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Have I made the biggest mistake of my life?

81 replies

CuppaTeaAndAJammieDodger · 04/03/2018 10:25

Bear with me, I am feeling very sorry for myself.

I injured my knee at the end of November, I slipped and my left leg decided to go in the wrong direction from the knee. It was agony and I immediately knew I’d done something serious.

Anyway to cut a long story short, it turned out that as well as soft tissue damage the bottom of my femur had crashed into the top of my tibia and essentially crushed it. Due to the way it healed (basically now missing that part of bone) my knee no longer locked, and even after it being in a brace for months the surgeon told me that the only way I would ever be able to walk/run/move again without my knee going backwards was to either wear the cumbersome hinged brace for the rest of my life or have an upper tibial osteotomy. I opted for the latter, the aim being that I get back to full normality.

The op consistered of taking out a wedge of my tibia below the defect, repositioning the head of the bone, filling the wedge with bone graft (both artificial and harvested from my femur) and securing it with a titanium plate and screws. Pretty hardcore.

During the op they gave me a nerve block, which lasted a good 48 hrs, masking the pain. So when I was recovering in hospital I was both comfortable from that plus was being given regular strong painkillers. When I got home I was in agony. I was prescribed oramorph on top of the other painkillers I went home with and I was mainlining them all for quite a few days, thety also put me in a full length cast to give me more support (although later had to put 2 cuts in it to release swelling).

I had no idea I would be in so much pain, it’s been like nothing I’ve experienced before, not even back to back childbirth on syntocin. I’m on less painkillers now but that’s partially due to them causing me additional problems such as sickness and bunging me up (ah fun and games). I am basically tied to my bed as we live in a townhouse with many flights of narrow and windy stairs which are a nightmare to negotiate, even on my bum, and no loo on the ground floor. I’m getting little sleep and although it’s early days (10 days post op) I am finding it hard to see much improvement and am really worried that as I’m in a cast I can’t try to gently exercise bending my knee as basically all the literature says should be done post op. I will have physio once I can weight bear - so in about 4-6 weeks, my surgeon insists everything is as it should be and I do trust him, It’s just so hard to believe that I’ll get anything near back to normal in my current state.

I’m so worried that I’ve signed myself up for a lifetime of pain and a knee that just won’t bend.

I am completely dependent on DH at the moment, we have a wheelchair and I’ve been out once but it was an absolute mission. Plus my leg is stuck out in front of me and I feel very vulnerable. I am trying to take my mind off things with reading, movies, cross stitch but the pain is very distracting.

If you have read this far you need a certificate or something. This is mainly a self-pitying rant, although I’d love someone to come on and say “ah, I had the same and am now completely pain free and training for a marathon” Smile

OP posts:
AnnieAnoniMouse · 04/03/2018 11:29

Sorry DD NOT DS.

A somewhat distracting small boy monster here!

roundthehorn · 04/03/2018 11:30

Knee reconstruction comes with a long and painful road to recovery, but your pain levels should become more tolerable at the 2 week mark.

You should have a physio consult asap as there are exercises you can/should be doing whilst still in plaster. Straight leg lifts, quad activation etc, even pointing and flexing your toes will make a difference when the cast comes off and the real work begins. After 4-6 weeks in a cast it may take months to get full mobility back and it will probably be a less than pleasant experience. Plenty of water and some otc pain meds before you do your physio followed by ice packs afterwards.

Sending you sympathy, empathy and a virtual bottle of gin.

SpringEquinox · 04/03/2018 11:37

CuppaTeaAndAJammieDodger

Your comment 'Think part of my problem is I'm not the most patient of people' really resonated with me. I have had a couple of rounds of major surgery in the past two years and it put paid to any self image I had of being a serene, gracious convalescent ! I kept thinking ' well, I would have got that faster ' and fretted about my DH's version of taking care of things ( letting it all slide :/) but ultimately I just had to let it go and concentrate on healing properly.

Knee surgery pain is one of the worst, from reports from people I know and make sure you have the right meds. Don't downplay it and try to tough it out ( though, ugh, the other fun of the effect they have on the digestive system) I'm sure it will all be worth it in the end but it is day by day at the moment. Very best wishes for your recovery .

CuppaTeaAndAJammieDodger · 04/03/2018 11:40

OnTheRise no pain clinic referral but I am incredibly lucky that I had private insurance and the hospital/my surgeon has basically been on call whenever I’ve had problems or been in so much pain I’ve needed help.

