I had my first T on 22 April, so nearly 2 weeks ago now. I thought I'd report on my side effects for the people worrying about it.
The first couple of days, I felt completely normal although I lost my taste buds pretty quickly. By day 4, my tongue was swollen and furry and tasted horrible. It took a few days for this to calm down. (Judging by the doctor's reaction, "Bizarre - come look at this!" directed to the other doctors in earshot, it was unusually bad!!)
The muscle aches and pains arrived after I stopped taking the steroids, but they were quite mild - no worse than the day after a heavy gym session. I had mild stomach cramps on days 5 and 6, followed by mild diarrhea on days 7 - 9. I was quite tired though and have napped most days. I was feeling back to 'normal' (i.e. tired but functional
) by day 10.
All in all, it wasn't as bad as I was expecting. I did not enjoy wearing the cold mitts whilst the drug was being delivered, but I do suffer quite badly anyway from cold hands / feet. I was given a silicon nail varnish and have been putting that on every other day. So far, so good. I can see a white ring appearing on my nails and they were a bit tender, but otherwise okay.
It's doable! Not pleasant for sure, but definitely doable. I'm still working full-time but planning to take days 7-8 and possibly 9 off sick next time round.
Personally I'm dreading the radiotherapy; I get quite ratty about delays and people messing up so I am sympathising with really and hoping things get better.