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Original poster

another long night, thank goodness we see the oncologist tomorrow.

52 replies

onlyjoking9329 · 01/10/2007 21:00

Steve is throwing up big time, he won't let me help him and i feel a bit useless, he started being sick at 4pm, he is still being sick last time he was being sick til 4am.
i am not convinced it is the chemo that is making him sick. i think it is the ABs that he has to stop him getting any infections.
we are seeing the consultant in the morning, questions will be asked.

OP posts:
SenoraPostrophe · 01/10/2007 21:04

you poor things.

could be a combination of the two that's making him ill. you can get antibiotic resistant bacteria stuff to help (I know because the spanish chemist gave me some once _ I'm not medically inclined)

hope tomorrow goes well.

coppertop · 01/10/2007 22:03

Oh no.

Best of luck for the appointment tomorrow. xx

fransmom · 01/10/2007 22:18

((((((((((((((((oj)))))))))))))))))))))

oh gawd it's one things after another for you isn't it? have you phoned the mac nurse at all today, they are there to talk and listen to you anytime you want. i am sorry i only just found this thread, am off to bed now but i wish a better ngiht's sleep for both of you xxxxxxxxx

hows steve now? i hope he stopped being sick(((((((((((((((())))))))))))))))))

Original poster
onlyjoking9329 · 01/10/2007 22:31

saw the Mac nurse at the hospital today but that was before steve started being sick.
i rang the hospital as steve was due to have another lot of his ABs. he only has to have the anti biotics twice a week mon and thurs, he had his first lot on the same day he started the chemo & radio so we put it down to either the chemo or the anti sickness tabs not working, he has not been sick all weekend, then today he had the AB again and he has been sick since then, the nurse agreed that it was prob the AB that are making him sick.
poor steve is shattered (thou not been sick for nearly an hour)

OP posts:
elastamum · 01/10/2007 22:38

Poor Steve. Ask about the antibiotics. He is not on erythromyicin is he? It is well known for making people throw up with sometimes terrible stomach ache.

TheMadHouse · 01/10/2007 22:42

OJ. Steve really needs the anti-nausea meds byh either injection or sometihing else. They are no good to him and you orally if he is being sick.

can your GP not prescribe something ad come out and give him an injections, so at least the two of you get some rest tonight.

I know that you can get Bucastem (sp) in a form that disolves in your mouth and that Stemitil comes in a suppostitiry form.

Again I am so sorry that you are going through this and hope that he has a settled night.

Thinking of you

LaylaandSethsmum · 01/10/2007 22:42

Is it septrin that hes on? MIL is on them and she takes them monday and thurs too, to prevent PCP pneumonia I think, they make her feel really sick and sometimes she looses it a bit aswell. What ant emetics do you have? do you have granisetron?

chikenmother · 01/10/2007 22:45

Hi onlyjoking, I´m so sorry about your Steve. You must be brave and give him love and confort above all things. Because that is the most important thing you can do now. I send you my best wishes. XXX XXX XXX How are the kids doing?

Original poster
onlyjoking9329 · 01/10/2007 22:51

yes it is septrin or co trimoxazole as it says on the bottle. the tabs are 480mg each and he has two twice a day on mon and thurs, i have googled them and have found that they are used for people who have had organs donated but only at one tab three times a week, am wondering if they have given him too high a dose. one of the side effects is sickness

OP posts:
lalaa · 01/10/2007 22:51

for the last two cycles of chemo, I had a syringe pump anti-emetic which was permanently attached for about five days, I think. It made me very sleepy, but that was a total bonus, because it got me through the really crappy days. I had it inserted at hospital at the same time as chemo and the district nurse came and changed the dressing etc every other day or every day (memory is a bit fuzzy). The other thing my onc offered was for me to go into the oncology in-patients for a few days so they could look after me there but I couldn't bear the thought of being near other people who were being sick, so I passed!
Hope the appointment goes well tomorrow.

toomanydaves · 01/10/2007 22:52

Really hope you get this sorted tomorrow oj.
Thinking of you.

