I really feel for you , your mum and your family, it brings back many memories. I wish noone else had to go through it.
As for my son I am still waitimg. I am going to email his doctor tomorrow so I don't have to talk to his difficult secretary. His hip x ray was ok though, so his problems there are only due to his stiffness, which is good news. If there is no test for the genetic sd then it will be a case of watching and waiting unfortunately. It's an odd feeling hoping that ds does have cp. I bet not many people sit there wishing that for Christmas.
Bets wishes to you Robin, keep posting.