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norovirus has turned my life upside down - mears needs to offload

73 replies

mears · 10/01/2008 00:42

Unfortunately 90 year old Dad went down with it on 22 December - terrible watery diarrhoea and vomiting. Ended up admitted to hospital in the afternoon with dehydration. Mum then got it followed by me, DH, DD then 2 days later by DS3.

We all bounced back but Dad is still in hospital, still off his feet. We take turns to go up at meal times to encourage him to eat and drink but it is getting harder and harder. Nursing staff are looking after him well but they cannot be expected to sit for 1.5 hours to get him to take something like we do. He has Alzheimers and usually co-operates better for us.

Am now facing a huge dilemma. On Monday he was classed as medically fit but needing rehabilitation to regain mobility. Problem is he is getting sleepier and sleepier and eating and drinking less and less, therefore isn't awake enough to mobilise. Physios are going to work with him but can't come till the afternoon because the ward has been closed due to D&V since Sunday.

He was quite bright when he was on a drip and initially he wasn't allowed to drink because he was at high risk of aspiration because he sounded chesty. Then he was allowed thickened drinks which he didn't really tolerate. He couldn't be assessed for drinking at the weekend or over festive period as there was no speech and language therapists on duty, so it was 3 Jan before he was allowed to drink fluids. In that time his drip had tissued so he was behind in fluids really.

Is he not eating and drinking because he has given up or is it because he is dehydrated?

We are waiting for him to be transferred to a hospital closer to home for rehab, however the way he is looking today, he will never be able to get out of bed.

If that is the case, he may be better transferred to home with a care package but goodness knows how long that will take.

My nurse sister and I have decided to ask for him to be dripped again tomorrow to get fluid into him to rule out dehydration being the cause of his sleepiness and lack of eating and drinking. Don't know if the medics will agree however I do think there is life left in him.

He was fine till the D&V hit.

If he doesn't improve then mum wants him home and so would I, but I am not sure we can cope with the care needs. This is the very thing I dreaded happening to him. He has been in bed so long now I don't think we will get him up again. Don't want to see him languishing in a geriatric ward either.

Wish I had a crystal ball.

OP posts:
lulumama · 10/01/2008 09:44

hi mears

what a terrible time you have all had. just want to wish your dad a speedy recovery and hope he is well and home soon

sending lots of positive thoughts your way xx

bossykate · 10/01/2008 09:49

i'm very sorry your family is going through this.

i wish you the best possible outcome. bkxxx.

babypowder · 10/01/2008 10:48

Just wanted you to know we're thinking of you and your dad. What an awful time for you

bundle · 10/01/2008 10:51

oh mears I'm so sorry this has happened to your family. do offload whenever you need to, wishing you strength to get stroppy/whatever is needed, xxx

VeniVidiVickiQV · 10/01/2008 12:12

Rehab unit sounds like a good idea. I completely understand about you not wanting your dad in a home.

If you want him at home a care package is definitely what you should do. It is worth it, even though it might be a really hard slog for a few years because you'd feel so terribly guilty otherwise.

inSanityClaus · 10/01/2008 12:29

Get him OUT of hospital. rehab unit good idea. Don't let them stent him (operation to insert permanent feeding tube), but a drip must help.

I think that a better environment will perk him up, with fluids.

I wish we had carried my dad bodily out of hosp after he had a fall. although he was in otherwise good health when he went in, he never ate or drank for himself again, although he had taken meals normally till he went in. he just withered away, and I'm sure it was because he needed to be home or somewhere more homely.

mears · 11/01/2008 00:34

Thanks everyone for your messages - they definitely help.

After insistence from me he got dripped at tea-time. To be honest I think it will buy a short bit of time. I was there all morning and encouraged fluids which meant at times I was forcing him.
TBH I think he wants to go. The drip makes sure I have given him every opportunity but it is only a short term measure.

When he was lucid he always said people should not live longer than 'three score and ten'.

I am sure he will perk up temporarily on the drip but will then decline but at least this time we will be ready for it.

