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Original poster

Steve will finally get his brain scan on monday.

35 replies

onlyjoking9329 · 21/09/2007 19:54

after me phoning the hospital three times this week he is to have scan on monday at 3pm, now to sort out child care.
they did say he would get his scan in 7-10 days, he will get it on day 20.
if all goes ok with scan he will start radiotherapy and chemo on thursday.

OP posts:
biglips · 21/09/2007 19:54

fingers cross for you xxx

Tamum · 21/09/2007 19:58

Oh oj, you are having to fight every step of the way, aren't you

Blandmum · 21/09/2007 20:01

This is insane, OJ, I just don't understand why you are having to fight for all this stuff.

Do you have an appointmentwith the Macmillam=n nurse?

Ours has arranged for dh to have an appointment with an alternative therapist to help to reduce his stress over the chemo.

A reiki head massage amongst other things! I shouldn't but i'm LOL because dh isn;t an 'alternative kind of a guy! But if it helps, who cares!

MintyDixCharrington · 21/09/2007 20:05

Oh god OJ, that is bloody frustrating. Best of luck with it all. My friend has just had an MRI and found really good shrinkage of her residual tumour after radio and chemo... great news. Sending you vibes for equally good results...xx

Original poster
onlyjoking9329 · 21/09/2007 20:10

the Mac nurse rang to introduce herself but is on holiday next week but she did say that someone else would ring us whilst she was off, i am hoping things will get better when mac nurse is involved.
we still not sure why steve is to start treatment on a thursday when treatment is monday to friday. do you think they are warming him up by giving him 2 days then the weekend off?

OP posts:
Original poster
onlyjoking9329 · 21/09/2007 20:11

Glad to see your mates tumour has shrunk, what is the next stage for her?

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Tamum · 21/09/2007 20:13

Oh Minty, is that the friend I know about? How marvellous!

Mb, your nurse sounds such a treasure, I'm so glad they are trying to find something to help with the nausea.

callmeovercautious · 21/09/2007 20:15

At last OJ! Best of Luck for it!

Original poster
onlyjoking9329 · 21/09/2007 20:21

MB let us know how the reiki head massage goes, steve would run for the hills if anyone mentioned it to him.
his sister is into crystal healing and had a healing meeting for steve some months ago, steve told her, it didn't fucking work

OP posts:
cookiesandscream · 21/09/2007 20:49

Glad to see that steve has a scan date.
i will keep everything crossed that the tumour has not grown.
you are coping so well with it all, i hope you have lots of family and friends to help you out with childcare and emotional support.

Blandmum · 21/09/2007 21:03

OJ, the two days may be a warm up.

The only tip I can give you is to take lots of drinks with you, and possibly something to eat. You'll also need things to pass the time. The radiotherapy paients don't tend to wait as long as the chemo ones, but if one of the machines goes 'down' then they do have long waits.

I wouldn't plan on doing anything else that day, and if you get out early it then feels like a bonus.

Original poster
onlyjoking9329 · 21/09/2007 21:10

we are hoping when we go on monday that they will give us a few appt times for treatment so we can sort out treatment, steve will be having the chemo as well as the radio and i am sure i read somewhere that he has to have it on an empty stomach.
will take some drinks

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Blandmum · 21/09/2007 21:58

You may have to wait around for the chemo, as they will often not make it up until the pateient sees the doctor, and the doctor oks the treatment and the dose....initially dh's dose varied a lot, as his weight was changing on a week by week basis.

the pharmacy will not make it up until they get the all clear from the doc.

So you end up waiting aound.

Waits of 1-2 hours past your appointment time are quite the norm, so make sure you have back up provision for picking up the kids etc just in case

make sure you take something to help while away the time. I knitted a DNA scarf at one point!

fransmom · 21/09/2007 21:59

finally at last. i can't believe you have both had to wait this long .
when mom had chemo i believe she also had aromatherapy and said it was the most relaxed she'd been for ages. not sure if she also had reflexology, perhaps not.

fransmom · 21/09/2007 21:59

what's a dna scarf?

Blandmum · 21/09/2007 22:01

a scarf with a pattern of the DNA molecule on it.....very geeky, but I'm a biology teacher!

fransmom · 21/09/2007 22:03
Original poster
onlyjoking9329 · 21/09/2007 22:13

Dunno if it will be different for steve as he is having chemo tablet form.
impressive scarf.
don't think steve will do any alterative treatment it is hard enuff trying to get him to agree to the treatment ahead

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Blandmum · 21/09/2007 22:15

The tablets are much easier.....dh just has his to take at home. It is the infusion that holds us up

fransmom · 21/09/2007 22:15
Blandmum · 21/09/2007 22:16

It isn't dh's sort of theig either. But he knows that if he wants to live longer he needs to keep having the infusions, so he'll try anything atm that might make getting through that day of treatment easier

Original poster
onlyjoking9329 · 21/09/2007 22:18

Steve has kicked againest everything so far, but i just have to give him time really, i mean he has changed his mind about the Mac nurse

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Blandmum · 21/09/2007 22:20

which I think is very positive.

They are just so down to earth and practical, sort of like really good midwives, they take the fear away

Original poster
onlyjoking9329 · 21/09/2007 22:25

he just needs time to process stuff bit of an AS thing going on there!

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Original poster
onlyjoking9329 · 24/09/2007 11:57

Scan is today and steve is having one of those days he says he isn't going, oh yes he is i have two hours to convince him

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