Short of breath, cough and excessively drenched in sweat

[Biscuitmonster2318]

Over last few weeks my breathing has got harder and shallow. I’m exhausted and feel like I have a lump at front of my neck low down. Nearer to my indentation in collar bone. It doesn’t go away at all and I can feel it when I’m eating, swallowing talking. But can’t see a lump it just looks like that area is fatty and doesn’t hurt it’s just in the way.
I have a very dry cough that seems to come from underneath this lump.
Area under my rib on right side aches now and again and feels like it’s sticking into my ribs and hurts if I had tried to have an alcoholic drink and makes my skin itch and turn red. The urine I produce is huge in amounts all day and night
My voice sounds like a man’s Cos of this lump
But the worse part is the excessive drenched sweating that’s occurring. Normally at night and I’m soaking hair to feet and have to change at least twice in the night
But today around 7.30 I was just stood in my kitchen waiting for kettle. So nothing stenosis and I could feel myself getting sweaty.
It was the worst it’s ever been. It was running through my hair in all directions, my face, dripping off my fringe and and my nose, my neck, and running down my back, stomach arms and legs. My thin dress And I looked like I had got in the shower clothed and took a shower. There was a pool of sweat by my feat where it had run down my legs.
This lasted over an hour. I just stayed in their as I didn’t want my kids to see state of me
I have been on ustekinamub until I had a reaction in June to it. But the sweats have started before that.

So I’m worried about how crap I feel but anxious it’s me over reacting for nothing.

What does your GP say? Hope you're much better very soon.

Not medically trained in any way but it sounds thyroid related to me- where you describe the sensation as coming from as well as problems regulating temperature and hoarseness. Have you had your thyroid levels checked before?

Have you had a COVID test? This is reading like a textbook of longer symptoms?

I’m wondering whether It’s Covid as well, as cough, breathing problems, temperature are classic symptoms.

I think a lot of people are sweating at the moment I know I am. However the other sensations need to be checked out. Doesn’t sound typical of a thyroid problem to me though.

Could be anything hope you see a Dr soon . The urine thing is common in undiagnosed diabetes and the sweating but really could be anything . Hope you get an appointment today .

Yes I’ve had 3 Covid tests as the doctors receptionist says I can’t go with a cough or temp. So I got one and was negative and I called back, the next receptionist said ‘you can’t come if you are coughing - I know I’ve had a test and it’s negative so now I’m trying to get in to see the doctor as my chest and breathing really are getting awful.
I was told because it had been 5 days before and I was still having symptoms I couldn’t go down and needed to get another test. So I did it again.
Rang back 5 days later and the next receptionist said ‘oh you can’t come down with symptoms and need to isolate. Though I did manage to get a call back from GP after I rang my IBD consultant struggling to talk
He then made me pick up from surgery a blood form’
The one where receptionist said I couldn’t go.
I also tried to make an apt for two days later to discuss my blood results and have him check me over. Was told with my symptoms I need to isolate and get another test!
Ffs
So I went got One set of bloods done Thursday for GP whilst getting a full set done for IBD consultant. Results go seperately to each person and neither sees the results of the others tests!
I had a chest X-ray day after - all in hospital who are happy to let me go.
Yet I can’t see the bloody GP as I can’t get past the bloody receptionist
Since when where they qualified to triage people and decide who has a medical need

I was told on 09th July I had another chest infection and had antibiotics and then had to get another 10 days after finishing that course as it still hadn’t gone as uk was struggling to breath and coughing

So since jan I’ve had 5 chest infections needing antibiotics. My bloods taken in July showed I had wbc of over 12.30
Neutrophils of 9.65
Lumphs of 1.56
EGFR of 75
Increased total protein

But my CRP was 3 and was told by hospital to go as I’m ok as my bloods show no infection or inflammation as crp low.
My treatment stops that from rising and told me i had no chest infection after seeing bloods and chest X-ray and was told it was just because I was anxious over the severe anaphylactic reaction I had had two weeks before
So I left and then sat and cried in hospital doorway as I felt so unwell.
My consultant called two days later and said call the gp you have a chest infection in the bottom of right lung and half of left

I’m seriously just so unwell at the minute but feel like after the hospital and receptionist it’s all in my head

Bearing in mind my medication states any sign of infection immediately see a doctor as the biologicals I take just stop it from working the same

My thyroid TSH was 0.68
My Hb1ac was 34 down from 39 two months ago

Oh and I’m Covid clear as I’ve been tested 3 times in past 16 days and last negative test was sat

This could be loads of things. Start with getting a Covid test and, if negative, see your GP for further tests.

