New year, new thread - cancer support thread 68 - join us if you have cancer, or are waiting for cancer-related tests

[WhatWouldLeslieKnopeDo]

Hello everyone,

Welcome to the new thread. Our previous one is here.

Anyone with any cancer is welcome, or anyone waiting for tests because they might have cancer. If you're new, just jump in wherever. Don't feel you need to catch up with previous posts. We talk a lot! Ask any questions you need to. Someone will hopefully have an answer. And feel free to post photos of cute pets too.

Whether you're new or not, it's helpful to post a little introduction on the new thread to save people trying to remember everyone's different diagnosis and treatment.

It was wonderful. Top of the range - all black with full black leather interior, panoramic sunroof and all the bells and whistles. It was lush!

Posh boob is fantastic, heavy so it sits in my bra properly (hallelujah) I have strict instructions for cleaning it and to keep it in its box - like having a posh pair of shoes

Mrs I had a seroma that obviously wasn't reabsorbing so yes 4 times over about 2 weeks, and then it settled. My op was 1st Nov - can't believe it's 3 months! I'm feeling bad from chemo, not the surgery - sorry if I worried you!

Hello all
Sending love and healing vibes to those recovering from surgery.

TQ How disappointing for you Fingers crossed for the next results end of Feb.
KeepCalm That blanket is bloody beautiful. Woolly Hugs are so brilliant.
Leslie You are entitled to be as melancholic as you like, but I hope you are feeling a bit brighter

KBG

No worries I like to learn from other people’s experiences

@peridito part of the problem is that I am actually in pain, so keeping busy is harder than it used to be. I’ve let the house go a bit... But I still go to work and cook, so that’s something.

Goodnight everyone- Twitter, fingers crossed for lower levels at the next appointment.
Leslie, I hope you get back to enjoying Netflix and board games tomorrow.

babay right now you just need busy for sanity’s sake, not to achieve anything! So any absorbing TV is good, trashy books, coffee with friends who can be trusted to gossip for an hour without taking a breath, really complicated cake recipe. Distraction is the name of the game.

On a more practical level, have you been given the home bowel prep?

Snow snow snow snow snow

namechange yes, they gave me moviprep.

Trying to wean my 1yo off the breast as I won’t be able to breastfeed for a couple of days because of sedation and moviprep. The day started with her crying in her cot and my being unable to go to her and give her the breast like I always do DP went to give her cow’s milk instead. I know they’ll be fine together, but am finding it soooo hard to relinquish control. It goes against one’s instincts as a mother.

babay that sounds so hard about your little one .As if you don't have enough to cope with .

Babay that's really tough, especially as it wasn't your decision to wean - you've got no choice 😔 physically your body has also got to cope with it too. Sending you very gentle hugs, I hope you're not snowed in on top of it all xxxxx

Popping in to say hi to Baba . Hope you're not here too long (in a nice way!). Re the weaning for colonscopy you might not need to if you don't want to <a class="break-all" href="https://www.google.com/url?sa=t&source=web&rct=j&url=breastfeedingnetwork.org.uk/wp-content/dibm/colonoscopy%2520and%2520breastfeeding.pdf&ved=2ahUKEwjhm-i_qZrgAhWqt1kKHVkbCfcQFjAAegQIBhAB&usg=AOvVaw2c9W6eOvkKvLqFxypgrEf4&cshid=1549016972418" rel="nofollow" target="_blank">www.google.com/url?sa=t&source=web&rct=j&url=breastfeedingnetwork.org.uk/wp-content/dibm/colonoscopy%2520and%2520breastfeeding.pdf&ved=2ahUKEwjhm-i_qZrgAhWqt1kKHVkbCfcQFjAAegQIBhAB&usg=AOvVaw2c9W6eOvkKvLqFxypgrEf4&cshid=1549016972418.
TQ sorry to hear about the ca125. Hope scan brings better news.
KBG posh boob sounds great (although I did momentarily get the description mixed with the car one so was wondering about the sunroof!).
Leslie thinking of you.
Off for blood test for my next oncology review today. Another week of scanxiety. Things hectic at work though so that will keep my mind off it.

Thinking of you all

I feel very restless and sort of detached from reality. I can't decide what to do. Not that I can really do anything even if I wanted to. Even turning over in bed leaves me breathless. I don't understand how I'm still alive to be honest I don't want to die, but I don't want to live like this either. I'm ready to just drift away.

Tayto good luck with your blood test

for baba

Leslie can you see the snow from your bed? It’s very beautiful here (if you don’t have to go out in it). Thinking of you

Can you eat much?

Thinking of you Leslie - is there anything you can do without having to actually ‘do’ anything iykwim? I guess I’m thinking things you can listen to but not have to think too much about - audiobooks, music... Something nice to touch or hold in your hand - a smooth pebble, or a compliant pet?! I am thinking of you, and sending much love

leslie we have very little snow here but what has settled is making the world look like a much quieter, gentler place

I can see a bit of snow, though it's already melting. It's pretty :)

I might try and watch some telly or listen to something. My mum is keeping me company. I just want her to bundle me up in her arms like she did when I was little and make all the fear go away.

I might try and knit or something. Otherwise I will take some lorazepam and drift off in a druggy-haze for a while!

Leslie it’s so nice that you have a mum who takes such good care of you. When it happens eventually, I’m sure it will be peaceful - you will drift away, as you say. Brave of you to admit to the fear. Do you want to say what it is that makes you afraid? (Please ignore me if I’m overstepping a line here!)

tayto thanks for that. Have emailed my consultant’s secretary to ask what exactly is in the stuff they’ll be giving me. It would be such a relief not to have to stop entirely for two days.

Fingers very crossed for your review.

She and my dad are taking turns so I'm never alone :)

I guess just the fear of the unknown. And also that I'll be in distress from not being able to breathe. I'm not scared most of the time. But it pops up sometimes.

Babay did your husband find out about the job? Hopefully you can still feed your baby, you've got enough to worry about without being stressed about that too.

I'm so pleased you have your parents with you Leslie. I agree with Fuzzy, would audiobooks help? Hopefully it could take your mind off things for a bit. If there's anything any of us can do for you or send you please just shout and let us know

The steroids the nurse prescribed me are really helping with my leg pain so I'm wondering if it is just inflammation, although I can't take ibuprofen incase I haemorrhage again. I've just been measured up for my wheelchair and I should have it within 2 weeks. Hopefully the snows gone by then! I love it as long as I don't need to leave the house

I just want her to bundle me up in her arms like she did when I was little and make all the fear go away

I definitely get that. I think I actually wish that more for my mum than for me. Must be so hard being a mum and seeing problems you can’t fix .

purple He didn’t get the job. You know the saying, ‘God doesn’t give you more than you can handle’? I’ve always thought it was rubbish, but am finding it strangely reassuring in the circumstances. Are you planning any nice outings in your new wheelchair? Might be nice to go to a National Trust property or similar, if you have someone to wheel you about.

Have a stiff neck today and what feels like a swelling in my leg all the way down to my foot. Of course, now convinced that the cervical cancer I had some years ago has come back, spread to everywhere including lymph nodes and bowel. Or, alternatively, that it’s bowel cancer that has spread to lymph nodes... The possibilities are endless! And I can’t write them off as psychosomatic because, well, I do have blood in my poo (TMI, sorry) and have been referred for urgent colonoscopy. You are all right, the waiting is hell.

No such thing as TMI round here

@babayagga no promotion here either