LaylaandSethsmum · 01/10/2007 22:54

Thats exactly what MIL takes, I think its different as the organ recipients take it forever as they are on life long immunosuppresants but MIL takes them now ,her chemo finishes in nov then she has to take them for 6 further mths.

Original poster
onlyjoking9329 · 01/10/2007 22:56

i think steves anti sickness tabs are working for the chemo i think it is just the septrin that are causing the problems.
Steve doesn't like hospitals much so he wouldn't agree to go in willingly, lets hopetheconsultant sorts something out tomorrow, will ask about him going back on steriods too as his head is swollen at the moment. they will have to get it sorted cos otherwise Steve will refuse the treatment altogether

OP posts:
WendyWeber · 01/10/2007 23:08

So sorry to read this, oj. Hope they can make things a bit better for him tomorrow. XXX

Original poster
onlyjoking9329 · 01/10/2007 23:45

hoping that tomorrow will be better for him. he is snoring now i can hear him on the baby monitor

OP posts:
Tickle · 02/10/2007 07:24

Good luck at the consultants OJ - hope Steve got some rest last night. xx

niceglasses · 02/10/2007 07:29

Oh Good luck. You're all very brave. Thoughts to you.

Blandmum · 02/10/2007 07:37

I'll be thinkingof you both, as we wait for dh's chemo.

also had a bit of a broken night, but for us it was pain rather than vomiting. We'll have the vomiting tonight

TnOgu · 02/10/2007 07:40

Best Luck for today.

WaynettaVonBlood · 02/10/2007 07:50

Hope it goes well for you today.......xxxx

hippipotami · 02/10/2007 08:11

Oh oj, what a nightmare...

I hope Steve is feeling a bit better and the appointment goes well today.

Thinking of you

wishingchair · 02/10/2007 11:52

Hi OJ. What a nightmare you're having. It sounds like your dh and mine are having different treatment albeit for the same thing.

DH had 150mg of temozolomide a day, every single day (even weekends) during his radiation. He then had a month off and is now having 400mg a day for 5 days in every 28.

He was on steroids and anti-biotics ... no idea which anti-biotics though. Not taking either now.

Don't know what GBM4 is ... maybe that's why it's different. All I know is that our consultant said temozolomide is proven to have good results when taken an hour before radiotherapy so not sure why Steve's only having it for 7 days unless it's a mega dose??

DH started his chemo again last night and then threw up his lovely roast beef the instant he'd eaten the last mouthful. Not sick again yet though ... he's asleep now ... gathering strength till he has to pick the girls up from school and nursery ... I can't cos of my bloody broken leg .

LilyLoo · 02/10/2007 12:16

Hope you get some help today for Steve to get rid of the sickness OJ .

Original poster
onlyjoking9329 · 02/10/2007 13:00

MB am thinking of you hope the chemo is now done for today.
wishing chair it is the exact same treatment plan for steve i must have got muddled up as i heard the bit about once a month chemo but apparently that is only after his radio ends, the DR says chemo is everyday whilst he is on the radiotheraphy thou he gets weekend off from the radiotherapy, they said he is to stay on the ABs but have given him another anti sickness tab ondansetron.
steve asked how long he has if he doesn't complete treatment they say 3-6 months.
treatment could buy up to another 6 months.
steve is thinking if he wants to continue the treatment.
sorry to hear your DH is also being sick

OP posts:
LilyLoo · 02/10/2007 13:15

oh OJ what a tough decision. I suppose it is really up to Steve to try and evealuate what his quality of life is going to be like if he continues with it. It's such a hard decision to make and nothing anyone says will make it easier for any of you. Wishing you the strength to support him in whatever decision he makes.
My mum didn't have the treatment and had the time frame they said without treatment. However she had many good days in between the bad ones with the steroids.