What other medical disciplines could deal with Mouth Ulcers?

[KatyMac]

I'm seeing Oral Health; earlier than expected as my routine appointment has been brought forward by the dentist after he saw my ulcers today (from July to the end of the month). I have about 9 at the moment & there are problems under my tongue.

But when I saw them last time they said they could do nothing as it was a virus or the menopause or stress or I was run down.

So if they still can't help, I was thinking of trying maybe:
Autoimmune (is that even a dept?)
Gastro (is that bowels?)
Allergy (maybe as antihistamines are helping)

I'm not really sure what other things to consider as we don't really do a "look at the whole of your body" doctor like in 'House'

Sorry it was on my exclusion list and finally gone in November last year

Totally fed up in look at ingredients all the time

I really don't know the answer to your question but agree completely with wishing there was a "look at the whole of your body doctor".

And I sympathise re the mouth ulcers. They are SO painful.

I hope you get rid of them soon.

max fax guy would have picked up if it was phempigus or herpes i'm sure.

Another vote here for coeliac. my cousin was misdiagnsoed with ME because the fatigue was really secondary (malnutrition) to the coeliac. Coeliac also causes other intolerances (google coeliac leaky gut syndrome).

Well I'm seeing the GP & we will discuss exclusion of Cinnamon/Benzoates or gluten; as I've cut so much out already I need to be careful; and I'll see the hospital the following week and see what they say

Crohns disease is another gastro problem where oral ulcers are a problem.

Lots of blood tests

Non coeliac gluten intolerance is the best bet - but once the results are back we are dithering between Gastro & Rheum.....not auto immune yet

Thanks everyone

My mouth ulcers have lessened since sterilising my toothbrush weekly in Milton. I will get some green toothpaste too!

I really don't know the answer to your question but agree completely with wishing there was a "look at the whole of your body doctor

Isn't that your GP? I know my dh (clearly a GP) has referred (no idea where to) on the basis of recurrent ulcers!

Coeliac son also gets mouth ulcers from oats.

Generally (not this time) when I go to my GP I get told I have depression.

I went for 3/4 years with pain in my hands & feet and was consistantly told was depressed until I stuck my heels in and demanded a referral to a rheumatologist to find out I had FM

I went this time & suggested my symptoms might be linked and he agreed and took the idea seriously and was horrified that several of my 'diagnosies' were nearly 20 yrs old with no change of treatment/medication despite regular gp visits.

I hate seeing a gp, if I know what is wrong I put their back up, if I don't know it's depression; I had a fab doctor as a child and again later as a pregnant/young mum. I'd like another fab one (& might have found one - let's hope he doesn't retire)

Oh joy - I get to have a Biopsy!

Right away! Well at 11:30 & I only have cover for work this morning

Bugger!

Good to get it over with though Katy. Let us know how it goes.

Back home - a bit shell-shocked and shakey

She started off talking about blood tests & explained I had some (from my GP) yesterday. She looked at the tests and said oh we will do other blood test, then paused as she was scrolling down the screen & said actually we will do a biopsy today.

It bloody hurts - I've taken 2 co-codamol & imagine I will sleep

ouch poor you. My DC had biopsies under general anaesthetics.

Hope you feel better when you wake up. Did she give you any feedback about the biopsy? (with DC we got told what the likely result was and then had to wait a few weeks for confirmation).

I think with a combination of Fibromyalgia and IBS symptoms and persistent mouth ulcers you should see a rheumatologist and be screened for Behçet's Disease. It is rare but probably should be ruled out!

behcets.org.uk/

I think perhaps she considers allergy a possibility but that my bloods showed something else

My diet is suspect I guess

I don't like this at all!

I'm struggling to swallow

Behçet's Disease looks interesting but my eyes are fine

You poor thing, I can't imagine how uncomfortable you must be.

Just thought, taking 5 mg of folic acid prevents my son from getting mouthfuls of cold sores. He had a lot, like you do ulcers. He has Hereditary Spherocytosis, and needs the extra folic acid. I notice you have cut out a few sources of folic acid from your diet (eggs, greens) But I'd run it by your health care practitioners first, just to be on the safe side.
Leg ulcers are a symptom of hereditary Spherocytosis, when you said in your other post about your mum having a leg ulcer, I wondered if you could possibly have it?
Hope you get answers and a cure soon!

I'll mention these other things to my GP - but they do hate internet diagnoses.....so I'll have to be careful

My mum also has pernicious anaemia, I don't know if that is relevant to anything

Katy, just to let you know that you don't have to have all symptoms to be classified as having Behcets. I don't have any eye or vaginal/vulval involvement and have 'probable' Behcets (they've ran out of other options). I have mouth and oesophageal ulcers and skin blisters as well as general fatigue/ run down symptoms.

I see the Vasculitis team at addenbrookes in Cambridge. It might be worth you trying to get a referra if things don't improve

Mouth ulcer wise, the best thing for mine is a few sprays with a brown steroid asthma inhaler. Try and get one if you can as it really does help me.

Feel free to pm me about anything ulcer related, I've had bad batches every few months since I was five

My brother thinks it's unlikely as genetically I'm not the right type (or something)

But I will mention it

It's probably v unlikely and yes it does affect certain ethnic groups more than others but I'm not the 'right' ethnicity either

Thanks

It's so complicated isn't it?