Cancer Support Thread 89 - the best thread that no one wants to be on.

[LemonDrizzle10]

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PollyThePixie We have had a whole year of wind and rain in the UK so some sun is nice. I guess its the opposite for you. Its only about 26C here and is windy so it feels the perfect temp for us. I do love cold holidays though, we normally avoid strong heat. Glad you got the cake. I am loving being with DD and the holiday. Its been 2 years of it being about cancer then my son being hospitalised and it's so nice to have good times again. I didn't believe I would ever see those during chemo.

Just had a lovely dinner on the beach with DD. Small cat appeared. We moved hotels today and had a lovely taxi ride here through sugar cane and pineapple fields, mountains, hindu temple and mosque and sugar factory and got these nice lychee ice tea welcome drinks then lovely lunch and dinner on beach.

Thanks SummerCycling Glad things are nearly at the end for you. Hope you can do some lovely things.

Hope everyone had a good BH Weekend.

Aah Silkierabbit, the little cat is sweet 😊 Did it hang around long?

I've still been banging on about the boots to the girls so went on Vinted & bagged these for a tenner & postage costs. Not sure how likely I am to ever wear a spangly, stilletto, knee high boot...but they may satisfy the urge for sparkly boots, & I can prance about the house in them channeling my inner Taylor Swift, if nothing else 🤣 I may buy some with a much more sensible heel, closer to going to the concert though!

The 2 little cats came at our dessert and were still there when we left. The waiter did make a very half hearted attempt to tell them to leave, they both looked identical and very small.

Love those boots, need an ABBA concert for those. Though after chemo I have struggled with heels and live in flats. I would love to have heels though. Lovely of your girls. Though if it was my DD she would buy them say they were for me then would find her wearing them. 😂

Eurghh sorry everyone, I went on a bit of a downer the other day - thank you for your support 🥰 Had a bit of a setback today, started leaking yellow liquid from one of the scars at the side (where I can feel the expander). The surgeon had to drain it (ouch 🤮) and put a dressing on, all ok and on antibiotics as a precaution.

I'd like to share a funny story though if you don't mind? I'm not in the UK and there's a bit of civil unrest where I live so the police are everywhere at the moment. On Saturday afternoon I was on my back from the supermarket and a patrol car pulled me over. He did all the checks on my car, all fine obviously. He then got very annoyed and told me I must wear my seatbelt correctly (I was wearing it under my armpit and not across my chest). I just thought 'fuck you' and pulled my top down and showed him the scars on my chest. Well.... you should have seen the look on his face 🤣🤣🤣

Does anyone know, when your histology/cytology results come back, do they get discussed at MDT before they talk to you? Mine are due back soon but I know if I have to wait till after the MDT I won't hear anything this week as it's on Friday afternoon.

I must follow up my post by making it clear that the police here are utter inept, misogynistic cockwombles so I feel no guilt in embarrassing that officer 😅

Thanks @SummerCycling for your kind words.
@Silkierabbit I am so happy for you that you and DD got away for a holiday it looks fabulous. Just what you needed!
I have had such a fab day. We have a week of birthdays so we went clay painting this afternoon with DSD and her BF. It was funny seeing DH being so serious painting a China butterfly. I left them, after painting a jug, to meet my DD and DS for my birthday treat in a spa, then we had supper in a lovely Spanish restaurant with delicious tapas and sangria. I’m feeling rested and cheerful ready for round 6. I’m sure there will be hard days but I’ve only got eight weeks left now.

I'm lurking as waiting to get started but I love this .. Good for you and feck em

I feel like I'm just waiting still since I last posted..will be on the D and En C regimen once it gets going. The horrid boob MRI as I thought leaked..as I told em...trousers wet and radioactive!
Have lots of activity on pet in mediastinum and supraclavicular region..which they think/ hope is sarcoid..
I need a biopsy of one of them. And the boob MRI again ( AHH no) . I have to keep thinking it's fine, it's all out of my control. It all has to be fine. I hope that we can just start chemo and get going..

Aww thank you! I'm not usually so antagonistic but I've got to the point where IDGAF any more 😅

Good luck xx

Argh the biopsies are the worst 😦 I had two lots, first was ultrasound guided and the second MRI guided. Fucking hell... I'm a big wimp though 🙄😂

That's so funny PollyCreo and well done you for challenging them. Similar police here who left my poor mute gentle DS terrified to leave house ever as they handcuffed him to get to hospital. So I hate them too.

Glad you had a good day Top

Lovely day here again. Off in the sea and pools soon. DD is just having a nap and we will have lunch first.

That made me laugh @PollyCreo 🤣

I'd like to think I'd do similar - in reality, I'd fix the seat belt & grumble my way home 🙄

I'm off for bloods today ahead of tomorrow's phone call with my consultant. Might try somewhere new in town for lunch too, I think. We've eaten out so much lately, under normal circs I'd be very much against it when the kitchen's well stocked, but...well...fuck it.

