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Original poster

Anyone still up? In scary place

105 replies

Lauren850 · 24/02/2020 01:19

Dd2 (16) was admitted to hospital today, suffering from a weird and scary skin condition - the worst is in her mouth, lots of agonising little white spots, but she also has spots on arms, legs and back which look a bit like angry insect bites. Hospital says infection or drug reaction (she's recently started Sertraline) but we need test results to know more. I've persuaded the ward to let me stay with her - in a chair all night - as i can't bear to leave her in so much pain in a strange place with lots of horrible stuff going on. Woman in next bed keeps being sick really loudly and i have stupidly googled and found all kinds of terrifying explanations of her symptoms. Any calming words would hugely appreciated!

OP posts:
littlestrawby · 25/02/2020 21:26

Thinking of you and your daughter ThanksThanks

ParsleyPot · 25/02/2020 21:35

Hope she's feeling a lot better soon.

GrannysBat · 25/02/2020 21:42

Sounds like Stevens-Johnson syndrome or TEN. Most likely Stevens-Johnson due to the Setraline.

My stepDad was diagnosed with TEN after a reaction with some medication which left him with blisters all over his body. Frantic googling during that time and doctors weren’t very optimistic about his outcome. But he pulled through.

These types of syndromes are a rare occurrence and you might find that everything gets done much quicker than expected as it gains a lot of interest in the the medical community. My stepDad was talk of the hospital and all his bloods and biopsies were being processed in record time.

She’s in the best place OP and she will get better. It’s good it’s been caught so quickly and the offending medication stopped.

DariaMorgendorffer · 25/02/2020 21:46

You poor, poor things op. Hoping that they are managing your dd's pain better now and you are ok yourself too. Thanks

Original poster
Lauren850 · 25/02/2020 23:29

Wow just logged on after a long day and to find all your lovely messages, made me cry! My partner (not her dad).has been a bit mean, not understanding why I'm staying at the hosp overnight considering she's 16. I feel even if she was 25 I'd be here! So its lovely to feel supported via all of you. Things have been scary again today as she's had some new symptoms including swollen joints and one side of her face. Plus new spots, sore eyes and severe abdo pain. Two separate teams of docs are working on this and say its quite a mystery so far - looks like massive autoimmune response but what's the trigger? The are saying stevens johnson seems less likely now tho i think that's why she was admitted so fast on Sun. Right now she's watching a show and has eaten a yoghurt - promising! - but I'm dreading the night, hopefully she'll get more morphine. I know it sounds selfish but i desperately need to.sleep so i can get away from how I'm feeling

OP posts:
DariaMorgendorffer · 25/02/2020 23:34

That's not fair of your partner, op. My dd is 16- they're still children!! Especially at times like this. And I think anyone of any age would like support from a parent or friend when they are so sick. Hospitals are so lonely, especially when you're awaiting diagnosis.

So glad to hear that dd is able to eat something. Hopefully, with some food and more pain relief, she will sleep better this eve, and you can too. Is it possible to sleep in the chair next to her? Can someone drop you a blanket or something to prop up your head?

You're in the right place, and it's good to know that two teams are looking after you. My heart goes out to you - nothing worse than your child being sick.

Stressheadme123 · 25/02/2020 23:46

Sorry to hear she isn’t better.

Ignore him.
You are a great mum. I wouldn’t be able to leave my child either regardless of age. You just want to be As close as possible at times like this.
It’s so hard trying to sleep on a noisy ward.
Maybe some headphones in your ears with light music might help you drop off for a
While?

Butterymuffin · 25/02/2020 23:52

I wouldn't leave my16 yo either if I thought she needed me and this sounds like the case for yours. Are you still in a chair? Hope you can get some sleep at least. Agree with the headphones suggestion.

Toseland · 25/02/2020 23:56

Just wanted to send you some good wishes, hope your daughter gets well soon xxx

knowmenclature · 26/02/2020 00:00

Another Brew from me too. Keep strong love and ignore any that are less than supportive

Its a scary time for you both, and I cannot comprehend how anyone wouldn't get that?!?

I hope you can both get some sleep tonight. Flowers and better news for tomorrow xx

Haggisfish · 26/02/2020 00:03

Good grief my mum came into hospital with me recently and I’m 43!! I couldn’t leave a 16 year old at all. Hope she starts to get better soon.

Original poster
Lauren850 · 26/02/2020 00:17

Thanks everyone, am thinking he's a bit of a knob on this one. Times like this are very testing and make you think again about people and relationships.
We are so lucky with the room we have now - it's just for her and I've got a mattress! So can definitely sleep if she does.

OP posts:
MerryInthechelseahotel · 26/02/2020 01:35

Sleep well Lauren. I hope your daughter begins to improve tomorrow after a good night.

idontusuallypanic · 26/02/2020 01:48

Sleep well. And hope for good news.

QuiteForgetful · 26/02/2020 03:55

Hoping for good news about her tests soon. Hang in there.

Blurpblorp · 26/02/2020 04:26

We do what we feel is right as mums and everything and everyone else can sod off! So sorry this is happening to your daughter, hope you're having a better night. How's things this morning? FlowersBrew

Candymay · 26/02/2020 05:10

How’s everything going tonight? I hope you get some results back today and find out what is going on with your daughter. Hope you’re getting some sleep.

thickwoollytights · 26/02/2020 05:41

Hope you got some sleep and today brings good news Thanks

Cantchooseaname · 26/02/2020 05:51

Yes, stressful times do tend to show people’s true colours.
Rest when you can, hope she turns a corner soon.

neverdoingthatagain100 · 26/02/2020 08:14

Well it's great to hear she's eaten something, that seems promising. Thank goodness you've got that room. I hope you've managed some sleep.
What about you has anyone brought you in some food / toiletries etc? Can you have a shower and freshmen up?
You have to look after yourself and stay strong for your daughter.
Give your partner a list of things you need.
(And no one is going to leave their 16 year old in hospital alone especially as you don't know what the diagnosis is yet, you are being very reasonable!)
Good luck this morning xx

LaLaLandIsNoFun · 26/02/2020 08:19

With the start of the new medication and the coinciding symptoms it does sound as if the above poster could be right. Do not google.

I had a friend who had horrendous SJS from sulphur based antibiotics (I also took a medication which increased the chances of developing it but was lucky). It was horrendous at the time but she made a full recovery with no major lasting effects.

Original poster
Lauren850 · 26/02/2020 09:21

Omg i shouldn't be allowed to go on the Internet, I've now scared myself even more thinking this could be Lupus. An awful lot seems to fit except that the rash is completely different so am.holding on to that. Waiting now for abdominal ultrasound, will hopefully see docs later this morning.

OP posts:
neverdoingthatagain100 · 26/02/2020 11:01

Good luck xx

MerryInthechelseahotel · 26/02/2020 13:46

Stay off google Lauren! It won't serve you at all until you know what's wrong. They will find out very soon and she's in the best place. (I never follow my own advice but I should!) good luck HmmThanksThanksThanks

clairethewitch70 · 26/02/2020 14:08

Hope your daughter starts to feel better soon x

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