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Original poster

**Tamoxigang counting down to Easter eggs- thread 48**

998 replies

BetsyBoop · 21/03/2014 20:05

throws some hot cross buns on the trolley

OP posts:
foofooyeah · 24/03/2014 16:32

Really .... Thinking of you

My op went wellbut v painful after so have had a shed load of morphine and feel just fine!

smee · 24/03/2014 17:03

Great news for you, Hippo.

Really am handholding. Hope you get the best of news. xx

Morphine sounds good, foofoo. Are you still in hospital? Hope drains not too irksome and pain goes soon. xx

malteserzz · 24/03/2014 18:51

Hope really is ok x

Foo hope you can escape soon glad it went well Smile

Thanks about my cough, if it was someone else I would be saying the same but you know there will always be that doubt now

Had a lovely day for dh birthday, shopping and posh lunch Smile

UKsounding · 24/03/2014 20:30

Thinking of you Really

honeybeeridiculous · 24/03/2014 20:56

Thinking about you really lots of hands here to hold,
DF had a really bad weekend, couldn't eat hardly anything, even jelly was painful and yesterday became really despondent saying he wasn't having any more radiotherapy etc etc, it's heartbreaking,
So today at radiotherapy session he spoke to an oncologist who gave him morphine to use alongside his other medication. I really hope it helps. This disease is such a bastard Sad

wineoclocktimeyet · 24/03/2014 21:43

I'm also thinking of you Really.
Glad to see you go Hippo!
Feeling a bit bruised, took 6 tries to get into my port for my tax today, so look like a pincushion!
Also had a meeting with my surgeon, have a date for the bmx - 20th May, was going to be the week before but that's my birthday so wanted to avoid that. Feeling a bit wobbly, it's made it real actually having a date.
Hugs to everyone who needs one.

weebarra · 25/03/2014 07:11

Thinking of you too really. Wine - not just me where they have issues with the port then! Sometimes it takes ages. Cough is still bad, I feel ok but have chemo tomorrow. I should probably phone the ward as I don't want to infect anyone.

foofooyeah · 25/03/2014 07:16

Mornin all, waving from my hospital bed. I am very lucky as ward is small and care exemplary. Something rather nice about being tucked in at night with a hot drink and pain meds .... Makes me feel like a child again.

Going home today.

malteserzz · 25/03/2014 08:28

Keep checking for news of really. Hope you are ok if you are reading x

Foo foo glad you are ok and have had good care. Yay to getting out of there !

Nipping into school today to help them on a walk around the village, teaching all day tomorrow eek hope I can remember what to do !

Hope everyone has a good day :)

greeneyedcat · 25/03/2014 08:54

This reply has been deleted

Message withdrawn at poster's request.

reallyreallyworried · 25/03/2014 11:11

Hi all

Thanks for all the hands to hold, I hope I didn't squeeze too tightly! So it appears I have secondary cancer in my liver! It appears there was a small tumour there, they estimate it might of been around 3cm! But they can't be sure as the Chemo has shrunk it, all that is left is an area of scarred tissue! Sadly the scarred tissue still contains Cancer cells.

Oncologist is going to discuss with surgeon today, whether surgery is going to be possible or if MORE Chemo is the answer! But they will have to get the go ahead from the neurologist if they want me to have more Chemo (and the go ahead from me)

Current plan is to carry on with Radiotherapy to the breast and collar bone area, as planned. They will re scan my liver in a few weeks and see if there is any change in size, then hopefully they will have decided on the 'best' plan of action!

Right I should get back to work, I have a fish pie to make for my charges tea! No rest for the wicked, so they say.

foofoo hope you get to go home today! Although sounds like you had a pleasant evening Wink

malt enjoy the walk! Good luck with teaching tomorrow! I'm sure you will love it!

honeybeeridiculous · 25/03/2014 11:14

Thanks greeneyedcat he has 17 more sessions, he saw the dietician this morning, the machine broke down while he was in itHmm so had a bit of time to wait! She weighed him and was pleased he's lost only 1Lb this week and has prescribed some shakes for extra calories,
He seems abit more positve again today, I'm just off to take him out for a quick lunch (soup!)
Also his neck is very red this morning so hes put the cream on which hopefully will help

malteserzz · 25/03/2014 11:24

Oh really I'm sorry to hear that :( I'm still shocked that they gave you the wrong results before thank goodness they realised. Lots of love to you. Have you got a date to start rads?

UKsounding · 25/03/2014 11:33

Crap!

amberlight · 25/03/2014 12:01

Really, I do have a couple of choice words to apply to the situation, but I shan't say 'em in public.
Be of some good cheer, though. One small bit in the liver, if properly treated, has an 80% chance of long term success. IF properly treated. That means proper attention given to surgery AND/OR proper targeted radiotherapy etc for some people. You need a long hard talk with the team and no excuses from them. Especially after this foul up.
And I wonder if there is some other woman who was given your results and told that they need such treatment, when they didn't.... (eek)

Strong Brew all round, I think.

Wren48 · 25/03/2014 12:02

Thanks for letting us know, really. That is tough news and I am so sorry to hear it.

Lilymaid · 25/03/2014 12:07

Really more hand holding from me! I also have secondaries in bones and some evidence on liver so you are not alone. I'm on oral chemo at present and feeling pretty good.

MomOfTwoGirls2 · 25/03/2014 12:14

Ah really, that's tough. Flowers along with hand holding.

smee · 25/03/2014 12:24

Really, that must have been quite a shock. I know it's anecdotal, but I have a v.good friend with liver secondaries - or rather who did have liver secondaries. She had an op and two years on still no sign. There does seem to be lots they can do with the liver. xx

Foofoo, hope you're home soon and not too sore. Smile

trice · 25/03/2014 13:04

Sorry to hear your news Really, you are having a terriblytough time at the moment. I hope your treatmentimproves from now on.

mildmay · 25/03/2014 13:13

Really sorry to hear your news,but good to hear positive sfuff from Smee.
Just a quick question .have appointment for gated cardiac scan is this the norm do we all get one before starting chemo. im going to get FEC-T,but have been told lymph nodes are clear.

kitkat1967 · 25/03/2014 13:27

Really - so sorry to hear your news - it's awful how you have been treated. Hopefully you will get Gold Standard treatment from now on.

Mildmay - I had an Echocardiogram before my chemo - I'm guessing that's similar.

malteserzz · 25/03/2014 13:28

Mildmay no I wasn't offered that. Doesn't mean they think there is something wrong with you though just that different hospitals have different procedures

foofooyeah · 25/03/2014 13:30

Really .... Am so sorry to hear your news. But take heed to what Amber says.

I have a friend withbowel cancer, he had secondaries in liver that were cut out and no re occurrence in 3 years. I know its one of those 'well my friend' stories but thought it was something positive to share.

Handbagsatdawn · 25/03/2014 13:33

Really - so sorry to hear your news. Good you can progress with the rads, get that bit out of the way before your next bit of treatment. Still astounded by the initial cock up with your results though.

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