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Has anyone here survived sepsis?

54 replies

Jffs · 30/06/2024 06:40

I’m on day 7 in hospital after a routine walk in procedure infected me with ecoli which travelled up my tubes and turned into a 7cm abscess attached to my tubes and intestines, then turned to sepsis.
I’m on the strongest antibiotics known to man. I’ve been sick every day, can’t keep food down, got the shits, pain in my abdomen. I never thought it was possible to feel this bad still be alive. Just looking for words of encouragement. This has been the most mentally and physically challenging week of my life.

OP posts:
Apollo365 · 30/06/2024 08:03

OP you poor thing this sounds horrendous 😞
The two people I know that had sepsis both survived. Keep going x x

BouleDeSuif · 30/06/2024 08:11

I have, I had an abscess in my jawbone and it turned into osteomyelitis and sepsis. It took me a few months to be myself again, and probably five years to actually feel healthy. I've never had pain like it. Mentally I wasn't the same for a long time but I'm fine now.

Gasp0deTheW0nderD0g · 30/06/2024 08:18

My mum got it a few years ago after having her pacemaker fitted as an out-patient procedure. She was well up in her 80s at the time. She felt a bit unwell and fortunately my Dad made sure it was checked out. It must have been caught very early as intravenous antibiotics sorted it out fairly quickly.

Very best wishest to you, OP - take care and make sure when you do get home you take it as easy as possible.

permanently · 30/06/2024 12:05

I also had it from a kidney infection and was blue lighted to hospital as, like most mums, I'd been soldiering on until I could do nothing but lie on the ground and shake. Had a week in hospital and was surprisingly weak afterwards. No lasting effects OP. Wishing you well x

NagaTheThird · 30/06/2024 12:10

Sorry you’re so poorly OP. You will recover 🌻.

I’ve had it three times 😑. Once when my appendix burst, once with pneumonia and once with a kidney infection. Each time it took months to feel better, but I did get better and I’m sure you will too.

Kirbert2 · 30/06/2024 12:21

My 8 year old son developed sepsis in March. It was caused by cancer in his small bowel and we were told multiple times that he wouldn’t survive.

He was in intensive care for 7 weeks. He had multi organ failure and at one point needed 2 rooms in intensive care because he was hooked up to so many machines. I’m talking ventilator, ecmo, dialysis etc it was incredibly traumatic. He also had a cardiac arrest and was gone for 20 minutes.

He defied all of the odds and has recovered from sepsis. He does have some issues with his right leg, he almost lost it and it’s possible he has permanent muscle damage but other than that, his heart, kidneys etc are all perfectly healthy now.

The fact that you’re on here typing is amazing. It’s going to take time but you’re going to be fine, I promise.

GG1986 · 30/06/2024 18:20

I know 4 people who have had sepsis and all survived. I can imagine it's very terrifying to have sepsis, you are in the best place and hopefully will get home soon.

FasterthanBolt · 30/06/2024 18:25

I had sepsis in 2017, I remember feeling at peace and I wouldn't mind if I died (and normally I am petrified of death). It took months to recover. I was able to text throughout though and was quite coherent in my texts so I totally get it. Feel better soon.

Perzival · 30/06/2024 18:26

Both myself and dh have survived sepsis. I had it following a procedure for endo and dh had it after developing cysts on his liver and a clot in his portal vein.

Touch wood, no lasting effects. You're doing amazingly well if your able to type on here. You'll get better it'll just take a while. Sending well wishes.

Lokshen · 30/06/2024 18:31

I hope you feel better soon. I had neutropenic sepsis and meningitis (separately but at the same time) and thought I might die, but got better after they essentially gave me bleach IV and am still here, perfectly fine. Best wishes.

Ymamiss · 30/06/2024 18:32

I survived the same strain of Ecoli that killed a load of people in Germany (from cucumbers?) which caused multiple organ failure, pneumonia and sepsis.
Totally do-able! Hope you're on the road to recovery!

GrimDamnFanjo · 30/06/2024 18:33

Yes my poor dad has had it 3 times! Whenever he goes near a hospital we let them now.
It's a horrible thing but you are being treated. Hang on in there!

RafaistheKingofClay · 30/06/2024 18:45

Yes, I had it in March although thankfully was caught early. Hope you are feeling better soon.

