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Original poster

Mutual support thread for breast cancer patients. All welcome including non-cancer patients who want to chip in!

558 replies

anorak · 14/03/2008 21:25

There seem to be quite a few of us now so I thought we might like a place where we can congregate to laugh, cry, share, compare notes and give each other a bit of support.

OP posts:
trulymadlydeeply · 05/04/2008 19:43

Love to all of you. Just check in to this thread occasionally to see how everyone is, and glad it's nothing serious, Anorak.

XXX

JRocks · 06/04/2008 14:19

Glad you are doing well Anorak. Hope Pigleto is too..

Mum hit the tiredness wall yesterday, she's very sapped of energy but still managing well, I think. She has escaped the nausea and vomiting so far which is good. I'm now trying to summon some commitment to start training for the Race for Life!

pigleto · 06/04/2008 16:45

Hi all.
Had the surgery and all went well. It wasn't very nice but I feel fine now, just a bit of a tight armpit.

Sorry to hear about your arm anorak, hopefully a bit of massage will make it feel better.

dh has been making me feel extremely welcome home, which is lovely. The kids are being stroppy and clingy and I have so many flowers that it is like a florists in my front room. I actually feel better today than I have done in months. Must be the pills.

JRocks · 06/04/2008 18:42

Ah pigleto, it's good to hear you sound so positive..hope you have a speedy recovery from the surgery...take care

Original poster
anorak · 07/04/2008 00:01

And you have been worrying, pigleto, but it's over now, isn't it? Glad it went well.

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pigleto · 08/04/2008 15:36

I went for a walk today and managed three miles with no ill effects, physically I am amazed at how well I feel. I can't hug my dd though as she is all thrashing elbows.

I'm getting my path results tonight. Which is really scary. I wish this was not happening to me.

Tickle · 09/04/2008 12:39

Hi everyone - just checking in.

Hope your results were OK Pigleto.

Nice to hear your arm is nothing serious Anorak.

love to all
T
x

BlaDeBla · 09/04/2008 13:10

Hello again! I hope your arm gets better soon Anorak. I was digging big holes in the garden yesterday to plant some trees and today my arm isn't good at all. It's hard not to get bashed and now with the weather warming up I get ecxema on my hands.

I've got quite a big lump in my reconstructed boob. It's quite pointy. So... another trip to London. I hope it's going to be ok.

I hope everyone's bearing up. Today I feel pretty rough and have a hangover.

pigleto · 09/04/2008 17:53

My results were about as bad as they could be. All my nodes were bad. My chances of survival just fell through the floor. I'm feeling pretty crap about it actually.

I'm going to London for the weekend for a birthday treat and then starting chemo on Monday. I'm going to try and enjoy it if I can stop myself bursting into tears every three minutes.

MrsOnTheMove · 09/04/2008 20:27

Pigleto

I've been thinking of you over the last few days - and am so sorry to hear you are going to need more treatment. Sending you lots of hugs.

I know it won't be easy but I do hope that you can enjoy something of your weekend. I started chemo on my 33rd birthday and I know how awful it is in between getting results and waiting for treatment to start.

It's ok to burst into tears, you've just had a huge shock. When I started chemo I tried to look at it that I had to feel ill before I could feel better IYKWIM everytime the treatment made me feel rotten I told myself that it was good to feel that way as it meant it was doing its job.

I know every one deals with it differently but I just wanted to say we are all here for you and to support you.

I never wanted to go to councilling, or support groups - I just wish I had known of mumsnet sooner!

Take care and sending you positive thoughts for next week.

X

Tickle · 09/04/2008 20:34

Oh pigleto - sorry your results were bad.

Hope you can enjoy some bits of your birthday - London might just be able to take your mind off it for a while...

lots of love
x

BlaDeBla · 09/04/2008 21:06

What a terrible shock for you pigleto. Big big hugs to you. I hope you a way to take your mind off things so you can enjoy your birthday.

Original poster
anorak · 09/04/2008 21:33

Oh pigleto I'm so sorry to hear your news. They obviously want to try and zap it straight away if they are starting chemo so soon. They gave me a few weeks to recover from my op before my chemo started.

Are you going to have some more tests to make sure there are no more tumours? For instance a CAT scan or an MRI scan?

