Active discussions

Meet the Other Phone. A phone that grows with your child.

Meet the Other Phone.
A phone that grows with your child.

Buy now

Please or to access all these features

Talk
General health

Mumsnet doesn't verify the qualifications of users. If you have medical concerns, please consult a healthcare professional.

Original poster

**Tamoxigang Thread 52** With virtual tea, cakes and chat for all with cancer concerns

994 replies

Lilymaid · 20/03/2015 10:25

We were almost at our 1000 post limit for Thread 51 - hope the title is OK but wanted people to know that we aren't just about people on Tamoxifen but for all with cancer concerns!

OP posts:
Thread gallery
5
lovebeingananny · 29/04/2015 06:19

Good Luck with the scan Marshy hope all goes well. Xx

mrsrhodgilbert · 29/04/2015 07:55

Yes good luck today marshy, hope you have nothing to report later. Lady who did mine was lovely and very reassuring.

Boobz · 29/04/2015 10:45

Good luck marshy.

foofooyeah · 29/04/2015 13:07

Great photo Boobz .... but I wouldn't worry too much about all the makeup. The only good thing about chemo is that your skin tends to look fabulous.

hotchocforme · 29/04/2015 14:11

Lovely photo Boobz. How are you feeling after the chemo?

I have got my dates: getting the picc line next Tuesday and chemo on Weds. Let's do this!

How did the scan go Marshy?

Marshy · 29/04/2015 14:55

Just back. I have a small cyst on my left ovary (last one was on my right) and she wasn't bothered about that. But part of my endometrium was ill-defined and hard to measure but appeared a bit thickened though with no increased blood supply which is good. She thinks 'because of my history' gp might want to refer me back to gynaecologist to have a closer look though she did say there were no major alarm bells. I'm speaking to gp later.

A bit down right now. I an sick to death of appointments and investigations and now it looks as if I'm stepping back onto the merry go round having been off it for a bit and trying to get back to normal.

Bugger.

Boobz · 29/04/2015 15:31

I feel fine at the moment hotchoc - I felt a bit sick last night but DH said that was because I had eaten a massive take out and felt full, rather than any chemo related side effect!

Am on LOTS of pills to keep the sickness at bay though - 3 diff types of anti emetics, plus the steroids, plus an injection to get my white blood cell count up, plus constipation and loads of others. I think they are taking no prisoners!

Is picc line different to portacath? Mine has stopped itching so it's a bit less annoying.

Boobz · 29/04/2015 15:33

Argh sorry to hear you are on that merry-go-round Marshy - must be deflating when you have been getting your life back. I am trying to manage 3 health systems with all my info (NHS, BUPA and Italian Oncologists) and it is a nightmare. Wish I could get off.

Original poster
Lilymaid · 29/04/2015 15:53

I think the Portacath (which I have had for nearly two years) is entirely internal, but that there is something external on the PICC line. Someone with PICC line experience can confirm or deny this!
I've had no problem with my port and it has made the many blood tests I have to have because of my secondary cancer much simpler (no searching for elusive veins).

OP posts:
Marshy · 29/04/2015 16:10

Just spoken to my gp who wasn't rushing to re-refer me to gynaecologist but said she would write with latest info and see what they want to do. She thinks they may be happy with gp monitoring. She knows I'm not keen to have further appts but will if need be, so we'll see. Apparently my womb lining was 4.2cm which is borderline for concern. Feel a bit better having spoken to her.

Marshy · 29/04/2015 16:13

Err....no that got to be mm hasn't it!?

Original poster
Lilymaid · 29/04/2015 16:18

Marshy
"Apparently my womb lining was 4.2cm which is borderline for concern"
Possibly not borderline if you were a rhino! Yes, I should think that mm is more likely to be correct.

OP posts:
Marshy · 29/04/2015 16:25

Grin you can tell I was raised on imperial not metric

lovebeingananny · 29/04/2015 16:31

Glad things went okay ish marshy I know what you mean about just wanting to get your life back, away from appointments etc. sadly I think I am going to have the same issues! Fingers crossed they agree to let the GP keep a close eye. Xx

mrsrhodgilbert · 29/04/2015 17:55

Hi marshy, you were supposed to come back with no news!! What a pain to be under observation again. I completely understand your need to get off the appointment merry go round and now you have something else nigglng away in you mind. If you have faith in your gp then that may be the least stressful option.

I've got a bit of breast pain today, unusually. Not sure if its because I shook it up on the treadmill yesterday and my scar is objecting or because its getting nervous about being squashed between two plates in my mammogram next week.

Dbil is going to be treated with thalidomide as a last attempt to stop his tumour growing. Surgery and rads no longer an option. It's slightly more optimistic than a week ago but still only playing for time. His son has come home from very far away, probably for a last visit. Going to visit on Friday, goodness that's going to be difficult.

mrsrhodgilbert · 29/04/2015 17:58

Boobz, should have said, I hope you're still feeling ok. Photo was lovely, not sure I'm brave enough to display one.

Hotchoc, hope it all goes smoothly for you too.

Marshy · 29/04/2015 18:03

That was my plan mrs - didn't quite pull it off! I'm regaining some perspective now but it's just so hard when you're sitting in the hospital car park about to drive home and thinking "what....?"
Sounds like you have a challenging few days coming up. Thinking of you.
Thanks for good wishes everyone and fingers crossed for minimal issues lovebeing!

trice · 29/04/2015 23:08

I'm saying goodbye to my ovaries tomorrow morning. I am not looking forward to the anaesthetic, brings back some unpleasant memories.

Sorry about your bil Mrsrhod. I hope the new treatment gives him some relief.

lovebeingananny · 30/04/2015 06:12

Good Luck with the surgery trice hope all goes well. Xx

Marshy · 30/04/2015 07:33

All the best for your op today trice

mrsrhodgilbert · 30/04/2015 07:57

Trice, lovely sunny morning for it. Sending you good wishes for a comfortable recovery.

Boobz · 30/04/2015 08:30

Good luck Trice

Original poster
Lilymaid · 30/04/2015 10:16

I hope the operation goes well Trice and that you recover very quickly.

OP posts:
ISeeDadPeople · 30/04/2015 19:00

Hi - Just popping in for advice and moral support - I found a lump in my right breast the other day and GP has referred me to the breast clinic today. Trying not to panic! My lump feel very hard, very deep in the breast and about the size of a grape (though a little bit oblong shape I think). It also seems to move a little but I'm not sure if that's the lump moving of the tissue around it ifyswim. Anyway, I know the stats re the amount of lumps that turn out to be benign but my mum is currently being treated for BC and it brings things in to sharp focus and lets you know that it IS possible...

Good luck to all in their journeys

mrsrhodgilbert · 30/04/2015 20:05

Hello isee, sorry to hear you are going through this stress. Waiting is very difficult and we would normally always say that it's likely to be fine but you are obviously experiencing the other side of things with you mum. I think we probably all presented to our doctors with different lumps, personally mine was only picked up by mammogram. The good thing is you should be seen quickly and should get very thoroughly checked out.

Hopefully all will turn out to be ok, but if not we are here for support and there are so many effective treatments these days. Keep posting if you're feeling scared, all welcome.

Swipe left for the next trending thread