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Original poster

**Tamoxigang heading towards hearts and valentines - thread 47**

990 replies

BetsyBoop · 07/02/2014 10:40

roses are red
violets are blue
sugar is sweet
but cakes are better

OP posts:
weebarra · 18/03/2014 09:19

Yay to last chemo mom! Hope the appoinments go well really and kitkat. Also glad you're getting home pickle, such good news.
Raining buckets up here, school runs will be a bit damp today!

ConsiderablyBiggerBuns · 18/03/2014 09:24

Morning everyone. Good luck really will be thinking of you this morning. I have my lymph biopsy results tomorrow which I am also nervous about. feline good to hear how it is going for you. I will be following closely as that will be me in a couple of months - need to hear the bad and not so bad so that I am fully prepared. Congrats mom for your last chemo and to you malt on your return to work- I bet the little ones will be delighted to see you.

MomOfTwoGirls2 · 18/03/2014 10:55

feline just wanted to repeat something my Onc said to me. Remember that are drugs available to handle any side effects. So let the team know about any discomfort immediately.

I'm on my last chemo today. On the whole I did really well, but I had a few things crop up over the prior 7 sessions.

And i can't recommend this highly enough - drink loads of water, especially in the week following chemo.
Oh, and hard sweets to suck on when your taste buds go (for just a few days usually).

malteserzz · 18/03/2014 11:03

Mom that's great that it's your last chemo hope it goes well

Bigger buns hope your results are good tomorrow but just wanted to say that if not don't despair, lots of us on here have had some sort of lymph node involvement it just means they will throw everything at it.

Handbagsatdawn · 18/03/2014 11:10

Really thinking of you today, hope the scan goes well and the results are clear.

Malt how exciting to be going back to work and 'normality' again. Whilst I'm not looking forward to the work bit, I am relishing the idea of normality (ie no scary appointments looming). I've been helping at dd2's school recently and I love it, so am very envious that's your real job.

I have 2 more rads left - am going to treat myself to a trip into London next week to mooch around a museum/gallery, can't wait.

harrietv · 18/03/2014 12:00

Hi everyone, I'm home after my bilateral MX on Saturday. Feeling woozy but generally pretty good - my pain levels have not been anywhere near as bad as I'd feard. Have 4 drains which is pretty gross but at least the right hand ones are starting to slow in flow and have appointment on Friday so hopefully will lose some then.
Get my DSs back today - they've been with Grandma for 4 nights so although I'll be tired, I'm so looking forward to seeing them and having a very careful cuddle!
Anyone approaching surgery who wants advice please feel free to DM. Thinking of Really and everyone else with results and hope all those getting back to work continue to fly. That's really great.

ConsiderablyBiggerBuns · 18/03/2014 12:17

Hi Harriet, I'm booked in for the same on 8th April so will follow your progress with great interest and every best wish for your recovery as well, of course. How long have you taken off from work ( if that is a relevant question)? Are you managing to sleep horizontal or are you employing a v pillow or anything?

honeybeeridiculous · 18/03/2014 12:32

Hi everyone, trying to keep up with all your stories, you are all so inspirational,
My DF is on day 12 of radiotherapy (needs 34 altogether) for vocal cord cancer, and it's suddenly hit him like a brick, he's extremely tired and has developed a sore throat so is finding it hard to swallow any foods Sad he's currently living on soup and mash potato! He is getting weighed every week and is due to see dietician tomorrow, she threatened nasal gastric tube if he loses too much, which he is absolutely dreading as it will mean hospital stay etc
Iv been trying to make him sloppy foods, corned beef hash, cauliflower cheese, milk ice lollies etc
Anyone got any ideas?? He thought about using a throat spray but cancer nurse didnt recommend it,
Good luck to you all with your treatments, and to those going back to work.

honeybeeridiculous · 18/03/2014 12:33

Also, especially thinking about really today Thanks

reallyreallyworried · 18/03/2014 14:28

Thanks for all the support. Results weren't the best Sad booked in for biopsy tomorrow! Could turn out to be nothing. Sorry for brief message! Need to get back to work and pretend this is all a bad dream!!

amberlight · 18/03/2014 14:29

Complan style drinks perhaps?

greeneyedcat · 18/03/2014 15:25

This reply has been deleted

Message withdrawn at poster's request.

malteserzz · 18/03/2014 15:30

Really I'm sorry to hear that and that you have more waiting now. Fingers crossed still for you

Harriet glad it all went ok and I hope you get rid of the drains soon !

