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Fat belly? No. Ovarian Cancer belly (pt 2)

996 replies

TwitterQueen1 · 24/09/2017 19:37

The story of my ovarian cancer discovery is here

This is such an important health issue - there's a reason why OC is called the 'silent killer'. I really want more women to be aware of what few symptoms there are (I wasn't).

This is my story. I hope it's a long one.

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TwitterQueen1 · 01/03/2018 20:45

Tell me about your bucket list Gonegrey! Part of me feels like I should be doing one but mostly I feel like I want to stay very close to home and not do anything to disturb the status quo. If I stay very still and don't do anything different I can pretend everything is the same as it was.

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mrsreynolds · 02/03/2018 10:37

Thinking of you TQ x

TwitterQueen1 · 09/03/2018 09:36

Hi everyone.
It is a year to the day since I heard those fateful words "there's a large lump there," and was sent straight to A&E. It has without doubt been the very worst year of my life. Hospital stays, biopsies, scans, drainages, chemo, operations, more chemo, a few weeks of false hope thinking it had gone away, and now back on the chemo again.

But I've got through the first year and plan to get through another few yet! Aside from the worsening shakes (I spilled water all over the chemo waiting room floor yesterday), brain fog and general weakness and fatigue, I feel pretty good at the moment.

Friends and family have been great - my DDs have been wonderful, not fussing but just being there and helpful and carrying on as normal, which is exactly what I want for them.

Some family members have tended to fuss, which isn't as helpful - saying they're going to drive me to places for example, when I don't need driving at all... And asking me the same questions over and over again - "So how long will you have chemo for?", "xx thinks you're hiding something". I understand they're at a loss to know what to do though.

Some friends have fallen off the radar - after initial helpfulness they don't contact me now. Others have been - and continue to be -
marvellous. Not fussing, but meeting up for coffee and texting me every week or so.

And everyone posting on here and on my first thread has been fantastic. The support you have given me has probably been the most valuable of all. Knowing I'm not alone and that so many of you have been in similar situations is very reassuring (though not good for you obviously!).

So thank you from the bottom of my heart for being here for me.

The future is uncertain but I'm taking things one day at a time.

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HamishTheTalkingCactus · 10/03/2018 07:07

Hello TQ, I'm a bit of a regular namechanger, but I've lurked and posted on your threads since last year. Glad to see you reasonably good spirits given the circumstances x

Itscurtainsforyou · 10/03/2018 11:22

TQ - you're amazing. You've coped with so much. Here's to many, many more years.

Abra1de · 10/03/2018 15:20

I’ve been lurking on this thread for some months and wanted to say I am silently rooting for you. I have children at university (and love my dog, too) and can only try to imagine what it must be like.

Popchyk · 10/03/2018 15:37

That is a lovely post from you, TQ.

Keep on keeping on.

2018SoFarSoGreat · 11/03/2018 02:25

Wow. A year already! You are pretty amazing, and sound like you are doing so well.

It is interesting how hard times reveal those around us who will stick it out with us. Also how some of us just cannot just be, but feel we must do. Even when it is not needed.

Here's to many more mother's days. But mostly to many more good days 💐

Shiningautumnoceancrashing · 17/03/2018 11:01

I remember your first posts, TQ. Sorry this has been such a tough year. You've faced it with such grace and humour - long may you reign Flowers

mrsreynolds · 17/03/2018 18:16

Love to you TQ x

TwitterQueen1 · 18/03/2018 18:42

Hello Shining and mrsR Thank you for thinking of me!

I'm doing OK-ish. Physically good I think, externally anyway. I have a scan tomorrow so will have an update on progress at my next consult in about 10 days' time. That's the appointment I'm dreading. what's happening on the inside just isn't reflected on the outside.

I'm at a bit of a loss as to how to fill my days. On the one hand I could be travelling the length of the country visiting lots of beautiful, historical sites. But then I think what's the point of doing this on my own? And I feel safer at home.

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Mum2jenny · 18/03/2018 18:47

TQ been folllowing you for ages, just want to say you're doing so well and being so positive, I just couldn't do it Flowers Mega impressed x

Chasingsquirrels · 18/03/2018 18:52

Hi TQ, I've been following your threads periodically and think about you and just saw this pop up. Hope the scan goes okay tomorrow and very best wishes for the follow up appointment. It always feels like a long wait from scan to appointment. x

TerfsUp · 18/03/2018 19:00

TQ, great to hear from you.

