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So worried can anyone help

54 replies

Singlemum31 · 17/08/2020 17:15

I've just been to specsavers where they referred me by emergency to the neurological team has I have swelling behind my eyes.
I've done the stupid thing and looked at Google and it's not good. All I can think about is my kids my youngest isn't going to remember me worst case scerino. It's amazing how life can change just like that. Was just going specsavers 😭 anyone been thur this am I overreacting?

OP posts:
TwoCupsOfLemonTea · 21/08/2020 19:51

@Singlemum31

Well I'm out of hospital, My blood pressure when I first had it done with 248/120 so was extremely high, I stayed in till half 11 last night where they said if it goes down to 160 I can go home lowest it went to was 171/120 so I was abit naughty and discharged myself. Next step is mri and lumber puncture they are doing these as an out patient but I didn't ask when? Do I have to go doctors to sort this or wait for a letter with a date? Yes I know I should of asked when there but I was just worried about getting home. It's took me 4hours today to get the tablets they prescribed me last night with trip to doctor 2 chemist and back up hospital all because the doc didn't date the prescription, the stress of today has caused a headache so I'm pretty fed up 😳

Aww bless you, how stressful.

The neurology nurse said to me if they suspected a brain tumour they wouldn't do a lumbar puncture.

I would put money on you having IIH (idiopathic intracranial hypertension) it used to be called PTC (Pseudo tumour cerebri) as it mimics a brain tumour.

It will all be well, try not to worry

Singlemum31 · 25/08/2020 01:00

Yes I'm thinking iih too so least I know what it is, mri is happening Thursday so I'll take it from there 😊

OP posts:
missbipolar · 26/08/2020 05:49

This has literally just happened to me! I have my lumbar puncture today and I'm terrified 😨

minmooch · 26/08/2020 21:09

@Singlemum31 hope all goes ok tomorrow

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