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**Tamoxigang counting down to Easter eggs- thread 48**

998 replies

BetsyBoop · 21/03/2014 20:05

throws some hot cross buns on the trolley

OP posts:
RahRahRasputin · 22/04/2014 17:26

Waving to all.

BishB hope the implantation went well today :) good luck for first chemo tomorrow.

Flowers to all having rads, it must be so boring having to traipse there every day! It'll be over soon.

UK yay for last one :)

foofoo anywhere you can sit and wait with a good book? Good luck tomorrow

egghead welcome but sorry you're here. I've not had breast cancer so not got any useful insight but had a genetic condition which caused my cancer so would've needed same surgery even if I hadn't had cancer. Is that risk if the lump is removed or only if left in situ? Depending on that, I'd want to know the risk of more lumps.

MomOfTwoGirls2 · 22/04/2014 17:47

really I had much better luck with Rads. Was seen 15 min early. BUT, reason I was early was because I ended up rescheduling my port flush apt. Chemo out patients was running up to 2 hours late. So now I have 3 apts on Fri instead of 2...

UKsounding · 22/04/2014 18:08

Now Mom's experience with chemo I can empathise with! I hope they have wifi Mom as that is the only thing that keeps me sane in chemo waiting area!

weebarra · 22/04/2014 18:25

Well, had post chemo mammogram and ultrasound today and lumps are hugely reduced. Have appt with surgeon and onc on Thurs when I should get date for my bmx.

Mummywheel · 22/04/2014 18:38

Hi all, 4th FEC tomorrow and really don't want to go. After feeling so positive about each session I'm not sure why I suddenly feel like this now Sad

weebarra · 22/04/2014 19:37

Funny, it was no. 4 where I just thought "nope, I've had enough". I think someone else (really?) was the same. I did go of course, but I do know how you feel.

MomOfTwoGirls2 · 22/04/2014 19:57

Yay for weebarra, that is great!

Wren48 · 22/04/2014 20:04

Well, you both did better than me. Floods of tears on number 3 for me. Big (((hugs))), Mummywheel. I think that half way through is really tough - no longer that initial energy, but still a long way to go.

Day 13 of my first tax and I'm just exhausted. Thought I ought to be a bit bouncier by now (too much family at easter??). DH exhausted too and due to start counselling tomorrow. He really needs it; he's been trying to look after us all and keep work going and he is just so worried that he can't quite hold it all together. Let's hope she's a truly excellent counsellor as she has an awful lot of knots to sort out.Grin

reallyreallyworried · 22/04/2014 20:26

mummywheel I had those feelings for my last 3 sessions! BUT with a lot of support from the lovely ladies on here, and an amazing BCN, I did go and I did get through it!

YOU WILL TOO you may not want to go, but tomorrow you will get up, get dressed and go. Because you know deep down that you have to! Just keep telling yourself that it's one day closer to the end of all this!

I think we all have bad days, and times where we struggle! Lots of people have told me, how easy Radiotherapy is?! Well I have really struggled! Whether that's down to the Rads or just down to feeling fed up with the whole journey, I don't know! But I know that we are all on our own individual journeys, and we are allowed to have days when we just want to give up and be 'normal' again! But the reality is you need to find that inner strength, you need to think about the future and remember, that in a few months time, you WILL have your life back! Sending you a ((((((((BIG HUG))))))))))

wren hope you start feeling better soon. I found the Tax tough! But things do get better! Xxx

foofoo good luck with the scan tomorrow! I remember the having to hang around for hours! But actually the time flew by! I went out had some lunch, did a little shopping and went back! Hope it goes well xx

wee that's great news that the lumps have reduced! Good luck with the Onc and surgeon. Hopefully you won't have to wait too long for your surgery!

mom well done on going in early. But I really don't envy you having 3 appts on Friday! GOOD LUCK with that! Xx

ConsiderablyBiggerBuns · 22/04/2014 21:32

What a busy week for everybody. Hugs, luck and general good wishes for everyone as and when needed. I have my op and bone scan results tomorrow. Not expecting anything unpleasant but suddenly very nervous. Anyway, everyday is a learning day - today I discovered that a sore throat is more debilitating (apparently) than having both of you breasts removed - who knew?!

foofooyeah · 22/04/2014 21:48

weebarra great news about the huge reduction, makes chemo almost worthwhile!

My worst chemo was number 5, came home, cried, and said I wouldn't do number 6 .... But of course I did.

UKsounding · 23/04/2014 00:47

Mummywheel You just have to show up, one day at a time, one treatment at a time.
(I admit that I walked to the bus stop on chemo mornings with tears streaming though. What a goof I must have looked....)

reallyreallyworried · 23/04/2014 08:05

mummywheel just wanted to say I am thinking about u today! Offering u a hand to hold! U will be fine, you CAN do this xx

BishB · 23/04/2014 08:12

Lots if hugs to everyone struggling with treatment. I start my first ever chemo session today and I'm so scared and nervous about it (how it will feel, how I will react, the after effects) that I've been retching in anxiety Sad.

Not helped by the fact that I went into the chemo day room yesterday and saw all these sad and tired looking patients having infusions... That will be me!

The portacath implant went well though I am sore and can't imagine how I'll cope with then using it so soon.

