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Tamoxigang cancer support thread 54: A new thread for a new year!

982 replies

WhatWouldLeslieKnopeDo · 21/12/2015 21:27

Welcome one and all to the wonderful Tamoxigang thread! May 2016 bring us all health and happiness Star

If you are new here, then an extra big welcome to the club nobody wants to join. The thread is for people with any type of cancer, and also those who are waiting for results. So don't be shy. We are more than happy to hold your hand while you are waiting for a diagnosis, and we will be here to celebrate or commiserate, whatever your news Flowers

No question is too big or too small, someone will usually have an answer, or an idea of where you might find one. You can laugh, cry, shout, swear, and, of course, eat chocolate Chocolate it is a bit of a safe haven from the mad world of cancer, the head-tilting and talk of bravery, and all the nonsense that comes with this diagnosis :)

So feel free to introduce yourself. And oldies, feel free to re-introduce yourself if you'd like.

We only have one rule here and that is no Googling!

OP posts:
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PufflesMC · 01/02/2016 00:29

Thank you :)

Just wanted to say, our twins are now named: Aidan Lucas and Elliot Jacob :)

dinster · 01/02/2016 02:45

That's great, Puffles. I hope DS1 is chuffed with the middle names!

All the very best for today, speedy, thinking of you.

royalmama · 01/02/2016 06:55

Good morning all.
Wishing you all the best today speedy.
puffles lovely names:)

Now both DC back to school and doing better.
Hoping now to get myself an appointment to see that podiatrist at last before the rads.

Have a good day everybody.

SleepyForest · 01/02/2016 08:06

Puffles those are lovely names. I hope you managed some sleep, I can't imagine dealing with newborn twins.

mrsrhodgilbert · 01/02/2016 11:41

Lovely names puffles, Elliot was top of my list 22 years ago but I had girls. I don't know how you're coping, so bitter sweet to have newborn twins but such a poorly big brother.

Royal, at last you have got a break from nursing duties. Don't go rushing around now, look after yourself before the rads. I think you said you were doing some ridiculous number of weeks?

I've finally had a letter about my pelvic scan. The cyst is about 1cm smaller than four months ago but has been joined by a new one on my other ovary. Repeat scan in 4 months. Womb lining now at 17mm which sounds quite thick to me. I have a GP appt in the morning about something else so I think I'll be mentioning it. Two year check up with the breast surgeon next month.

PufflesMC · 01/02/2016 14:08

Thank you all and I hope you're all doing well Flowers

DS goes back to hospital tomorrow, having some intense chemo and it really does take the life out of him :(

Good luck to everyone with their appointments x

royalmama · 01/02/2016 14:52

mrs thank you. I was hoping this break before the rads would be less dramatic but hey we can not have i all iur way! yes, I should be having 28 sessions of radiation therapy which means about five weeks? How many did you have?
I am wondering after your pelvic scan results were delivered to you, should you be seeing anyone or are they satisfied the results are ok? I mean how do you know ? You mentioned your concern regarding the thickness of your womb lining. Who would normally determine if this is normall or not? I hope your two year breast check up is all good news Flowers
puffles I keep thinking of you and your DS. I hope he does not have a hard time with his coming chemo dose. It must be so stressful for you all. Sending you all many many hugs and loads of chocolates Chocolate

mrsrhodgilbert · 01/02/2016 15:16

Hi royal, I had 15 doses of rads which was enough for of a pain so you are having 10 extra sessions. I was able to tell them roughly what time of day was most convenient and I got a list with all 15 appts on before the sessions began. About two days in they gave me another list with completely different times, all over the place. I just told them I couldn't do that and they changed it back, don't know what happened there. I was often first in, supposedly at 8am although it was usually about 8.15. There was absolutely no sense of urgency, I don't know if their timekeeping got better as it got busier later on.

The letter from the gynaecology consultant, who I have never met, said that if I get another horrible bleed she would like to see me. But as you say, how do they know that what's in there now is still harmless as it was in October? I'll speak to the GP tomorrow. We have BUPA cover which I can use if I feel I'm being fobbed off. There is a need to know but also a sense of not wanting to stir up further tests and appts.

royalmama · 01/02/2016 15:32

mrs i hope they will accommodate me as i can only do certain times too.they have already taken into consideration the fact I would like to start after half term.
I totally understand your feelings about pursuing the matter of your scan any further.
I haven't been anywhere near a hospital for about two weeks now and it is almost like the good old days:( but as all good things must end, I have to go do some blood tests tomorrow to check I am okay:(

mrsrhodgilbert · 01/02/2016 15:44

Just checked my appt time and it's for Tues 9th, not tomorrow. Good job I checked, I have form for turning up for all sorts of appts on the wrong day or at the wrong time. I believe my memory to be brilliant, many times I've been proved wrong!

