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DP in hospital found a growth on his kidney

101 replies

BG2015 · 28/07/2020 08:10

DP has had trouble with waking up in the night for 2 years or so. He’s been to see his GP and had prostate tests, decided it was an enlarged prostate. PSA levels were fine. He’s 55 next month.

Last week at work his urine was bright red. He went to A & E and was examined, bloods done etc and dr said it’s probably a burst blood vessel in his bladder and booked him in for a CT scan.

Yesterday he woke up to peeing bright red blood again, went to work but then began to feel excruciating pain in his back so his colleague took him to A & E. CT scan shows a small growth on his kidney.

The dr reckons it’s been there for 5 years. They’ve admitted him and are doing further tests today. I saw him briefly last night after dropping him some things off. He looked awful but had been given morphine. He says there’s a possibility they will remove his kidney.

He’s been well in himself. No weight loss, eating well. Tired sometimes but when you wake 2/3 times a might to wee that’s expected.

He’s thinking the worst as the majority of his family have had cancer. His mum died in her fifties, he was only 18.

I’m so worried. We’ve only been together 6 years and I’m planning on another 20 years with him at least.

2020 is just the shittiest year

OP posts:
BrigitsBigKnickers · 10/08/2020 14:38

Is this keyhole? Where is he having it done?
Very best of luck to him. Bet you will be so glad when it is over. Thanks

BG2015 · 10/08/2020 15:40

Yes keyhole. Stoke Royal. We have to isolate now till he goes in. Covid test 3 days before.

Tesco online shop done

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Frazzled2207 · 10/08/2020 15:53

Best of luck. Have they said that his liver and spleen are in the clear? Hopefully the op goes well and that will be the last of it other than regular checks

BG2015 · 10/08/2020 17:10

He's had no contact with any consultants at all. He rang his key worker last week who also had no information. He doesn't know any results.

He's been for his pre/op this morning and the nurse couldn't tell him anything either.

I'm going to encourage him to ring his key worker again but I fear he's burying his head a little bit. If he doesn't know, it isn't happening. No news is good news type of thing.

Not how I would deal with it personally but it's not me going through it.

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BrigitsBigKnickers · 16/08/2020 17:46

BG2015 Will be thinking of you tomorrow- hope all goes well for the op and that your DH bounces back as quickly as my DH did.Thanks

Hoggleludo · 16/08/2020 17:50

My stepmother donated her kidney to her brother. After he lost one due to a really rare kidney disease

She’s one of the healthiest people I know

Just didn’t want you to think losing a kidney is always a bad thing

BG2015 · 16/08/2020 18:54

Thank you!

He's got to be there for 7.30am. Nothing to eat after 2.30am. Still no idea of whether the cancer has spread.

We're trying to be positive and just want tomorrow over and done with and then we can move on!

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BrigitsBigKnickers · 17/08/2020 17:55

Hope all went well. Have been thinking of you today- not that long ago I was in your shoes. Thanks

BG2015 · 17/08/2020 18:15

Surgery went well. He had a large tumour on his right kidney and a small cyst on his liver which they think is benign.

I presume the kidney will be examined. The cancer doesn't appear to have spread. He should be home tomorrow if he has a good night. Can't do anything for a week and then further rest for 2 weeks.

He's sore and in a lot of pain. We've only communicated via text so far as I knew he would be groggy and out of sorts so left him to sleep.

So difficult that I can't visit but I am so relieved and grateful to our amazing NHS. It's 3 weeks today that he ended up in A & E. It's been so worrying but very calm in our house.

2020 can't end soon enough.

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TheSpottedZebra · 17/08/2020 18:17

Oh no, poor you and your dh.
I'm another who's had a kidney removed - there are a lot of us about!

BG2015 · 17/08/2020 22:56

How do you find it living with one kidney? It's amazing how many people there are.

