Strange nerve sensations

[Jess38]

Hi

I am posting here to see if these symptoms sounds like low Vit D, low ferritin and low HB, all of which I have been diagnosed with after recent blood tests. I went to the GP with these symptoms and they now seem to think it's because of my deficiencies. Can these 3 deficiencies really cause:

Electric zap sensations, mainly in arms and hands
Tingling hands and feet
Hot feet at night
Buzzing sensations in legs
Weak legs, sometimes I feel its more my left one but sometimes it feels even
Fatigue

The electric zaps scare me and made me think it's MS but the GP doesn't think so. Now waiting for folate and b12 results to come back.

I wanted to mention that these symptoms come and go, some days I don't experience all of them

Would love to hear if these weird nerve issues can be causes by my deficiencies...

I'm 40, not on any medication and relatively healthy

Bump anyone?

Low iron gave me funny sensations in my legs, it sounds not unlike.

I don’t think these symptoms sound much like MS, did you discuss that worry with your GP?

Yes I did but she didn't seem concerned about that and just booked further blood tests for b12 and folate....

I was wondering if others with these deficiencies have had these symptoms, specifically the tingling, buzzing and electic shocks...?

Anyone?

Yes sounds text book to me

MS doesn’t happen all over your body at once. It’s more likely to present for example in one foot or one arm to begin with. You normally have loss of muscle tone and strength as well, and often a loss of balance. You don’t have MS.

How long have you been unwell? I had a similar episode recently - tingling, buzzing, weakness, fatigue. The GP couldn’t find anything wrong, and it got better over several weeks. He said half a dozen others have also presented with similar symptoms and he now thinks it’s a virus that’s going round. There are rumours that new Covid strains may present like this in some people - no respiratory symptoms, just muscular pain, weakness, tiredness, pins and needles or burning, etc. Have you done a Covid test? (but it might not come back positive if too much time has passed since the onset, is what they said to me).

I had most of these starting last September , along with back of head headaches , some dizziness and sore eyes and stiff neck, gradually over a year it's improved and now I just get random headaches and the neck thing and sore eyes.

Mine came on post covid and 4 days post my 4th vaccine.

I’ve had those symptoms since having COVID.

That's interesting but these symptoms came on a month or two ago now so not related to the covid vaccine or having covid (not that I'm aware I've had it lately).

The only thing I have noticed lately is stiff back of neck everyday but I thought that's due to sleeping with too many pillows!

@Kaill I've had this for a couple of months now so don't think it's a virus.

So now I'm thinking all sorts of scary neurological diseases 🙁

I have the electric zap sensations in one finger! It's a good way to describe it. I don't know when it'd going to happen next and when it does, it's really painful and seems to go through your entire body. I get muscle aches and fatigue every day too. I put it all down to peri-menopause.

Mine came on exactly the same but now also tender points on body but not in the same places as fibromyalgia tender spots . Saw rheumatologist privately who said possible fibromyalgia but more likely stress / anxiety/ peri menopause induced

GP also said unlikely to be MS as no muscle strength loss and like others have said it comes on all over not say one arm or leg ( peri menopause has given me health anxiety which I also thinks “ feeds” this reaction )

@Jess38 If you go onto the long covid support group on Facebook you will be gobsmacked how many worldwide have had identical symptoms- 100,000 on that page. not all are straight post covid or post vaccine either. Many are quite young too. I can't believe it's a coincidence and we are all suddenly have MS type symptoms. It seems the virus the neurologist I saw privately was very matter of fact and said she has seen so many similar cases, wobbly leg(s), electrical nerve pain, painful necks, light sensitivity, dizziness and blurry eyes, pins and needles (I had for many months) internal vibrating etc- seems many of us had nervous system totally put out of kilter. Unfortunately I think it's given and left vast amounts of previously well people with the equivalent of a milder version of chronic ME/fibromyalgia

I’ve been ill like this for six weeks now. I haven’t tested positive for Covid, but my GP said maybe I would have tested positive in the early weeks. Unfortunately we spent that time doing blood tests and ruling out other possible causes, so by the time we came to the possibility of Covid I was testing negative.

I wouldn’t think I had Covid if the GP hadn’t suggested it. I’ve had zero respiratory symptoms. Just these muscular symptoms - pain, buzzing, burning, tingling, fatigue. The GP has ruled out everything else, they say it has to be a virus - if not Covid then something else. And a few more patients in the village have been to see the GP with the same symptoms, including my 17yo cousin. Also I’m getting better, albeit very slowly, which makes it even more likely that it’s a virus.