Handbags it is a lovely job, like everything there's bits I don't like but the being with the children part is lovely and I miss my colleagues and the gossip! London sounds a great idea

Handbagsatdawn · 18/03/2014 15:55

Really big hugs to you, and hope it turns out to be nothing. It's so unfair that you've had such an awful time of it, and now more waiting.

kitkat1967 · 18/03/2014 16:00

sorry you have more waiting Really - hopefully you will get good news at the end of this. And once again I am amazed to hear that you are still working Shock.

Malt - are you all set for tomorrow? No more sneaking back to bed for you Smile.

honeybeeridiculous · 18/03/2014 16:56

greeneyedcat that's so comforting to know that you have been thinking about us, it truly is hard work! But DF is trying hard to stay positive bless him.
He is going to ask about painkillers tomorrow as his throat is only really painfull when he swallows (which I guess is quite a lot!)
Can I ask, how long after Rads did you start to feel better?, I know it can be accumulative. How many sessions did you have?

got everything crossed for you really you need some positive news!

Wren48 · 18/03/2014 17:14

Really, I'm so sorry that there's more waiting to come. Just hoping so much for the 'it's nothing' option.

Mom, congratulations on your last chemo. I have the 3rd of 6 coming up this week and somehow the end feels quite far at the moment so it's nice to know that it comes!

Biggerbuns, good luck with results tomorrow. I'll echo Malt to say that people here have coped with the full range of results and the treatment that goes with it.

Malt, I hope work is really satisfying to get back to work: good luck with it.

And honeybee, I'm sorry that the rads are beginning to be so tough for your df.

And hi to anyone I've missed!

Me, I'm ok. Had to go to hospital today to check out a sore patch on my PICC arm. Yes it's a blood clot, but not in a key vein, so they'll just keep an eye on it. But it's made me feel a bit vulnerable. I've also ordered a bonkers number of plants. Not sure when or how I think I'm going to be able to plant them, but it's a nice thing to think about.

malteserzz · 18/03/2014 17:16

Kitkat I know I'll be knackered ! I even tried on my tops this morning to find one which doesn't show my rads burn, I'm organised !

malteserzz · 18/03/2014 17:18

Wren cross posted with you, good to know they're keeping an eye on your arm. Plants sound a good idea, you can plant them a couple at a time when you're up to it and the weather is good

difficultpickle · 18/03/2014 17:36

Sorry to read your news really. Hopefully once the biopsy is done the results won't take too long. It's just not what you need.

I'm home. Feels weird being here after so long away. I can't wait until ds is home from school.

I have to wait for a bone marrow biopsy and results before they decide what to do next. Most likely outcome is repeating what I've just done. However consultant says that I may get a break of up to 4 weeks between now and then, which will be good. I lost 20lbs in hospital because of various problems. Fortunately I could afford to lose it but not sure I'd want to do that with every hospital stay.

Wren48 · 18/03/2014 17:57

Glad you're home, pickle. Your ds mst be relieved. Do you have a likely date for your biopsy? And I'm glad you get some sort of a break before going through all that again.

foofooyeah · 18/03/2014 19:47

Hooray for pickle being home.

really bloody huge hug for you

honey what about those ensure drink?

Lots of Wine for everyone else to either celebrate or drown your sorrows

Me? I am still itchy itchy itching .... See consultant tomorrow

greeneyedcat · 18/03/2014 20:02

This reply has been deleted

Message withdrawn at poster's request.

reallyreallyworried · 18/03/2014 20:45

malt wishing you all the best for tomorrow, as you start back on the road to normality Grin the children will love seeing you, as will your colleagues I'm sure! Just enjoy it!! Xx

difficultpickle · 18/03/2014 21:19

malt good luck for tomorrow, it will be nice to get back to some sense of normality.

foofoo hope the itching gets sorted. That would drive me nuts.

I had a long email from ds's school today telling me how badly behaved he's been at break time. He's doing well in lessons but seems to get in to trouble once outside. They want him to talk to staff members about why he is upset and how he is feeling.

I sent a long reply politely reminding them that ds is very very worried that I will not survive this treatment and being nine it is little wonder that he finds it almost impossible to talk about it to people he doesn't know well (he will hardly talk to me about his fears).

I appreciate the teacher is trying his best but I find it so hard to communicate just how difficult it is for ds to deal with. He played a solo in a concert last week even though he didn't want to do it as I wouldn't be there. I was so proud of him but he gets no credit at all from school for making the effort (and being the only one to have memorised his piece). Sorry for the moan but it makes me Sad.