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MNHQ here: do you have experience of birth injuries that led to longer-term health problems?

8 replies

ClaireTMumsnet · 15/03/2018 14:05

Hello,

We at MNHQ are getting ready to launch the next phase of our ongoing Better Postnatal Care campaign www.mumsnet.com/campaigns/better-postnatal-care. The first part of the campaign was focused on women’s experiences on postnatal wards. This second phase will focus on women’s experiences of birth injuries and related health conditions, especially those which can affect women for months or years after birth.

As part of our campaign, we’re looking for Mumsnet users who are or have been affected by health conditions that arose as a result of birth injuries or difficult births, who would be willing to be media case studies to help publicise the campaign. [MESSAGE EDITED to remove reference to women having given birth in the past three years - MNHQ]

We're talking about things such as painful scarring from birth injuries or stitches, pelvic organ prolapses, pain or discomfort that affects sex, or problems with urinary or faecal incontinence.

We’re looking for as broad a range of experiences as possible - we'd love to hear from both women who sought and received good medical care, and those who have not sought medical care (and those who sought it but did not receive what they needed).

If this sounds like you and you’d be comfortable talking to the media about your experience – anonymously or not – please email [email protected] for more information.

Getting in touch with us does not commit you to acting as a case study. We always run any media opportunities past our volunteers, and you will always have the final say about whether to go ahead with a media opportunity or not.

Finally, ideally you'd be reasonably available and in the country/near a reliable phone during the first couple of weeks of April.

Thanks very much,

MNHQ

ClaireTMumsnet · 16/03/2018 09:20

@Rachyhayes

Should have read that better not gave birth in the last 3 years oops

Thank you so much for sharing your experience. That sounds terrifying - we hope things are okay now Flowers

RowanMumsnet · 16/03/2018 09:23

Morning all

Thanks for your comments and much sympathy/solidarity for those of you with personal experience of this.

We initially asked for the three-year period because our survey about postnatal care (which kicked off this campaign) used that three-year period so that we could capture a relatively recent picture of care.

Thinking about it though you're completely right - the nature of this issue means a longer time horizon is entirely appropriate. So please feel free to disregard the three-year thing if you'd like to be involved - we'll edit the OP now to reflect that

Thanks and Flowers

ClaireTMumsnet · 19/03/2018 16:54

Thank you Flowers

@ShovingLeopard

I'm personally fine (had a private ELCS, which was brilliant). But I'm so glad you're doing this, for the many, many women for whom it was not fine, and who have subsequently been let down again in the ensuing years.

ClaireTMumsnet · 20/03/2018 11:31

Hello all,

Thank you so much to those who have shared their experiences on this thread. We're here and we're listening. We've been privately messaging users who have shared their distressing experiences, and we can only respond to individual users during our office hours.

RowanMumsnet · 20/03/2018 11:52

@hazeyjane

Is this only concerning vaginal births or long term difficulties as a result of C-sections too?

Hi Hazey

Most of the material we've gathered is about vaginal, anal and/or perineal injuries and prolapses (whatever the mode of birth was).

We don't want to exclude other experiences though (sorry, don't want to be presumptuous about what your experiences are) and it's really useful for us to have a range of case studies to draw on - so please do get in touch if you're up for it.

(Focus specifically on all aspects of mothers' experiences with c-sections is coming, probably as the next phase of the campaign)

RowanMumsnet · 20/03/2018 11:54

@Anatidae

One thing to look at MNHQ and perhaps campaign for is better data collection. Who is collecting this data? I suspect (please correct me if I’m wrong) that there’s a disconnect because obs/gyn are not seeing the long term effects, because they’re dealt with by different specialities. I would like to see birth injuries followed for the lifetime of the injury and included in the statistics. Right now all I am seeing is items like c section rate etc. A ‘successful’ v birth is counted basically as a live baby - to me that needs to be qualified with what injuries were suffered. What women need to know is ‘if I give birth at x hospital, what are the chances of a second/third/fourth degree tear/episiotomy rate etc. What is this hospitals long term follow up rate needed for prolapse? Etc.

Data is absolutely critical - it’s what drives our ability to hold people to account and to improve practice. Please make this a key focus of your campaign.

My sincere sympathies to all who have suffered trauma and damage. Women’s health generally is scandalously under-valued. Ante and postnatal care doubly so.

Yes, we think this is a great point. When we launch we're going to ask MNers what sort of action they think needs to be taken but we're going to highlight data as part of that and we've got a few suggestions for research/data gathering.

ClaireTMumsnet · 23/03/2018 12:35

Hello all,

Thanks for all of your responses - we're reading every response at MNHQ.

Claire at MNHQ

ClaireTMumsnet · 23/03/2018 12:36

@Lilifer

I would like to get involved . Do we just reply on here or do I e mail you and who to address it to??

Hi Lilifer,

You can either post here or email Claire at MNHQ on [email protected]

Thanks!

Claire

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