The nursing care is good and it may well be that he will remain on the ward because there is nowhere to transfer to. Also the ward is still closed due to D&V so interhospital transfers are not allowed.

At leats where he is he has 24 hour care which I have confidence in. Will see how he fares tomorrow. Had long chat with mum and she realises that it is unlikely he will be home.....

Bet you the bu**er sits up and eats breakfast tomorow

OP posts:
gibberish · 11/01/2008 00:38

Don't know what to say except have tremendous respect for you in the way you have coped and dealt with this. If your dad was lucid now and able to understand what you are going through, would be so proud of you.

fortyplus · 11/01/2008 00:42

In my area there's the Ian Rennie Hospice at home. Maybe they could give you info about something similar in your area? here

suedonim · 11/01/2008 00:46

Thinking of you, Mears.

Mommalove · 11/01/2008 00:47

This reply has been deleted

Message withdrawn

anorak · 11/01/2008 00:56

Roll on hospital bacon and eggs!

brimfull · 11/01/2008 01:12

Sounds like he's getting the best care Mears.
Thinking of you .

MarsLady · 11/01/2008 02:03

Oh mears!

I do hope things improve for you all soon.

Buda · 11/01/2008 06:43

mears. Sorry you have all had such a horrible time.

Hopefully the drip will perk him up.

mylittlepudding · 11/01/2008 06:59

How horrible, mears. "Small" things do throw the elderly completely. And I do think it's harder to have knowledge and see these things happening.

It's a while since I've done care of the elderly, but...
subcut fluids? Would probably get enough in if d+v has stopped, can be inserted by nurses, not as traumatic as ivs?
Ensure? Or frozen ensure, if he likes ice cream, or the soups?
Trial of steroids for appetite? - don't know if that's become controversial these days though.

Hope you are coping ok.

bossykate · 11/01/2008 21:04

hi mears. how is he today? bkxxx

mears · 12/01/2008 14:59

Well, my goodness we have had a turnaround

Spoke to consultant yesterday who supported decision to give IV fluids. He said his age did not matter and it was obvious he had an infection which needed treated so he was starting him on IV antibiotics.

When discussing Dad with him I told him how well he picks up when he is put on an increased dose of steroids for his chest problems. Consultant found that very interesting and said he would start IV steroids too.

He has been steroid dependent for a number of years getting one steroid tablet a day which stops his chest deteriorating so frequently. He had been diagnosed with chronic obstructine pulmonary disease (COPD) a few years ago.

The consultant thinks that he may infact have vascularitis (which I have since looked up and COPD is an associated symptom).

His decline over the past few days has been associated with his reducing dose of steroids which he was given in higher doses when first admitted.

This morning he sat up awake, ate all his breafast and drank when offered drinks instead of me forcing him. He had dislodged his drip overnight but it was resited when I was there this morning.

He even has his teeth in! When I left at lunchtime he was eating soup that my mum was feeding him.

Who knows how long it will last but the steroids are the answer I think. He looks great

OP posts:
anorak · 12/01/2008 15:33

That's great mears, thanks for letting us know. Long may it continue!

NAB3wishesfor2008 · 12/01/2008 15:39

Just seen this thread. It started off so worrying and has ended much more positive! That is great and it sounds like the consultant is lovely.

VanillaPumpkin · 12/01/2008 15:55

Mears just seen this. Just wanted to add my voice of support for you. May things continue to improve for you all!
You gave me (and many others) so much support when I was pregnant with dd2 (I was Cooperoo then and terrified of giving birth overseas), I often think of you and what a difference you made, so I will be thinking positive vibes for you now. Take care.

NAB3wishesfor2008 · 12/01/2008 15:57

I remember Cooperoo!

VanillaPumpkin · 12/01/2008 16:00

Yes we share Junies don't we??

Heathcliffscathy · 12/01/2008 16:02

fantastic news mears...so pleased for you

x

NAB3wishesfor2008 · 12/01/2008 16:12

Yep. 2005! at him being 3 this year.

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