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Original poster

**Tamoxigang thread 51**... no more sangria, but maybe some mulled wine!

995 replies

MarthaCostello · 18/10/2014 11:51

Hello all,

The old thread has nearly run out so I hope no one minds me making a new one. And am I allowed to mention the Big C... Christmas?! Grin our last thread was started in July so I reckon this one might take us into December.

In honour of that, I will lay out some mulled wine, mince pies and I have wrapped myself in tinsel.

A warm welcome to jomidmum, but sorry you've had to join us. No one wants to be in this club, but this thread is a rather nice place to be. Wishing you a speedy recovery from your op, and hoping the pain eases soon.

Massive hugs to beccajoh Flowers

A big yippee for Marshy, what utterly fantastic news.

Sitting on the paranoia box for ConsiderablyBiggerBuns, I hope your MRI results are good - when will you hear?

Waving and sending love to everyone else.

I wonder if seeing as we are on a new thread, it might be worth just giving a bit of history for new posters? I will put mine anyway, and then others can if they want to. I am coming up to two years since my bowel cancer diagnosis (grade 2, stage 3c, T2N2M0R0). I had major bowel surgery and six months of chemo.

OP posts:
thegreylady · 04/11/2014 08:20

Checking in:
I was dx with Grade 2 triple negative breast cancer in October 2006. It was 2cm. I had a lumpectomy followed by chemo 4xFEC and 4x Taxotere then 15 rads. Although chemo knocked me for six I have reached the magic 8 years (for tnbc) without recurrence. I am left with some peripheral neuropathy in my feet. My eyebrows never grew back and I get tired easily. I am now 70 and feel very fortunate.
My love and thoughts to you all, especially those going theough some horrible times at the moment.

trice · 04/11/2014 13:49

I am so sorry this is happening to you Becca. Cancer is so terrible. My heart goes out to you and your lovely family.

MomOfTwoGirls2 · 04/11/2014 21:35

becca that is pretty shitty, excuse my language. Sending positive vibes to you and your family. Fingers crossed that the new drug gets everything under control again.

weebarra · 04/11/2014 22:03

Well, off to get the ovaries and tubes out tomorrow. Day case so should be uneventful. I'm feeling singularly unsupported by DH who is insanely busy at work at the moment. I know it's nowhere near as big an op as my bmx, but a little support or consideration would be nice. He's normally wonderful, so I'm hoping it's just a blip.

malteserzz · 04/11/2014 22:34

Hope it goes well wee, hope dh comes through with some support and looks after you Smile

mrsrhodgilbert · 04/11/2014 22:34

Weebarra, good luck tomorrow and hopefully your DH will have had a word with himself by tomorrow evening.

Marshy · 04/11/2014 23:29

All the best for your op wee

Original poster
MarthaCostello · 05/11/2014 02:17

Good luck wee Flowers

OP posts:
elportodelgato · 05/11/2014 06:23

Thinking of you today wee, hope all goes smoothly and your DH pulls himself together in time to spoil you rotten once you're home.

wineoclocktimeye · 05/11/2014 08:00

Good luck today wee.

Speedypenguin · 05/11/2014 12:17

Hope it goes well today Wee and you recover quickly.

weebarra · 05/11/2014 16:40

Well, no op today as apparently I had a temp of 38.2 (takes me back to my chemo days) and they won't risk complications for a non urgent op. So looks like next week. And joy, because of my bilateral node removal, they have to stick the cannula in my ankle. Ouch!

mintyneb · 05/11/2014 17:07

Oh wee that's crap news - both the delay in op and where you have to have the cannula. Can they give you a new date for surgery yet or is just 'next week'? Hope it doesn't get postponed again.

So I had my first herceptin today. Whilst the needle was still in my leg I came up up with a big red mark - about 15cm diameter - but fortunately in the 6 hours afterwards I had no further reactions so I'm hoping that I'm not going to be allergic to it.

Back up to the hospital again tomorrow for my first paclitaxol. I'm definitely struggling mentally right now with it all so have asked DH to come up with me and stay for the first hour or so. Although the support here is fantastic and I know I'm not alone in going through treatment, right now I feel very lonely and isolated with it all if that makes sense. I suspect the change in the clocks and the grey skies aren't helping my mood much...

Marshy · 05/11/2014 22:53

Wee how disappointing. I hope they can get it rearranged for you soon.

Minty it must be a slog going through the chemo. One step at a time and tomorrow will be another one done.

I know what you mean about the grey skies and short days. I took advantage of a sunny day here today and it did lift my spirits.