Keep posting so we can give you support.

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JRocks · 10/04/2008 13:14

I'm so sorry Pigleto, I hope that you manage to enjoy your trip...sending you support vibes through MN xx

BlaDeBla · 10/04/2008 19:17

I'm off to London next week about this lump in my new boob . I've known it was there for quite a long time.

More hugs for you, pigleto.

Original poster
anorak · 10/04/2008 19:45

BlaDeBla could this lump be part of the implant? Whereabouts is it?

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BlaDeBla · 10/04/2008 20:06

I think it's on the edge of the implant. TBH I don't really have any idea how they do these things, but from what they said before, the implant is on the top, just under my skin. It's a pointy lump which sticks out when I stretch my arm back.

Original poster
anorak · 10/04/2008 20:32

Let's hope it's something simple. Please keep posting. What day is your appointment?

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BlaDeBla · 10/04/2008 20:49

I hope so! My appt is on Tuesday morning. I don't know yet how long I will have to be in the hospital for, which is a nuiscance. The nurse said they may want to do a scan. So... I may go down on Monday evening and may not be back home until Wed, just because of the trains. I was going to have the port taken out of the implant at the end of this month, but it looks as though that op will be on hold.

I'm a bit worried about it although v nice gp said it was unlikely to be cancer growing so fast.

JRocks · 10/04/2008 22:01

Good luck BlaDeBla

lalaa · 12/04/2008 17:20

Pigleto - I'm so sorry to hear your results were not what you had hoped for. I don't know if this is any help at all, but my prognosis was poor too - not all my nodes were affected, but 8 out of 15 plus the apical node, and my consultant didn't want to give me the stats as he didn't feel it would be helpful (his words). This news was given to me in Oct 05 and I'm still here and am well. I know it's a massive shock, and my news certainly motivated me to get a lot of stuff sorted out in my life, but looking back at it from 2.5 years on, I'd advise taking one day at a time, one treatment at a time, and just keep going.

Good luck with your chemo.

Tickle · 12/04/2008 19:35

hope pigleto reads your lovely positive post soon lalaa

And good luck bladebla!

PersephoneSnape · 12/04/2008 20:55

hello everyone - joining in - as i have a family history ( mum died aged 62, aunt died in her 40s) and just had a routine mammo - got a letter from the surgeon saying all fine, then got a call from the breast sister saying radiographer wanted me to have an ultrasound - got letter today confirming thsi and saying it's my left breast. I'm hopeful that it's just a 'dense mass' from my piercing an they didn't quite connect (no, seriously) but of course i've been having psychosomatic left boob pains all day...)

thank you for being so matter of fact everyone. of course i'm a bit scared and don't want my Dcs to endure being brought up by their alcoholic father (exP - i have some sense) I'm looking into making a will etc, which is long overdue, but i have every reason to fight - as you all do, our wonderful Dcs...I know i'm not even diagnosed yet, but i would like to say that you all strike me as inspirational and together and all the stuff. it sound s daft as meaingless words on an internet forum to peopel i've never met. what i'm trying to say - as my 13 year old DD would say is, 'ladies you're the shit.'

so, (running out of steam here) hello! I'm sure we'll all become 'breast' friends (...)

BlaDeBla · 12/04/2008 21:12

Welcome aboard PersephoneSnape! I hope your scan goes well. I may well have one on my reconstruction on Tuesday. It's quite difficult going to London. I'm there for 2 nights and I've been wondering where on earth to stay. I have quite a lot of friends near the hospital, since that's where we used to live, but there's no-one obvious to stay with!

Anyway, the upshot is that I will be staying with my old next-door neighbour.I get very tired and can hardly get through the day without a kip of some sort! My ex neighbour is a doctor, so hopefully if there is something very wrong, I won't have to spend lots of time explaining.

I used some Immac under my arms since I am not supposed to use a razor. What hell! That stuff is bloody awful - it still feels as though my skin has been taken off. Ow!

Original poster
anorak · 12/04/2008 21:49

Hi Persephone! Thanks for calling me a shit! no I know what you mean, really!

When is your scan? Let us know how it goes. You too Bla. If I had still been in the UK you could have stayed with me.

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