Annie I tried to crochet but was useless, a friend had offered to come over and teach me though so I will give it a shot! Turn a negative into a positive and all that.

ISpentTheDayInBed (what an apt username Grin) oh yes, the tears, there have been many!

Again, thankyou all so much - you really are making a huge difference. I am a bit teary now but in a slightly optimistic, grateful kind of a way Smile.

OP posts:
CuppaTeaAndAJammieDodger · 04/03/2018 11:43

and fretted about my DH's version of taking care of things

That made me laugh Spring - yep, am battling with that thought myself 😄

OP posts:
UpstartCrow · 04/03/2018 11:44

I know it doesn't feel that way now, but you have made the best possible decision. If you had opted for the brace, that would have been the rest of your life.
Knee replacement surgery is incredibly painful, but the worst part only lasts a couple of months. After you get through that, you have a functioning knee again.
Best wishes for a full recovery Flowers

user1474652148 · 04/03/2018 11:48

I won’t bore you with the horrors of my surgery, but I feel your pain. You poor poor thing. It is utterly miserable, but only in the short term: you would know if the surgery was a failure so have faith it will eventually feel better each day.
My saviours were:
Box sets: Rebecca martinnsson, Rivera, lies, etc these will keep you entertained
Ramsay’s kitchen nightmares will make you laugh
Invite friends over once or twice a week if you can face it, it will cheer you up
Sliced fruit
Smoothies
Exercise other body parts unaffected
Mindfulness
Growing plants and flowers next to your bed
Keeping a diary to watch dh your progress
Burning essential oils
Dh to massage your back/legs
Planning all the things you would like to do when you are better

user1474652148 · 04/03/2018 11:52

I had a total hip replacement and by the end of week two you feel so much better

Can I add to the list:
Mobile hairdresser to do your hair will give you a lift
Mobile beauty therapist to make you feel human again they are usually unexpensive

When you feeling slightly stronger:
Photo albums - nows your chance!
Write that first book/ paint/ poetry
Jewellery making

In the coming weeks it will warm up and you can sit outside

CuppaTeaAndAJammieDodger · 04/03/2018 11:54

user1474652148 brilliant list. Thankyou.

Have just arranged some visits for next week. Am going to get some projects started. Restarting daily mindfulness - I even have a meditation corner in another room, just can’t really get to it at the moment, bed mindfulness is just as effective I’m sure.

OP posts:
CuppaTeaAndAJammieDodger · 04/03/2018 11:56

Ahh jewellery making - I could start on Xmas presents. Thank god for Amazon Prime.

OP posts:
AnnieAnoniMouse · 04/03/2018 11:56

cuppa if you get in touch with knottyandpistey they’ll sort you out with a hook and some wool. Join in the thread and we will have you crocheting in NO time. Despite having knitted for years I thought crochet was fucking witchcraft. A friend tried to teach me and I thought she was being deliberately fucking unhelpful (she has form 🤣) so I gave up. That was until all the others on the Chernobyl2017 were doing loads of squares in crochet while I plodded slowly along knitting. I figured if they could so it, so bloody well, could I. Online tutorials. I wore the iPad out play, rewind, play, rewind ad nauseum. My first attempts were, umm, ‘interesting’ but then I found an easy to follow one and hey presto! They’re a great bunch too, a nice corner of MN (I use a different name there because of the Daily Fail & hacking etc)

CHERNOBYL

CuppaTeaAndAJammieDodger · 04/03/2018 11:57

You lot are the best - I’m feeling so much better, mentally at least.

OP posts:
CuppaTeaAndAJammieDodger · 04/03/2018 12:01

😂 Annie my lovely DH bought me a crochet book a while back when I first gave it a go, but all I managed to make were mouse sized superhero capes, as each row I did got thinner and thinner (I THOUGHT I was counting correctly).

Am going to give it a concerted effort. Will get in touch with knottyandpistey.

OP posts:
user1474652148 · 04/03/2018 12:06

I also stop trying to be cheeerful and just cried when I needed to. Of the joy of giving in and saying yes this is just so shit but it will be worth it when I am better.

