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vit D deficiency any one had this ?

62 replies

40slady · 30/04/2015 16:15

after various doctors trips again and again feeling utterly awful for weeks and a whole vast of blood tests , iv been told i have vit D deficiency ...
all other tests came back as they say " normal "
anyone any advice or had this , waiting to see doctor or get a call back to discuss further hopefully treatment ...
thanks

OP posts:
Theas18 · 01/06/2015 00:09

Peter spots I feel like violetcloud described - like I'm just a bit crap at life - not really up to being a grown up human being - exhausted , achy, miserable, sleepless ( but just having to lie down in the afternoon and nap it I could) . However I have lots of reasons to feel crap anyway so who knows ( stressful job , 12 hour days being normal and on my " half days" I'm lucky to leave at 5 , recent bereavement , father with dementia now my responsibility , teenagers etc ) .

I don't know how much faith im putting in this really ( Fultium 3200 units daily) as im not sure I can remember feeling much different in living memory.

However, in the last week ive probably crafted more in a week than since mum died in February which is positive. Unfortunately it's often been late at night like today - im lying here trying to wind down from the buzz of actually making something ( 2 quilt as you go squares btw!).

PeterSpots · 01/06/2015 16:27

I think I'm clutching at straws to make sense of what's happening to me. I have facial pain (5 months) buttock & pelvic pain (3 weeks) had both of those years ago so very upset they have come back. The vit d & anemia are probably nothing to do with the mess I'm in

Clarella · 01/06/2015 17:39

What are the symptoms of osteomalacia? I had a vit d result last sept of 78, but have since had lots of issues on too little then too much thyroxine.

I was told I have hypermobility syndrome but I'm still getting what I describe as simply bone pain. My sternum was very painful for a long time. I'm bf too. I got the strong Holland an barrett spray last week too.

LavenderRain · 01/06/2015 19:51

My DD was found to be vitamin D deficient a few years back when she was 24,

I have recently been wondering if I too am deficient,

  • My thigh bones hurt
  • I'm mostly cold, right now typing this my hands and nose are freezing,but first thing in the morning I'm hot
  • I have pelvic aches
  • I'm always tired even after 8 hours sleep
  • I feel like an old woman I probably am at 49 Does anyone else have any of these symptoms?
Clarella · 01/06/2015 20:40

I'm actually questioning the pelvic hip aches and thigh bones. But I've been told I have hypermobility syndrome so not sure if that's that. Or spd. However, the syndrome bit was really triggered by thyroid issues and low iron , which is now ok, so i question the ongoing aches.

PeterSpots · 01/06/2015 20:51

Hello. I have an underactive thyroid too! What are your pelvic symptoms? Mine is pressure behind my Pubic bone area.

PeterSpots · 01/06/2015 20:58

Oh I also have low iron!

Clarella · 01/06/2015 21:03

Hi peter, it was si joint but currently just the whole back bone in pelvis and hips and feels like tail bone too.

I've had a lot of rib pain for a long time also.

Clarella · 01/06/2015 21:03

My iron is now 130 Shock!

PeterSpots · 01/06/2015 22:17

Hurt to sit down. Really making me low

Clarella · 03/06/2015 08:52

Actually I think my issue is hypermobility. I didn't realise I was ovulating - it's extremely variable. Ive started taking a good dose though to be on safe side.

NewTwenty · 03/06/2015 09:05

I was deficient. No symptoms thankfully, but I asked to be tested in relation to infertility. My levels were 35, as far as I can remember.

I had big 20,000 IU tablets on prescription. Now I take a tablet a few times a week/when I remember - get them from Amazon. Also take Omega 3,6,9 and a multivitamin.

Clarella · 03/06/2015 10:07

Newtwenty out of interest what strength do you take now, and what level did they say was good?

Orange6358 · 03/06/2015 10:11

Take D-3 in a gel capsule. 5,000 it is good. It's by Swanson on line and reasonably priced

PeterSpots · 03/06/2015 21:59

Hello. Going to docs tomorrow. At the moment I have TMJ (tingling face for 5 months) pelvic pain, coccyx pain & today back ache. I am going to ask about anti depressants I feel like I can't take this anymore. I feel a failure to not be able to cope with these problems. Can stress really cause all this? Was hoping vitamin d & iron we're going to be a miracle but it seems more of me is falling apart.

SuffolkNWhat · 03/06/2015 22:02

Me.

I'm on daily 10,000 iU after being on a course of 20,000 iU for a month to bring my levels back to normal. My levels were so low the doctor reckons I haven't made vitD for over a decade (red head who wears suncream religiously)

PeterSpots · 04/06/2015 18:22

Hello. I've been put on 3000 every day. Do you think that is enough?

Bettertobehealthy · 15/06/2015 18:52

Peterspots-

  you never told us your actual level of Vit d measured in the blood.     A daily dose of  3000   will raise  your blood level, after about 3 months, by roughly  75 nmol/L  if you are an <span class="underline">average</span> person .    However , the  response is variable ,    up to six times variability,  depending upon your genetic heritage etc.