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TheSpottedZebra · 18/08/2020 10:11

Not that much different really! A few things are now ruled out - contact sports (in case the remaining one gets splatted), very high protein diets (puts strain on the kidney). I eat a generally sensible healthy diet so don't get steaming drunk, don't get de-hydrated. Have to be sensible ish with fluid intake so if I were to run a marathon for example, I'd have to be careful about how much water i took on and when. But i don't run marathons! Cant eat tooooo much stuff with high oxalates- so I can and do eat rhubarb but not loads and loads and loads for example.

I got checked a lot at first -for cancer spread/recurrence and also to make sure that my remaining kidney and adrenal gland were picking up the load. Now it's just an annual check.

Hope you get some positive news soon to say that his cancer hasn't spread. And you can report back to him with news of just how many MNers are living totally normal lives with their one kidney!

BG2015 · 18/08/2020 12:04

Zebra that's so good to hear! We eat quite healthily really and he doesn't drink a lot, which is good.

He's waiting to have his medication sorted then I can go and pick him up.

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Laundrywoman · 18/08/2020 12:22

Hope his recovery goes well OP,
and you manage to speak with someone at the Hosp who
can tell you what's what.
The not knowing is torture in itself.
Flowers

frustrationcentral · 18/08/2020 12:30

Have they confirmed it's cancer OP? That's a shame Sad

Hope he recovers well x

SimplySteveRedux · 18/08/2020 12:36

Stoke Royal.

My "local" hospital. May I ask which consultant he's under? My DS had a kidney removed when he was very young, and he is now 24 and absolutely fine. Liver is usually scanned as it operates in harmony with the kidneys to excrete and break down blood and bile byproducts symbiotically.

There's a lot of people living a normal life with one kidney, and it's very usual for one to be removed as soon as a problem occurs as kidney disease inevitably spreads to the other quickly.

I'm on the list at RS to altruistically donate one of mine. The checks were stringent, but I hope one day I can help someone :)

BG2015 · 18/08/2020 12:58

They've not yet confirmed that it's 100% cancer yet.

He's under Mr Golash who also removed my dads prostate 10 years ago.

OP posts:
SimplySteveRedux · 18/08/2020 13:20

@BG2015

They've not yet confirmed that it's 100% cancer yet.

He's under Mr Golash who also removed my dads prostate 10 years ago.

Good, very senior and very good.
AhBallix · 18/08/2020 13:43

This has reminded me about my dad, who had a kidney removed in his early 70's. The day after he got out of hospital my mum, coming back from the shop, met him striding up the street with two 8ft floorboards under his arm. He said he needed to fix the hall floor. Mum nearly had a fit! He said he felt well and to let him get on with it. He lived very normally with his remaining kidney and died of something unrelated in his 80's.

BrigitsBigKnickers · 19/08/2020 08:29

How is your DH now op? Is he home yet?

BG2015 · 19/08/2020 09:15

He came home yesterday afternoon. In quite a bit of pain but trying to manage it with paracetamol. It's mainly when he moves.

He had it done via keyhole but has got a larger incision under his belly button to remove the kidney as a whole.

He's struggling to get up as you do when you have surgery involving your abdomen so I'm helping him. (I had a hysterectomy 3 years ago so I'm returning the great care he gave me)

I love him so much and am so relieved that we've got to this point. Just glad that I'm still off work to care for him.

OP posts:
TheSpottedZebra · 19/08/2020 10:33

Has he got the (referred) shoulder pain from the gas as well? As peppermint tea, strong as you can, really helps with that, but you poss know that already.

Otherwise, it's just staying on top of pain relief, and moving sensibly, alas. Best wishes.

TheSpottedZebra · 19/08/2020 10:34

Oh, and consider laxative or softener as he'll have had morphine probably and constipation after abdominal surgery is no fun.

BrigitsBigKnickers · 19/08/2020 10:49

Glad he's home. My DH had about 5 puncture wounds with the largest one about an inch and a half but he only had a partial nephrectomy so I imagine the incision would be bigger for a full nephrectomy. The recovery should be much quicker for keyhole. Hopefully he will be up and about soon. It's fairly major surgery so he will need to take it easy.

BG2015 · 19/08/2020 11:36

He's got lactulose which he's taken. It's just rest and time to heal.

Lazy day today just reading and watching TV.

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