Just had the phone call to say ....STEVE IS COMING HOME ON MONDAY !

[onlyjoking9329]

I hope you all managed to get some rest tonight. Here's to a good trifle count today!

OJ. Hope your night was better than expected and if not, you can get some calm and rest today.

It must be so hard for all of you to see Steve so confused - but I suppose a natural part of his condition is that he doesn't remember - so hopefully he can also be calm again pretty quickly.

Hope you had a peaceful night.

Sending love
x

Hope Steve managed to get some sleep and that you did too OJ.

Hope you got some sleep OJ - and Steve of course.

Thinking of you.

Cannot believe that your MIL hasn't even phoned to see how Steve is.

Hope you both got some sleep last night, I'm so sorry that a good day turned bad.

Don't be embarassed about the carer hearing Steve - they are used to it and totally understand.

well ssteve setlled off to sleep with me laid next to him around 12.30.
He has woken this morning and we have had the meds battle, the commode battle and now we will move on to the MIL battle axe
she is due at 10.
the day staff didn't turn up at 8 so was a panic but the agency sorted it and we have someone now.

Oj- hope today is ok and that mil car breaks down behaves herself.

OJ - like so many others, reading your news has become a daily part of my life. I've never posted on your thread as I don't have anything new to add. But I feel like I can't keep lurking without saying something.

I think you are doing a fantastic job, in the face of some amazingly difficult circumstances. Even though this is an incredibly sad time for you all, you are filling it with the happiest memories you can and you are right that these will be so important for you and your children in times to come.

I appreciate it must be difficult for Steve's family too. But their memories will be clouded with bitterness, whereas yours will be the best they can be. Keep strong and take care.

Thinking of you OJ and sending lots of love as usual xxx

Hi OJ, working at home today while waiting for a delivery, so just wanted to say massive well done, eventually you will look back and have the peace of knowing you behaved so well, did the best you possibly could for Steve and the children. Am crossing my toes while i type that MIL visit is not too awful. xx

Just wanted to send some much need virtual hugs to you today {{{{{{hugs}}}}}}. Hope Steve has a good day, and eats his fill of trifles. Hope today is a good one for you too as I always do.
Had a giggle at what Steve said about the carer..I am sure she was not bothered and has encountered much worse in her time...all part of making memories too that will bring a smile to your face sometime when you think of it. Thinking of you all today.

Voodoo might be the answer to MIL? She is queen of the MIL dragons.

Hope you get through the battles day OJ x

The sooner MIL arrives the sooner she will go. Hopefully. Don't let her get to you.

Have a good day with Steve and your children.

Hope MIL behaves or we will have to biff her for you

Sending you a great big

Hi Oj....lost track over the last few days, so hope Steve is still eating his trifles like a good boy! H came out of hospital yesterday and slept for 12 hours!

Steve has only woken twice today both times he was in pain
He woke for 10 mins whilst his mum was here but was shouting for me, i gave him some morphine and fed him a choc trifle his right hand and arm are not good again today
He is still confused but less aggitated when awake.
His mum looked upset as she was leaving, she said that steves sister wants to come and vist and wants to come on friday daytime, i have told her she is welcome to come with steves brother on thursday night but i cant do friday.
Steves sister has been twice and kicked off each time

Oh, poor Steve. I'm so glad he got to have a trifle though, and a chocolate one at that.

It also sounds like his mother is finally starting to realise that this is happening.

Glad that MIL visit was ok. Perhaps she has opened her eyes at last to what is happening to her son and his family.
Glad you managed to help Steve eat some trifle. You are doing an amazing job to care for him so well. Hope today is a good day. Lots of love xxx

i have to go a fetch the kids in a bit i am hoping that steve will wake up so they get to see him and have a cuddle.
i know this is the begining of the end and and dunno what to do.
how can this be happening, why?

xx

Thinking of you as ever OJ.

Oh you poor poor love. I think you are doing all the right things.. just loving Steve and the kids, doing what feels right.

Would it help you to talk to the Mac nurse and ask her to prepare you for what might happen in the future?

Hope steve is able to enjoy some time with the kids tonight.