  Also  people with greater body mass will respond less,   lower body mass will respond more.      That is why it is really important to actually measure  what your level becomes after several months. It takes around 3 months or more  to rise to a constant level when you take daily supplements. 

Try to ensure your blood level rises to at least the minimum of 75-80 nmol/l as recommended by the American Assoc. of Endocrinologists for bone health. Make sure you have a daily intake , not weekly or longer intervals . make sure the supplement is in D3 form , cholecalciferol(i.e. mammalian form ) and not D2, ergocalciferol (i.e. the plant based form)

As you may see from my previous posts, a blood level of 120 -140 is most likely to be better for you, as that is the blood level we existed with , over millions of years , as primates. It is only when we migrated to Northern Latitudes, covered ourselves in clothes, then latterly suncream , etc, being afraid of sunlight , that we became deficient in Vitamin D.

   IF   your low vitamin D is causing your problems ,   then please realise that it will take months for your body to put right problems that have been developing over months and years.    You must ensure you have a healthy diet ,  with all nutrients,    including calcium and all the other vitamins and minerals and protein from meat/fish etc etc.       Vitamin D  instructs your cells how to use the nutrients you give them,   if you  don't consume those  essential nutrients, then Vit d cannot help.    However without sufficient Vit d ,  your body will struggle to repair itself, even if you have a "good" diet. 



Good luck .  Hope this helps.  

BTBH

PeterSpots · 15/06/2015 19:37

Hello. Thank you. He wouldn't tell me & when I went back to ask if it was enough he said I was lucky he was giving me anything as everybody is vit d deficient. I am seeing gynaecologist on Wednesday re pelvic pain which has happened in the last month as well as ankle, buttock, wrist & extreme anxiety to see if I'm perimenopausal. If it's not hormones. I think it could also be depression/anxiety causing my symptoms. I'm not coping with it at all. Went for physio on my face/jaw & just cried

Clarella · 16/06/2015 09:37

Peter, it could be a combo of several things. Vit d, iron and thyroid - body struggling. It's certainly what I'm experiencing, along side apparently hypermobility syndrome; but I sometimes think that wouldn't be as much of an issue if my muscles were top notch - and it's the combo of iron, thyroid and long term tissue damage.

I've been told vit d is ok but around 60, however I'm bumping up as I feel my body is trying very hard to repair its self.

And according to many sources 60 is low, the uk guidelines seem to set minimum to avoid osteomalacia/ rickets. I've read a lot by the vit d professor and been pretty convinced by him. I'm sometimes skeptical as I wonder if he's trying to sell stuff; but doesn't seem to be anything other than very earnest.

HellKitty · 16/06/2015 09:44

I'm on Vit D 20,000 as my reading was 12!! It's been about 6 weeks now, don't really feel any different but I am sleeping better.

The thigh pain could be menopause?

DayLillie · 16/06/2015 11:46

6 weeks was when I started noticing differences in how I felt and pains.

If I stop taking it for a couple of weeks, things go back to how they were so I am continuing. I think if you have been low for a long time, there is a long term need in your body that needs to be put right.

My hayfever is a bit better this year, but not the oral allergy, although there has been no worsening - last year was a series of surprises with that. Hmm

Bettertobehealthy · 17/06/2015 21:24

Peterspots - the response that you got from that health professional , not telling you your result , was outrageous.. ! You OWN your result, he cannot refuse to tell you. Your health records are yours. By law.

It was interesting that he said that " everybody is Vit d deficient ", bear in mind that vitamin d is an essentialmicronutrient, a deficiency will result in a mal function. That is the definition of a deficiency.

     To my knowledge, the NHS guidelines allow no action  at levels as low as 25 nmol/L  i.e even at that extremely low level some doctors will not take action. Some  will.       If I was you ,   I would contact that surgery again and get your result. The receptionist may possibly give it to you over the phone. They cannot refuse to give you that information.   

IF it was very low, then you at least you know what is happening and that the treatment you are receiving is doing something really positive for your health. To keep you in the dark , is not helpful and disgraceful.
Good luck

BTBH

PeterSpots · 18/06/2015 17:41

Rang again tonight but the receptionist said she doesn't understnad the results so I will have to ring tomorrow to get a doctor to look at them. I don't think I've been given enough. I think he just thinks I've got odd health things again & I'm anxious. I have an appointment with him next Thursday. Thank you for replying

Dowser · 18/06/2015 18:52

I equate to all the tiredness on here. I've just had blood results and doc told me I had extremely healthy blood.

Yet I'm still tired.

I came away with anti depressants.

Re vit d. I had three weeks of sunshine inarch while abroad. I should have been bouncing....but I wasn't.

I've been supplementing myself with vit d3 for a couple of years now.

I could go to sleep right now. I eat a healthy diet too