@AGreatUsername Yes of course - I had 6 cycles of chemo, carboplatin and paclitaxel, from January to June 2021 with debulking surgery in the April after the fourth cycle. I had a total hysterectomy, both ovaries, omentum and also some endometrial lesions on my peritoneum removed. Then there was a huge faff over a lesion on my liver ligament which had shown on my original CT in September 2020 and, at the time, they'd called a 'cyst'. I realise now they had bigger fish to fry than that. I had an US of this lesion, an aborted biopsy, an MRI, another US with a view to a biopsy, and then they decided it was indeed a benign haemangioma. This delayed me until September last year when I had to kick up an enormous fuss to get onto the maintenance chemo which the onc had recommended in June, because by this time I'd exceeded the NICE guidelines in terms of weeks to begin due to my liver lesion. I finally went onto NIraparib as maintenance at the beginning of October and am in my eighth month on it now. I take these daily as tablets at home. It makes me very tired, my mouth is often sore and I take daily laxatives. I will be on this treatment for as long as it's working and I can tolerate it, but with OC 3c, a recurrence is likely and I will come off it then. For all of it, I'm happy be treated and to be still here, there were some truly dark times at the beginning of last year.
You're doing exactly the right thing on just focussing on the next step, take one bit at a time until you know. Good news you've had the pre-op so you're ready should a cancellation come up, I'm hoping you can get in sooner than your booking date. It must be tough with your DS doing GCSEs with all this going on too. Regarding not sleeping, I went onto beta-blockers at the start of all my troubles and have been on them since. They 'take the edge off' my raging anxiety and allow me to sleep most of the time. Your GP will be happy to discuss your sleep and prescribe something to help you over these things, don't think you can't ask, one of the side-effects of being even partly in Cancerland is that GPs are really happy to assist.
@MrsPnut hoping the MRI was ok. I've only had one and everyone had said the 'tunnel' thing was awful but that was the least of it for me. DD25 had lent me one of her sports bras so that I could keep it on throughout. It must have been a 28A, when they said to hold my breath for what felt like hours, all I could think of was how tight this bra was as I could hardly breathe with it on. It's funny now but omg, at the time it made me feel so panicky. I've since invested in a Sloggi one for my scans which is so light and comfortable.
@Stomacharmeleon you poor thing, not being able to speak properly must be so frustrating for you. You have so much on your plate, all this worry plus A levels. I'm hoping that things get organised soon for your next surgery.
@Silkierabbit thinking of you too with chemo and GCSEs. I only had myself to concentrate on throughout treatment, it must be so hard with children.