**Tamoxigang counting down to Easter eggs- thread 48**

[BetsyBoop]

throws some hot cross buns on the trolley

honey can you remind me of that udder cream please I remember you posting about it. Sounds like it could have helped your df.

malt if your not getting recognised seems a great time to misbehave!!

I need to call the bcn today .... Shortage of Oncs at the moment de to one ing ill. Get my ANC results next week and want ext sage planned.

I'm planning to get mine shaved off. It will probably start growing back soon but then I have more chemo so what little will be growing back will fall out again.

Collected wig. It's okay but I don't feel comfortable wearing it. I'll take it to the hairdressers to see what she can do with it. To me it looks like a wig but I suppose because it was cheap (free from NHS but £120 if I had to buy it). From what I understand the more natural wigs are in the region of £300. I can see me sticking with my head band rather than wearing the wig on a regular basis. It seemed very hot to wear and I can't imagine wearing it in the height of summer.

Had an odd email from ds's current head saying that he accepted my notice if ds's award is removed but making no mention at all that he would be recommending that ds should lose his award. I have asked him to clarify. I have also asked for governors contact details as whatever the outcome I think they need to know exactly what has been going on over the last year.

The one good thing currently is nearly all my blood results are normal, just my haemoglobin is slightly low. Having said that it is higher than it has been in months. Still feel tired though. I'm surprised as I've been out of hospital two weeks now so I thought I'd be back to normal by now. From what the hospital said yesterday it looks as if I will be back in for another 5 weeks from early next week

foofoo
Its www.moogooskincare.co.uk
There are various creams and lotions but the udder cream has been recommended by australian oncologists.think it was about £12 but its quite a big pump dispenser pot. Worth a try

I got DP to shave my hair off as soon as it started falling out. I vary between wigs and scarves depending on weather/occasion.

My wig sits expensive and unused in its box. Just not going to wear it. Mind you, I'm wearing a rather zingy turban today and fielded slightly more looks than I normally aim for. No doubt everyone was thinking how marvellous I looked..

I just couldn't get n with a wig either, was very excited when I got it but it ave me a apache after an hour .... Used scarves and nw jst I about with my crew cut!

Thanks honey

Feline, I think most of us had concerns about hair/wigs at the start of chemo. I got mine shaved off once I got my wig. The wig place did it for me. I couldn't stand the thought of hair falling out all over the place.

Pickle it must be a daunting prospect having to go back into hospital again, I do feel for you x

Foo foo did you speak to your bcn have you got an appointment for your results ?

Regarding wigs I think we all do what we feel most comfortable with, I couldn't have managed without mine.

Bit tired after working today but not too bad

No I haven't malt had my head in the sand a bit, but will call tomorrow.

Hello, haven't popped in for a while. Just reading about the hair thing, I too shaved mine off as soon as it started falling out and I felt much better for doing so. I mostly wore my wig and it was obviously a very good one as people were always shocked when I announced it was a wig. I'm now wandering around with my re-grown hair - it's very very short, but I have a full covering all over, and it would somehow feel wrong to put my wig back on now. I don't feel sexy in the slightest though, and all the kids at dd2's school stare at me like I'm a freak which is not great (or maybe I'm just really paranoid).

It's also come back really grey which is horrid, so yesterday I stuck some dye on it (Daniel Field watercolours stuff which is water based so no nasty ammonia / peroxide etc). It looks slightly better now, but still ugly.

On the subject of Moogoo - have a look at their website, I've got several of their products and I can vouch for them. If you're looking to avoid deoderant that contains nasties then try the Moogoo stuff - it really does work, even if you've worked up a major sweat at the gym. Which I'm doing a lot (yippee).

3rd FEC done today, 3 more to go! Had a really lovely nurse, she made me feel relaxed :)

I wear my wig when out and about and lots of people have commented on how real it looks, however I feel more comfortable around the house in scarves.

I found the shedding upsetting and had it all shaved off and felt much better afterwards.

Well done Mummywheel - it's a nice feeling to be half way through.

Waiting for results is crap foo foo I prescribe wine

Mummy well done on getting to half way through

Handbags I'm with you on the not feeling sexy thing and the funny looks it's rubbish isn't it

handbags thanks for the tip on Moogoo deodorant. I just popped onto their website and bought the deodorant and the cream (rads starting next week).

My radiologist only wants me to use E45 and cool chamomile tea dabbed on the rad area. I'm going to try the Moogoo and just not mention it...

DF is using the moogoo udder cream but the oncologist thinks he's using the E45 that they have given him!

