatment and a support plan. Hang on in there xx