Any help please? Potential auto immune/arthritis?

[Artdecolover]

Hello 👋

I've had lots of health issues since my early 20s after a glandular fever infection at 18.

I was dx with ME at 23, fibromyalgia at 38 and am currently having lots of pain/odd symptoms. I did put some of it down to being peri menopausal.

I have a phone appointment tomorrow with my Dr to discuss the results of a Thoracic MRI which showed a hemangioma at the T9 vertebrae. I've had blood tests (ok) and a chest x Ray (also ok)

I know I have some arthritic changes in my spine due to an x Ray I had a couple of years ago.

My current issues are:
▪️burning/sunburnt skin feeling on rt side ribs/mid back (no redness, rash etc)
▪️pain/ache in rt armpit
▪️widespread joint pain - in hips, toes, knuckles, neck, back, rt ribs (am using hip/thigh pillow, memory foam neck pillow, have regular massages and Chiropractic treatment)
▪️pain in toes/upper foot/achilles tendons - mainly left foot where I broke my toe 2 years ago - told to go back if it got painful
▪️dry eyes - new condition dx last week. Drops 5/6 times a day

WIBU to request the following referrals:
▪️Fracture clinic for left foot
▪️Private referral to radiology for USS of rt armpit and upper rt quadrant
▪️Private referral to rheumatology

I'm so fed up of being in pain. This can't be normal can it? Sadly any dx of ME/fibro means ime that ANY symptoms are attributed to that.

I know the Dr will probably just say "hemangioma not important" BUT I have symptoms!

Any advice/thoughts?

I'm so sorry that so many of us are suffering :(

God I could have written most of these posts. I had psoriasis for 30+ years. Alsways got that skin pain thing pps have spoke about. Didn’t know it had a name. You don’t need to have psoriasis on your skin to get PSA. I think about 20% of sufferers don’t have the skin psoriasis iirc. Mine is now starting to come back 😭. Low iron that I had blood test Monday by Wednesday I was in hospital getting transfusion. I’m j. Fucking agony every day. Tingling and numb in thumb and separately In last two fingers. Sciatica on both sides. Pain in hip and legs. Worse at night my left leg is fucking excruciating. Lumber area feels like it’s snapping in the wrong direction. Constant migraines. Gp took ten plus years to diagnose fibro. Now apparently everything is fucjing fibro! I’m convinced I’ve got lipodema but doctor said I was just fat. Cankles. Worse in right leg. Swelling around knees. They thought I had lupus or ms. But no. All tests xrays bloods scans come back. Normal. Normal normal
Normal. I’m so sick of living this shitty life. I can’t affford private. I’m in pain. I’m swolle. I’m sore. I’m
Convinced I got PSA as well. Waiting for physio AGAIN. So they can tell me they can’t help me AGAIN. I want a gp or someone to listen to me. They don’t listen. They don’t care. I’m the problem frequent flyer patient. I’m ducking sick of it. How do I get someone to listen up and pay attention and help me properly? There is no hope for people with chronic illness who ‘don’t look ill’. So fed up.

Tell me about it!
I also have that feeling of snapping in the wrong direction.
For me, it's my hips and knees.
My hips feel as if they are going to pop out of my sockets, and ny legs feel bandy.
Also the pins and needles are overwhelming at times.
I have a lot of your symptoms.

Off for my blood tests finally today

So...5 vials of blood taken today.
It will be 3 weeks before some of the results are back.

Breast clinic is next on your list, isn't it?

Yes...Tuesday

Popping in to see how it went today @Artdecolover

I'm sat here waiting for my lift home...
Dx of mastalgia/chest wall pain
No treatment, no idea if it will stop
Obviously very happy it's not breast/lymph node related but yet again a dx and then "nothing we can do, go away"

I'm sure I read somewhere that breast bone pain is a feature of some autoimmune condition.
It's awful isn't it, having something ticked off as not important, when it feels as if it is, as part of an overall issue?

It's tiring as it affects me every single day

Axial spondyloarthritis
Look it up. Your symptoms mirror mine. Hard for women to get diagnosed took me 10uears.

I will certainly mention it to the Dr

The Dr wants to remove the mole and send it off for analysis
Should get an appointment in the next couple of weeks
I'm so very tired of all this

How are you all doing?

Agree with the gluten and dairy free diet (and low sugar). Changed my life, felt like a new woman. Would recommend trying keto.

I also had glandular fever and was never the same since (healthwise). Sorting out my diet and taking a load of supplements made me 70% better.

So blood results all normal
Ffs

I'll try the diet thanks

Oh.
So I asked the Dr for a private rheumatology referral and it turns out I have actually got a + ANA result
So I'm going to try and see the Dr advised by a pp

....the gp was so dismissive.
Said that he was happy to refer me but "I'm not sure what good it will do"

@Artdecolover
Hi OP it’s been a couple of months since your last post and I just wondered if you’d got any further with a diagnosis?