You could make all of your birthday and Christmas presents for the year ahead
Cards to match
🙂🌈

Purplefrogshoes · 04/03/2018 13:03

It’s very early days OP. I had a complex left total hip replacement in June. I have ddh and have suffered with pain and had lots of surgery but after my op I was in agony and they struggled to keep my pain under control. I was in agony and thought I had ruined my life but slowly my pain decreased and my mobility improved. Rest as much as you can and take the painkillers when they are due, don’t wait until the pain is really bad Flowers

AnnieAnoniMouse · 04/03/2018 14:54

cuppa. I learnt a lot of different crochet stitches last year, but the books still leave me 🙈😫. This is the tutorial that helped me GRANNY SQUARE. It’s honestly so easy to follow her. As I said, I had to rewind/play/rewind/play but then it clicked.

I am going to STFU about crochet now, but feel free to PM me if you want to.

QOD · 04/03/2018 15:23

I had shoulder surgery 3 yrs ago and I was in sobbing miserable pain for around 4 weeks. On oramorph, tramadol, co codamol and I promise it gets better !
It’s early days

StarsBrokenAgain · 04/03/2018 15:30

As others have said, you are very close after the op, and I know you know that but are frustrated, understandably. Thanks

Bodies are amazing. Knees and ankles are tricker than most but given time, rest and physio you WILL get there. Have known similar in friends and yes it will take some months, but after a while you will just realise it is much better.

Keep talking to your drs, giving yourself time to rest, and do the physio when you can manage it. Lots of ThanksCakeWineBrew to you.

whitehandledkitchenknife · 04/03/2018 16:15

Sending you much sympathy cuppa. The frustration of being so dependent! It will, as others have said, get easier. No experience of the surgery you've had, but vivid memories of 2 frozen shoulders and a torn achilles. You're definitely in a marathon, not a sprint. Maybe channel your inner Del Boy....... 'This time next year, Rodney........'
Grin Flowers

SweetieBaby · 04/03/2018 16:24

Have you spoken to the drs about the amount of pain that you are in? I had a tibial osteototomy when I was 15 and really had only minor pain post op. By the time I was discharged on day 5 I had no pain and no pain killers. I had a thigh to ankle cast but went back to school on day 7 post op. I think that I would ask them to check that everything is ok. My mum has recently had a knee replacement however and was in severe pain so maybe I was just very, very lucky.

Just to re assure you, I had two weeks of in patient physio once the cast came off at 6 weeks and got a full range of motion back.

Really good luck and I hope that things settle quickly for you.

LjSebs · 04/03/2018 16:31

I had a similar operation when I was 18. My actual injury happened when I was 14 but the surgeons made me wait till my bones had grown a bit more before doing the op.

I am 34 now and I still vividly remember the pain..... BUT I also remember the time after when the pain subsided and I managed to start walking again without my knee dislocation. Bliss!

The pain will get better.... 10 days is nothing. It was about 6 to 8 weeks before I started to get more comfortable.

The cast is annoying but keep it elavated to help with swelling.

I also really feel rotten for a few weeks after anaesthetic. So that might not be helping you.

Keep your spirits up.. it WILL get better xxx

SleepFreeZone · 04/03/2018 17:58

What a lovely thread 😍. Mumsnet at its best.

Twotabbycats · 05/03/2018 01:43

I had a calcaneal osteotomy 6 years ago with no nerve block and I can still remember the awful pain I was in in recovery and how long it took the doctors to get it under control. There really is no pain like having a bone sawn through! I remember having bone pain for many weeks and I was on oxycodone for a long time. If your doctor says it's OK try to trust him, though regular check ups are good if you can get them. Elevation (foot above heart) will help as will icing - with a really thick ice pack the cool will penetrate your leg through the cast, or ice in the gaps if you can!

Twotabbycats · 05/03/2018 01:50

Oh yes and maybe see if you can get your meds changed to long acting ones that you take every 8 or 12 hours so you always have some pain relief in your system. There is a long-acting version of morphine available and you could use oramorph for top ups. And ask for cyclizine for the nausea - I find it effective and it doesn't add to the drowsiness.

mawbroon · 05/03/2018 02:18

Oh yes. The pain is awful. I had much simpler orthopaedic surgery 8 years ago and jeez, i'd never felt pain like it before, or since.

I found a lovely MNr who was in the same boat (we were both also heavily pregnant!) and we messaged each other with our moans and groans about the shit situation we were in. It really helped. I bet there's someone else on here going through similar.

Hang in there x