@Kaill @Crikeyalmighty , thanks for your all input, that's interesting and could be that. I had some blood tests lately but there was no sign of infection (all white cell count and inflammation markers were normal). I don't feel unwell, or very tired, but the strange sensations bother me and I focus on them alot, which I think accentuates and makes it worse. I am going on holiday soon and I just want to enjoy myself but this is getting me down. The thought it could be a brain tumor or MS is always on my mind. I am pushing for an MRI but do all people react like me with these symptoms or is it because I have quite bad HA?!

Same, normal white cells and inflammation. But my GP says you can’t rely on white cell count - often a virus actually pushes your white cell count down because you’re using up white cells faster than you’re replacing them.

If anyone is still following this how are you now? I think I had Covid 8 weeks ago and have had very similar symptoms over the past 4 weeks as well as a persistent low grade fever. Awaiting full blood results. I had no idea these could be post COVID/viral symptoms. Pin and needles and numbness as well as prickling forehead and pressure in my head come and go. Currently off work with it all. Hearing from anyone going through this would massively help, thank you.

Let's look at all the harmless things it could be:
What is your menstrual cycle like?
Some of these symptoms are experienced in menopause as well, esp tingly and buzzing and electric 'shocks' type sensations.
Hot feet at night can be from walking in very flat sandals or barefoot during the day or new shoes.

Do you smoke? Are you overweight?
Do you exercise .

I had a chest infection and then sinus infection. I've got a constant temp with these pins and needles feelings. Antibiotics helped and then it all came back after finishing them. I'm not ruling out anxiety as it's all been really stressful with young children to look after and not being able to work.

Menstrual cycle is on time and I'm in mid 30s so I don't think menopause is on the cards yet. I don't get hot feet, but cold with the mid temp 38.
I just get the dead arms and pins and needles with shivers especially when I'm sleeping. I've got it before but not to this degree and my legs feel so weak during the day.

Hoping my blood results show something or maybe I hope there is nothing a miss but then I have to work out why on earth I still have a constant temp of 38 after 5 weeks. It just feels like a viral infection or Covid has effected my nerves and I wondered if anyone had the same and if it went over time.

Thank you for any advise.

Not over weight, never smoked, don't drink and exercise with the children but not actively on my own as to be quite honest I don't have the energy after I finally get them to sleep. They still wake us up multiple times in the night so lack of a nights sleep is a problem and I'm really struggling to wean my daughter fully from breastfeeding. She's just turned 2 and fights me for milk. She just screams for it. Not helping my immune system.

@Lswilliams hey- I posted on this last October- I started with all these neuro issues in September 2022- saw a neurologist- loads of blood tests etc- by October last year I was much better and now I am still a lot better but not 100% - I improved by lots of multi vits , vit b spray in the mouth, vit d spray in the mouth, omega 3 capsules , masses of water and lots of excercises in stretching neck etc- plus tons of deep breathing from diaphragm- I also went gluten free- basically covid or vaccine (I don't know which ) did a total number on my nervous system- and it took forever to calm it down- but eventually it did- it was incredibly frightening at the time- was totally convinced I had a brain tumour, MS or motor neurone.

I had this about 20 years ago and in the end it was all tied to hormonal migraines associated with my body going through hormonal surges at peri or menopause. I was in a private medical situation at that time and had every test in the book including MS. I was actually hospitalised with it as it can appear as a mini stroke. It gradually tailed off and only occasionally do I now get some pins and needles/numbness on my finger tips of my left hand. I have several friends who have experienced this.

I’m still struggling with this. To begin with it was terrible, now it’s eased off a bit but still problematic. Doctors are suggesting it’s either perimenopause related or an electrolyte imbalance.

Like @Crikeyalmighty I’m convinced I have brain tumour, MS or MND. My anxiety is through the roof. It’s not helped by the fact the doctor isn’t taking me seriously and is dismissing my symptoms as unimportant.

@PrincessMee how long did it take for your hormonal symptoms to go away?

I would say about 5 years .

They did lessen and I had a very good neurologist who said we have tested everything and there is nothing more to do. Go live your life! He did put me in aspirin and clopidogrel as I have a family history of stroke. I know how scary though it is to sit in a hospital bed with neurological symptoms. It's shit.