I hope the upcoming appointment goes well. Please keep us posted.

Gonegrey31 · 18/03/2018 19:06

Another one hoping that tomorrow goes well, I have been thinking of you . I am so relieved to be back from my travels, I know what you mean about feeling safer at home, close to known treatment centres and doctors. And back to burst pipes!
Take care on the roads in the morning, lots of ice under the snow .

triplets · 19/03/2018 23:27

Hi TQ wanted to catch up with you, no idea where the time has gone to since Christmas . How many more cycles do you have? I hope you are keeping as well as you can, harder I think being on treatment in the winter, shut indoors. Have you had the snow? It’s been sooo cold here in Deal, snow, ice and freezing wind. When you fancy some bracing sea air give Ian a ring, then I can come and meet up with you. His food is divine! I am doing ok, next onco appointment is in June as I am now 6 monthly. Saw my surgeon in Dec and he felt it was ok to move me from 3 to 6 monthly checks. Some of the ladies on the Ovacome site didn’t think it was a good idea. It works for me as I get myself so worked up before appointments as I know you do, and if I am at all worried about anything I just need to lift the phone. I have been under such a lot of stress since Christmas, my daughter disappeared off to Essex for Christmas, the night before we were due to pick her up. To cut a long story short she has cut us all off completely and we don’t know why. We have been in touch with the welfare dept at the uni but they are unable to help unless we think she is at risk. It’s 7 months since she has been home,her Christmas presents are still in her bedroom. She is with a new boyfriend and he seems to be telling her what to do and spending her money. We phoned him on the 17th Dec asking to speak to her, he said she wanted nothing to do with us and “just because she popped out of your vagina doesn’t mean you own her “. We are both deeply upset, it’s been awful. Anyway that’s my problem, sending you a hug and much love. Anne x

triplets · 19/03/2018 23:40

One of the best places to eat in town!

Fat belly? No. Ovarian Cancer belly (pt 2)
Fat belly? No. Ovarian Cancer belly (pt 2)
TwitterQueen1 · 20/03/2018 08:36

Hello all! Lovely to catch up.
The scan was OK - everything is shiny and new as the CT scanner only opened in January. Our community hospital is very small and offers very limited services but is expanding. It took 2 goes at getting the cannula working but I don't mind it too much as it's in the elbow, which is a lot easier than back of the hand, and you're already lying down and ready-to-go when they put it in.

I've had 2 lots of dye go into the arm in previous scans but this went in the right place! It's the psychological aspect I find more traumatic - knowing they can see what's going on inside me but I can't. I get the results on Monday, before cycle 4 on 5th April.

Triplets so sorry to hear about your DD. My eldest did this for 5 months a few years ago. It wasn't a boy - I was a just a terrible mother and an alcoholic (I'm not). And she told the whole family behind my back about how awful I was. She came back into contact and it was as if nothing had happened...

It must be so worrying for you. I think all you can do is wait and be there for when she does need you - and this will happen. One day she'll wake up and realise she's not in a good place and come back to you. She's not in Exeter or Notts is she?

Great news that you're on 6 monthly checkups now. Caelyx has minimal side-effects for me but of course I don't know whether or not it's working.

I will definitely come over soon! Once the Easter holidays are over and the DDs back in uni I will book that table!

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TerfsUp · 20/03/2018 09:47

Hi TQ. Glad to hear the scan went well. I'm keeping my fingers crossed that the results are stellar.

GenghisCalm · 25/03/2018 22:52

I hope everything goes as well as possible tomorrow.

TwitterQueen1 · 25/03/2018 23:02

Thank you Genghis

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triplets · 26/03/2018 00:21

Will be thinking of you tomorrow TQ. Good luck. xx

Pennina · 26/03/2018 07:25

Hi TQ - good luck today. Xx

Gonegrey31 · 26/03/2018 07:37

A virtual hand hold from me , you are in my thoughts today xx

HamishTheTalkingCactus · 26/03/2018 07:41

good luck for today TQ,