Speedypenguin · 02/02/2016 16:45

Thank you for good wishes. Am now home and ovary/tube free. I was first on the list which was good. A bit sore but not too bad. My pulse rate went down but my doctor suggested I look on the positive side as it was similar to an elite athlete- now which sport shall I pick?!
Will now gear myself up for the menopause, although was very irritated that my period started on Friday- it seems that nature wanted me to have one more go!! Not what I wanted when having the op.

Puffles- lovely names.
Royal- hope blood test ok. When do you get results?
Mrs- glad you didn't have a wasted journey to the appointment. Hopefully you can talk about whether you want more scans and get a plan you are happy with.

Mysillydog · 02/02/2016 17:29

Speedy I'm glad the op went well and you are at home recovering.
Little Puffles I hope you are managing the chemo.

I'm still waiting to hear when my physio appointment will be. In the meantime I went to see a physio recommended by a friend. I first saw her two weeks ago and she went very easy on me and gave me a lovely massage. Today she went into proper physio mode and worked me out, but it was amazing how well she got my arm moving and gave me the confidence to work through the tightness. I still have a way to go but hopefully I can do it.

mumto2andnomore · 02/02/2016 19:53

Glad it went ok speedy and that your physio was helpful silly dog

SleepyForest · 03/02/2016 07:46

Well done Speedy. I hope you don't hit the menopause too hard.

I have had my latest scan results. I have another node involved in my armpit and my cough is probably caused by the node in my neck. I have an ecg booked for tomorrow and then should start treatment next Wednesday. I hate coughing- it is so irritating and makes talking difficult.

royalmama · 03/02/2016 13:53

speedy the blood test result hasnt been delieverd to me yet. Thanks for asking. I was told if ok, i won't need to see them.
sleepy i am so sorry about that cough and i hope they can ease the discomfort for you. Let us hope the ECG is reassuring too.
Waving to everybody else.

Mysillydog · 03/02/2016 18:39

Good luck Sleepy for the ECG tomorrow. I'm sorry the scan results were not what you wanted and I'm crossing everything for your new treatment to be helpful.

Speedypenguin · 03/02/2016 22:01

Sleepy- hope ecg goes well. Sorry you have a cough and the scan found that lymph node. Hopefully the treatment you start on wed will be effective.

Lily- just wondering how you're getting on?

Sleepy here so bed awaits.

dinster · 04/02/2016 08:03

Good luck for the ecg . Really sorry to hear latest scan wasn't clear but hoping prompt treatment will get on top of things and banish that cough.

Glad the massage is helping, my silly.

Hope you have a restful day, Speedy.

Hope your DS is getting lovely care in hospital, Puffles, and that you're getting some rest where you can.

Waving to everyone. My DSis has given me a v funny Marie Antoinette-style wig (from Tiger) so I am putting it on and hereby decreeing cake for all.

mumto2andnomore · 04/02/2016 10:09

Sleepy I'm sorry about your cough, I hope the ECG goes well today

I've it's been for my yearly mammogram, it was horrid being back at the clinic, just got to wait for the results now :(

Lilymaid · 04/02/2016 14:48

It's my birthday today Smile
It is also World Cancer Day Sad
Plodding along at work as usual (with extra cake today).
Best wishes and thoughts to those not feeling so good/with Scanxiety/chemo SEs ...
At least the sun is shining and it is quite mild here (London) and the daffodils have come out in my north garden!

dinster · 04/02/2016 15:31

Many happy returns Lilymaid!

mumto2andnomore · 04/02/2016 16:00

Happy Birthday Lily Cake

royalmama · 04/02/2016 16:01

lily happy birthday! Hope it is a really enjoyable day.Cake
I had a couple of very low moments today on account of it being world cancer day. What a long time ago last February seems now.sigh.
mumto2 i can imagine the feeling very well. Wishing the results are good and that you can sigh with relief.Flowers

mumto2andnomore · 04/02/2016 18:29

Thanks Royal think world cancer day didn't help today not that I need any reminders !

Speedypenguin · 04/02/2016 19:08

Happy birthday Lily.

Mumto2- going back to clinics is not much fun. Hopefully you will get results back quickly.

Dinster- had a chuckle about you in the wig and making proclamations about cake.

Royal- this sort of day does bring up lots of emotions. I think people expect me to like all the stuff on Facebook whereas I just tend to hide away from it.

Feeling lightheaded here so think my blood pressure is a bit low. Will see what it's like tomorrow. Not sure if it's worth phoning doctor about.