Any help please? Potential auto immune/arthritis?

[Artdecolover]

Hello 👋

I've had lots of health issues since my early 20s after a glandular fever infection at 18.

I was dx with ME at 23, fibromyalgia at 38 and am currently having lots of pain/odd symptoms. I did put some of it down to being peri menopausal.

I have a phone appointment tomorrow with my Dr to discuss the results of a Thoracic MRI which showed a hemangioma at the T9 vertebrae. I've had blood tests (ok) and a chest x Ray (also ok)

I know I have some arthritic changes in my spine due to an x Ray I had a couple of years ago.

My current issues are:
▪️burning/sunburnt skin feeling on rt side ribs/mid back (no redness, rash etc)
▪️pain/ache in rt armpit
▪️widespread joint pain - in hips, toes, knuckles, neck, back, rt ribs (am using hip/thigh pillow, memory foam neck pillow, have regular massages and Chiropractic treatment)
▪️pain in toes/upper foot/achilles tendons - mainly left foot where I broke my toe 2 years ago - told to go back if it got painful
▪️dry eyes - new condition dx last week. Drops 5/6 times a day

WIBU to request the following referrals:
▪️Fracture clinic for left foot
▪️Private referral to radiology for USS of rt armpit and upper rt quadrant
▪️Private referral to rheumatology

I'm so fed up of being in pain. This can't be normal can it? Sadly any dx of ME/fibro means ime that ANY symptoms are attributed to that.

I know the Dr will probably just say "hemangioma not important" BUT I have symptoms!

Any advice/thoughts?

Thanks

Well I've been for my x rays today
Appt for bloods booked for 17th
Can I ask...had anyone else got rib cage/side pain? Armpit pain? It's so annoying but is it a recognised AI symptom?
I'm hoping to sort a scan appointment tomorrow

OP I have tendon pain and a psoriatic arthritis diagnosis. Psoriasis that I can’t get rid of.

I currently in pain all over

Interestingly I also had GF at 18 and CFS after

Allodynia is the name of the skin pain. I always get if if coming down with something although this hardly ever happens because of my aggressive immune system 🙄

Hi,
No psoriasis or skin issues afaik
Is allodynia present all the time?

No I only get it when Ill so hardly ever buy it’s horrible and makes me feel sick. But I never knew the name to always like to tell doll, it’s such a wierd issue

I was interested in the similarities between joint & tendon pain - i ruptured my Achilles three years ago and my health has not been right since

Going for my scan today
I've seen the referral letter and the Dr is querying gallstones....
I had my gallbladder out in 2013
I'm so utterly fed up of such rubbish gp services
It's a scary time to need tests/help atm:(

So the radiographer says everything looks normal.
🤷‍♀️

I'm going to ask the Dr of I could have had non rash shingles

Op, I have burning were you have, never got a reason for it, I believe it is nerve damage due to low b12 that my doctor won't treat.

The Dr is phoning me next week apparently...

@Tootsey11

Op, I have burning were you have, never got a reason for it, I believe it is nerve damage due to low b12 that my doctor won't treat.

I'm sorry to hear that :( Why won't they treat you? Postcode lottery it seems

Can I ask of any of you have rib/armpit issues?
It's starting to really worry me

RA armpit issues seem to be lymph node related...but it's only 1 side

Im sorry you are having such a difficult time. I have an autoimmune condition, going gluten-free helped me too.

I will certainly consider it once my bloods are done

I should have had my blood tests today :(
2 week wait now :(

Off the Dr's later so she can look at my armpit exciting!

Please post how the appt went.
I'm also having lots of similar (ish) symptoms.

I will!

op - I would honestly go private. There is an excellent UK psoriatic arthritis Facebook group where you can get recommendations of rheumatologist who specialise in PSA.
I was diagnosed a year ago with PSA - my bloods are fine, scans xrays and MRI show nothing which is common with PSA. I've never had psoriasis either.

Dry eye was the start of my Sjorgrens symptoms, several years ago.

Since then it has developed until I now have the majority of symptoms.

Also GF at 17 and 3 Hemangioma. My issues developed post menopause and one Dr has suggested that the trigger may have been rapid Oestrogen loss at that time.

If it was me I would push for a Rheumatology appointment a.s.a.p. My diagnosis took three years and only happened because of my fabulous GP who spent time just reviewing all my health issues of the last few years and said I wonder …….

I take no conventional treatment for Sjorgrens because of the potential side effects (I always seem to overreact to drugs) but am gluten and dairy free, have spent a lot of time listening to Gabor Mate and now recognise how much stress figures in the triggering of my Sjorgrens episodes.

Good luck. I hope you get a speedy diagnosis and help.

So...
Xrays of shoulder and foot are OK
Abdominal Ultrasound was OK
She's referring me to the breast clinic to scan my armpit area but she also saw a mole on my back she's not happy with so being referred for that too.
I'm so tired of it
I suppose the blood tests next week might show something....

Thanks for updating.
It's bloody exhausting, all this, isn't it?

Sjorgens has been mentioned (in passing) to me by the nurse at my docs.
My eyes are an absolute mess.

Mine too
Sub retinal fluid leak and now dry eyes