Don’t underestimate how long it’ll take to feels ‘normal’ again.

sepsissepsis · 30/06/2024 19:21

Similar to @Kirbert2 Flowers
Only it was my DH and our children were preteens at the time.
4.5 months in ITU, multiple episodes of sepsis, septic shock, severe sepsis -all related to acute respiratory failure. Multiple organ failure, dialysis, tracheostomy -basically the highest level of ITU intervention possible. Wasn't expected to live. Given the last rites twice. Somehow he pulled through, had to learn to walk again and spent 4.5 months in a rehabilitation hospital. He has some residual issues but when considering how long he hovered on the brink of death, he's a miracle.

Worthalltheyears · 30/06/2024 19:33

I’m a survivor of sepsis. I was admitted to hospital last year with stomach pains and sky high infection markers. I had intravenous antibiotics for 10 days and was quite poorly. I’ve now fully recovered.
all the best to you OP.

LoveSandbanks · 30/06/2024 19:36

Our neighbour messaged dh last year because he felt suddenly very unwell, and wanted us to do something with his dogs. I went with dh round to see him armed with a big flask of water and a thermometer. Called an ambulance as I wasn't at all happy about his appearance. In hospital a week with sepsis but right as rain now.

Best wishes for a speedy recovery

Kirbert2 · 30/06/2024 19:54

sepsissepsis · 30/06/2024 19:21

Similar to @Kirbert2 Flowers
Only it was my DH and our children were preteens at the time.
4.5 months in ITU, multiple episodes of sepsis, septic shock, severe sepsis -all related to acute respiratory failure. Multiple organ failure, dialysis, tracheostomy -basically the highest level of ITU intervention possible. Wasn't expected to live. Given the last rites twice. Somehow he pulled through, had to learn to walk again and spent 4.5 months in a rehabilitation hospital. He has some residual issues but when considering how long he hovered on the brink of death, he's a miracle.

Very similar. I’m so glad he’s doing well.

My son will have to learn how to walk again too if it’s possible. We’re currently focusing on getting him through chemo.

EKGEMS · 30/06/2024 20:02

I hope you get well soon. Yes I had sepsis 23 years ago in association with crashing and burning after an emergency c-section and an inflamed pancreas.

DedicatedCakeEater · 30/06/2024 20:04

My friend's dad did, he was nearly 90 and already unwell. Good luck OP.

StopGo · 30/06/2024 20:06

Thankfully I have survived sepsis three times. First two times sepsis shock from sore throat. Third time infection picked up in operation theatre during C Section. Take care Flowerslowers]

timtam23 · 30/06/2024 20:31

I had post-partum sepsis a week after having my first baby. I remember the terrible pain, and the feeling that I was going to die. I was trying not to fall asleep because I didn't think I would wake up again. I was on 5 or 6 IV antibiotics and spent about 10 days in hospital but made a full recovery. Psychologically I think I buried most of my thoughts and feelings about it (there wasn't any post-hospital debrief/support available at the time and I think I was too shocked by needing to cope with the baby as well) but I am ok now.
I hope you feel better soon Flowers

OtterMouse · 30/06/2024 20:35

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Jffs · 30/06/2024 20:54

Thanks all, wow sounds like some people have survived some truly horrific experiences.
Just coming on to say that they decided to operate on me today, I just wasn’t responding to the antibiotics, white blood cells and markers still sky high and they didn’t like my persistent temperature or vomiting. They drained the abscess, took out the tube it was connected to and drained a cyst on the other side. They said I’d feel worse for a couple of days but I feel BETTER. My nausea has gone my heart has stopped pounding in my chest. This feels like the calm after the storm. I’m in for a few more days they tell me for more yummy Tazocin but my exit is in sight 😁Thank you for the words of encouragement.

OP posts:
FitAt50 · 30/06/2024 20:58

I had it 5 years ago and was off work for 6 weeks. Strangest illness I have ever had as was totally exhausted and couldn't walk for first few weeks. Took a few months to get back to normal but still remember how quickly it took hold of me.

CrispAppleStrudels · 30/06/2024 21:09

Glad you are starting to feel better, OP.

My DD1 had sepsis at 24hrs old caused by group B strep. 3 days in NICU, followed by another 7 in SCBU. It was a very scary time and totally impacted my approach to parenting. She's now a kind, funny, bright 3yr old but i still have a cry if i look at one of the NICU pictures we took, as she was so close to not being with us.

DD1's neonatologist told us that once you've had sepsis, you can be more prone to developing it again in the future, so to be extra alert for any relevant symptoms in future.