It’s not COVID

Can you email the GP practice manager with what you’ve set out here, saying you need an urgent in-person consultation with the GP?

Cross posted. That’s a hell of a drip feed. I don’t know what else you want from MN. Nobody can diagnose over the internet. I feel your frustration with the GP but I guess you have to keep pushing?

Have you had Covid antibody test? Just because you’ve not got the active infection now doesn’t mean it wasn’t the trigger.

i dont believe a GP doesnt actually call you back?

I can get that done too if it means I see a gp

It’s due to been immunosuppressed and the Crohn’s.
If it was possible to see a GP it probably wouldn’t be this bad

Covid tests are only useful for day 1 to day 3 of symptoms, and considering there is an incubation period 1 - 14 days prior, OP would have needed one weeks and weeks ago, possibly 4 weeks ago, no point testing now at all.

@CrowdedHouseinQuarantine he did last wednesday to say he would order my blood tests to check thyroid diabetes as my consultant had got me the appointment to have a FBC LFTs U+e’s
And another chest X-ray

My gp didn’t order another set of them so full blood count etc results have gone to Crohn’s consultant as the med I take Stelera can have serious side effects. But only very rarely. So I’m not worried about that.
So my gp has yhe thyroid results etc and doesn’t have a copy or access to full bloods etc and she has bloods but no access to the other tests!

Ffs

I’m sorry if you don’t believe he hasn’t called back
As I said before when I was able to get put through he called.

The actual difficulty is getting the receptionists to put you on his list to call as I’m just told ‘Covid’
So maybe if the receptionists werent playing Triage nurse - I might actually get somewhere

In our gp surgery, anyone with symptoms of Covid aren’t allowed in the main part of the surgery, but have to enter a ‘Covid zone’ by the back door.

Definitely ring back and try and speak to gp, and if no joy, speak to practice manager.

oh that is annoying op.
can you call 111, get a different triage system?

Maybe when you ring up, don’t disclose your symptoms and say ‘it’s personal’ to the receptionist.

@Standrewsschool that’s a good idea. I hadN’t thought of doing that. As they want details. But I will try that and see if I can get to the doctor. I’m sure he will understand that I don’t have Covid

Sounds like Pneumonia. My husband has Crohn's and he got very sick over a week while everyone was telling him it was COVID. He got so bad I had to drop him at A&E. All week he was sweating, sounds like you still have an infection? He was tested for COVID 4 times and had multiple tests while he was in hospital. Was just bad Pneumonia.

@boardblonde how is he now?
Thank you for your reply. ITs so frustrating that everything is firstly Covid only. I’m finding it frustrating that other conditions are just being forgotten. I have a video call with consultant for blood and X-ray results so I can start new meds. But I can’t start with an infection as it’s another biological infusion and suppresses immune system. But I know the Crohn’s meds will help with making me feel better and get rid of most of symptoms.
But I also do not know how I will be carry on until 19th!
Sorry I’m just feeling sorry and frustrated at myself and situation. I can’t even walk upstairs properly!

What did they do for your husband? Was in a ward or room? If you don’t mind my asking has he had the biological injections?

If you aren't getting anywhere with your GP can you go to your IBD team?
My son has crohns and I have found over the years GP's doesn't have much idea about the side effects and his IBD nurse is much better to get things sorted.

I have just left a message on the IBD hotline and my nurse normally calls back within an hour or two.

It’s just ridiculous I’m Simply sat down and I’m literally drenched in sweat from head to foot. Not just Cos it’s hot but literally running over my skin in rivelets