I'm meant to be going for a cuppa with my work mum this week before they go back - not sure when I'm squeezing it in but really want to!

Thanks for your reply to my question. So was the 'watermelon' size mass malignant, or maybe a benign cyst?

It was malignant. Stage 1a. And had it burst it could have meant there was malignant cells in my washings. I spoke to my daughter about it last night and I was wrong to say stage 3. I would have gone up to stage 1c and I’d have required chemotherapy. I can’t remember much about those days as I was well and truly bonkers and under the care of a psychiatrist from day 1.

I was very lucky as even the stage 1a I had was of the infiltrative type. Not the expansive which is far preferable. You have way less chance of a recurrence with expansive than infiltrative. Again I was very lucky because my capsule was still intact. There were also other features of the tumour that marked it as not good but I just can’t go back and look at my pathology report. I have palpitations even writing this. It’s strange though how I had a certain term at the front of my mind for so long and now I can’t remember it.

Theres not much more I can say really because I feel quite Ill when thinking about it but this is what I had. The second link is science based. I think that’s what interests you.

https://www.ovacome.org.uk/mucinous-ovarian-cancer-booklet

https://ijgc.bmj.com/content/32/11/1455

My friend was a Buiding Society manager by day and a go-go dancer by night. It was way back in the day when go-go dancers were just that and the only thing that still remains from that stage of her life is a pair of silver boots just like yours.

Unless she just sold them 😂

@summer. Just to add if you would like to know more about my diagnosis given I’m not really able to discuss it much I’m happy for you to see my report.

Quite honestly I know more about breast cancer from the ladies here than I do about my MOC. I had a breakdown the day it all started happening and almost 3 years later I’m still taking a 20mg maintenance dose of Seroxat to keep me on an even keel with regards to panic attacks.

Ha! Love that response @PollyCreo I wish I was more assertive. #BemorePolly!
@PollyThePixie you are very kind to help but don't trigger the trauma response by going back to that horrid time. Look after yourself! You have come a long way.

I'm back in Cancerland now. Bloods are okay, just mildly neutropenic. I'm off for a zolendronic acid infusion this afternoon then I collect round 6 pills tomorrow and surgeon and oncology appointments are looming. It was nice escaping albeit briefly.

I was sorry to see Liz O'Riordan is struggling since her BC recurrence. She is such a shining light on Instagram. I hate shitty cancer!

I need to leave in two mins, but had to reply to @PollyThePixie

I'm so happy that awful thing was removed without bursting in surgery, but please don't share your records - I didn't mean that at all.

Cancer can be so traumatising can't it, and if I'd known it would give you further stress to write more about it I wouldn't have asked you.

I'm just interested in what people here say, so I asked - but I don't need to know anything at all. Look after yourself.

@PollyCreo

Your response to the police was EPIC 😂😆

Hope you are OK PollythePixie I don't have that reaction to cancer but have a similar one to what happened to DS. Please don't do anything that distresses you.

Anyway I have been listening to lovely birds and swimming here. This is lunch pics. Didn't get bird photos but https://explora.mu/photos-hd/birds-of-mauritius are them, we had Mauritain sparrow which sings and bulbin conde bird, the black and white one with red crest and one with a fluffy underside maybe a baby, tiny bird.

I'm having a brilliant day today - I was talking to the ladies who do the bloods at our chemo centre about going to see TS & they suggested Eve's trust might be able to sort accommodation & turn it into more of a weekend for all of us than just the one night! Dd1 is stressing about it since I've mentioned it but I'm fairly certain school and college will be just fine with it.

& I've come home to my (already opened, thanks kids 🤣) order of cowboy boots to bling with rhinestones, and several other entirely unnecessary purchases, which makes me extremely happy & the bejeweling will keep me busy 😊

I'm just about to paint in some details on the gingerbread house, then maybe cut the apron while it dries 🤔

@PollyCreo great response! Would have loved to see their face!

Has anyone been given advice about dyeing hair after chemo? I look like a rusty Brillo pad

I bleached my hair when it was only about an inch long as my hair dresser convinced me it would make me feel better about the re growth. He was right. It feels like it might be deliberate not ‘cancer victim’. I too looked like a Brillo pad before I did it. I think it might have been too soon according to the official advice but I trusted him.

I'm really itching to do something with my mop asap! The only thing I've been told is be gentle with it & don't use harsh chemicals during chemo - I have a lasts 3 washes Bleach London colour to try once I'm done. It may leave me with a fetching pink scalp again but we'll see 🤷‍♀️ & it only has 6 ingredients as opposed to masses of stuff.

I've rounded off my rather enjoyable day by finishing my storytelling apron. I may re-visit to add a pocket and dolls but, for now, I'm happy with it (really happy, to say the apron itself was traced around a very old one that was my mum's, many years ago!).

I was wondering about red henna on my hair. I've never done it but I am feeling rebellious. I thought Holland and Barrett would be safe enough. Is Anybody here an expert? I am a dark blonde usually. My hair is insane at the moment sticking up wildly!