Goodnight everyone

Marshy · 05/11/2014 22:55

Went for a walk in the sunshine I mean

malteserzz · 05/11/2014 23:06

Oh wee what a pain to have a delay when you were all ready for it, fingers crossed for next week

Minty you're not alone we're all there mentally holding your hand, it's a long haul but you're getting through it Smile

mrsrhodgilbert · 06/11/2014 08:24

Wee, how rubbish for you to have got yourself all psyched up for it, only to be turned away. I hope your DH is being understanding.

Minty, I'm not at all surprised you're feeling daunted by your treatment. My DH accompanied me to each of my rads sessions which is nothing like as scary as chemo, but it was lovely to have him there. Don't beat yourself up. Some proper handholding is definitely in order. Your head must be all over the place. I think cancer is a very lonely experience after the initial flurry of angst from friends and family, which is why I find this site so comforting.

Speedypenguin · 06/11/2014 09:26

Wee what a pain for you to have to wait longer when you were ready to go.
Hope your temperature goes down soon.

Minty as others have said it is a long haul but you will get there. This can feel a lonely process and I remember the half way point being really hard. Hope it goes ok today.

ljny · 06/11/2014 11:47

Agree with everyone that some handholding is absolutely justified, Minty. My daughter ended up coming to all my chemo sessions, which made a world of difference. It's a lonely process - so glad you have him to hold your hand.

Wee, what a pain, to get all psyched then have it postponed. I hope you can find some things to do this week to take your mind off it.

Becca, still thinking of you, like we all are. Hope the new treatment works.

mintyneb · 06/11/2014 18:28

Thank you all for your lovely messages. It means a lot to know you are all rooting for me.

So 7 hours at the hospital yesterday and 5 again today - I'm knackered! I'm glad I asked DH to come with me today. Even though he could only stay for a couple of hours due to work, he at least got to see the chemo ward and understand all the extra things you have to go with the pre meds etc before you can have by the chemo. I don't feel quite so alone.

I got all my results through yesterday. Despite both the heart and breast ultrasounds taking longer to do than previously (and of course getting me worried they had found something new!) the reports were good so that's something to forget about for another couple of months.

The CT scan still showed a 2mm nodule, but on the basis that it hasn't changed in any way, they are working on it not being cancer related as after all this chemo working so positively on my breast tumour it should have shrunk by now. So they think it's just scar tissue and aren't planning on checking it out any further.

Becca, still thinking of you and hope everyone else is having a good week too

wineoclocktimeye · 06/11/2014 19:05

Good news re scans Minty and one more chemo down! I found the paciltaxol very tiring but no nausea so hope its the same for you.

Thinking of you and sending hugs becca.

Hope your temperature gone down wee.

Part of me likes it when this thread is quiet as I hope it means no-one with a new diagnosis and treatments are plodding along and I just hope that everyone would post if they needed to.

weebarra · 06/11/2014 20:08

Meant to post re the paclitaxel too, as not that many of us have been on it. No nausea at all, but did get progressively more tired. Copeable with though.
DH and I had a good chat and i do feel more supported. He won the pitch he was going for today, so hoping he will be less stressed this weekend.

Marshy · 07/11/2014 16:47

Hi all
Hope everyone is having a good day. It's been raining a lot here. I think that might be the end of the firework display we were going to tonight!

Minty great news about your scan results. I hope you are putting your feet up today after all that time at the hospital.

Wee enjoy your relaxed weekend.

I had an appt with the occupational health nurse this morning. Told her my story and was all set to negotiate a return to work at the beginning of Dec when she said 'not expecting you back yet - I'll review you in January'. I must admit it feels like a relief to know I have some time to properly recover. Dh came with me and afterwards we went into town for lunch and a look around the art gallery and new library. It was nice if a little cold and wet. Home with the heating on now!

Wishing all a good weekend, and hoping things are ok for becca

mintyneb · 07/11/2014 16:47

I am loving paclitaxol!! I can't believe how well I'm feeling today. Normally I'd be stuck in bed exhausted and feeling sick for a good 3 or 4 days after treatment. Today I've had no nausea, have been able to walk to the local shops and had a friend round for coffee :)

I know that the SEs can kick in at any time but today is a great day and I'm so thankful for that

Wee, glad to hear you and DH have been able to chat and I hope you have a great, stress free weekend.

Wine, I'm with you on quiet threads. We haven't had too many new people on for a while although I've noticed there are a couple of other threads running that may or may not lead to some new members. I hope for their sake they won't need to join

Marshy · 07/11/2014 16:52

Oh minty, x posts with you! Good to hear you are feeling well Smile

I've posted on one of the other threads which hadn't had a response and suggested coming over here. Someone playing the waiting game and we all know what that's like!