BishB · 23/04/2014 08:14

PS I'm so grateful for the honesty on here - that you all so freely express how you feel about rads and chemo and waiting for scan results. Makes me feel less of a coward.

RahRahRasputin · 23/04/2014 08:34

Good luck today BishB! Your team will hopefully talk you through the most likely side effects and give you drugs to counteract them. Also you should be given a number to call if you have any problems.

I didn't love chemo but I was never sad, tired though definitely! Spent each session with a manic grin on my face Hmm it was actually rather embarrassing as I couldn't stop it Confused but chemo wasn't so bad, the nurses were so kind and each one was one closer to the end. I found it frustrating and so boring being ill during each cycle though, and that the tablets would finally be out of my system and I'd feel at my best on the day of the next infusion.

Take some activities to do (books, magazines, things you can one handed). I tried to knit but had to stop as it was moving my cannula and slowing the infusion. I think crochet would probably have been okay though. Also could take cards if someone will be with you. But bear in mind you might not feel like doing anything. The steroids made me very restless and I couldn't focus on anything for very long.

It doesn't seem like it now I'm sure but the sessions will fly by. It seemed like only a month and suddenly I'd had all eight cycles.

I hope the portacath doesn't hurt too much and that all goes smoothly.

Also try and keep a symptom diary. Just a note each day of what symptoms you had. They might give you one but I found it wasn't that derailed. It feels a bit gloomy but will be useful as you may forget symptoms by the time you next see your oncologist and also because after a cycle or two it will give you an idea of your likely best and worst days so you can plan accordingly.

If the anxiety continues, your oncologist or GP may be able to prescribe you something, as you shouldn't have to feel that awful Sad hopefully the known will be a lot less scary than the unknown, even if it's still a bit shit.

Anyway I've rambled on enough. All the best for today Flowers

RahRahRasputin · 23/04/2014 08:37

mummywheel good luck today, I hope it's not as bad as you fear :( Flowers

weebarra that's fantastic news, at least the chemo has paid off!

foofoo good luck at your appointment today

Best wishes to all x

Lilymaid · 23/04/2014 08:50

Bishb Portacath should be OK. I had mine inserted followed by chemo on the same afternoon. Much better than having the chemo go up your arm.
I also found the 5th chemo was the low point (especially as I didn't then know if I would have 6 or 8).
Just make sure you have your food stocks in at home for the next week including a few treats to counteract the nasty taste in the mouth (Haribos, ginger nuts and mango for me) plus a large jug of water so you can drink the nastiness out of your system.

weebarra · 23/04/2014 09:32

I had my first chemo the day after my portacath was inserted. It was fine but make sure they give you some Emla cream to take away with you and apply before your chemo. Good luck.

MomOfTwoGirls2 · 23/04/2014 11:50

Good luck to bishb. I went through packets of Foxes Glacier mints on days taste buds were off. Agree with others recommending you drink as much water as you can. At least on the days immediately after chemo.

honeybeeridiculous · 23/04/2014 12:40

Hi everyone, back from the Canary Islands now, didn't see Maltes, hope she had a relaxing time
Came back to DF being taken to hospital as has become very unwell, finished 33.days of Rads a week ago (vocal cord cancer) and it was tough! He's now in hospital with dehydration as his throat is too sore to eat or drink, and is on a drip and IVAB for infection,
And so it continues Sad
Good luck to everyone having treatment today, there were days when DF really couldn't face going for Rads and even tried to get out of the last 3 sessionsHmm but the nurses were always lovely and supportive and got him through it.

Speedypenguin · 23/04/2014 12:44

Morning all.

Bish- hope it goes well for you today
Mummywheel- another one thinking of you here.
Weebarra- good news about shrinking.

Have got my wig this morning. had my hair cut very short yesterday as couldn't cope with amount falling out. My carpet looked like I had got myself a very long-haired cat! I quite like the wig but expect I will mostly stick to hats and scarves. It felt quite hot under there.

Hope everyone is having as good a day as they can.

foofooyeah · 23/04/2014 13:06

rahrah great image of you sitting there grinning maniacally while having chemo.
bish will you take someone with you? I was adamant I could do it on own, but a fab friend accompanied me and we laughed, joked and even sang our way through ..... I'm sure much to the annoyance of other patients.

I shall be back at chemo soon, got a little treat of 3 rounds of taxotere (the T of FEC-T) as node involvement found after surgery.

Not fazed by it, just want to get it out the way.

Tomorrow is bone scan day!

malteserzz · 23/04/2014 15:34

I'm still here honey sitting by the pool the sunshine Smile glad you had a good time too sorry DF is not too well

Foo foo big hugs to you

Bish b I was terrified of chemo but honestly it wasn't as bad as I expected, hard yes but doable

Love to all, home tomorrow then ill catch up properly x

Speedypenguin · 23/04/2014 17:43

Foofoo hope scan goes well tomorrow. I will have the T bit as well but that seems a long way off at the moment. Hope you get it sorted soon. Waiting for it to come round is a pain.

Malt. Glad you are having a lovely holiday.

Honey sorry to hear about your DF.

My boys have named my wig 'Hedwig' (too much Harry Potter!).

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