Thanks everyone. Hair shedding is really getting to me. Went for a meal with friends last night and realised that I am a hair twirler however every time I did a chunk came out.

Having it cut short today and wig readjusted. Got some lovely scarves yesterday but just need someone to show me how to tie them! Think I will certainly wear scarves in and around the house plus at the gym if I'm still up to it.

Very of mummywheel. I have my second FEC on Monday. Just getting my head round the fact that this week I've felt so well (apart from the hair thing) but on Monday I will subject myself to something that will make me feel a a bit 'yuck' all week and maybe worse by the end of it.

Hi All

Sorry I haven't been on for a bit. Haven't had time, what with work, Rads and generally being shattered!!

Rads number 7 today! Things haven't exactly gone to plan! No surprises there! I am starting to think I am jinxed!! My treatment is always going to take approx 30mins, although has taken 45mins each time up to now! Add to that two days where they were running 1.5hrs and 2hrs behind time and I think you will see why I'm not really enjoying this!

Apparently it's just been a particularly bad week (so other patients have said) But I think it's also because it's a busy London hospital and they just have too many patients! Plus it appears they only have 2 members of staff who are able to do the treatment I am having using the ABC technique!

I am trying to stay positive! Which is helped by the fact that the staff are lovely. But I am finding the whole thing a complete pain! But if it works, then I can't complain!

So far no side effects except being knackered! I'm also 10 days into taking tamoxifen, and other than night sweats, which started during Chemo, I have no other side effects!! Long may that last!

Good luck to those having treatment today. Well done to all those back at work.

Hope everyone has a good day x

really waiting for that long sounds so tedious. I bet if you were to arrive for your appointment 1.5 or 2 hours late you'd be in trouble! It must be hard having to contend with this and work (I still can't believe you are continuing to work through all of this!).

Nearly at the end of the first week of Easter holidays. Ds has worn me out so I'm pleased he will be on a course for next week. I'm hoping to find out tomorrow what my next treatment plan is. Not sure if I will hear direct from the London hospital or have to wait for the local consultant to contact me.

Either way if I have to go back for another inpatient stay I'm told that I will get a bed as a priority and should expect to be back in hospital some time next week. I'm really not looking forward to it but at least I have an idea of how the treatment will be - 2 weeks of feeling okay followed by 2.5 weeks of feeling mostly crap before another 0.5 week of feeling okay before I come home. I'm also reassured that I will only have to put up with crap food in the local hospital as the London hospital ward has its own chef.

Hope everyone has a good day.

Feline how did you get on with your hair today ? I hated that feeing of being fine but knowing the chemo would make you feel ill again, you'll soon tick them all off though

Really I can't believe the waits you have had that's dreadful :( my radiotherapy dept was busy but ran like clockwork, half an hour was the most I waited and usually got in on time

Pickle glad ds is on a course next week that will make it easier for you

I've completed my 2 days at work this week didn't want to get out of bed this morning but that's not unusual for me !

In their defence one of those long delays was due to a power cut that lasted 2hrs! The other day, machines breaking and lack of staff! It does seem a bit chaotic, but as I said staff are lovely!

Todays session only took 25mins so I was only in the hospital for an hour!

Although not so good is now I am lying down in bed feeling crap! I don't know what's up, but at about 3 today it was like my batteries had run out?! My body decided it had had enough hoping the feeling soon passes!

Anyone else had times like that? There doesn't seem to be anything in particular wrong, but I feel like every move is an effort! Even writing this seems hard work!

malt glad you got through your days at work! When does your school break up for Easter? Not long till your holiday

Glad today's was quicker really and nice staff do make it better :) I think the rads do make you tired but I found it was more of a sit and have a cup of tea and be ok kind of tired rather than the exhaustion of chemo
We break up for Easter a week tomorrow, holiday a week on Sunday fingers firmly crossed nothing goes wrong before then !
Hope you feel better soon, early night needed maybe ? X

Thanks malt early night is a definite, although night sweats may prevent a good nights sleep! I seem to be doing 2hrs sleep then awake for a while then another 2hrs! That along with Rads, and running around after 2 children. Might just explain why my bodies complaining!

Yes, really, I think when this is over you've earned a holiday! Knackered today - have now had 14 cycles of chemo and feel as though my body is about to give up! I have a night out with work tomorrow - just a meal so I can drive and not stay late. And a very quiet weekend planned, which makes a change. Easter hols start tomorrow here!

really DF started to struggle after about day 13 of rads, he slept most of the day for the rest of that week, the oncologist said its fatigue, not just tiredness, the rads are damaging healthy tissue and your body fights hard to repair itself. Now, day 20 he seems much more alert again, hope you feel better soon