**Tamoxigang heading towards hearts and valentines - thread 47**

[BetsyBoop]

roses are red
violets are blue
sugar is sweet
but cakes are better

Pickle - Good on you for pulling that nurse up. Can you complain to the Sister who is in charge of your room?

Malt - I am pleased to hear that there hasn't been much waiting for you. I heard that waiting times could be quite bad for rads, unless you were the first appointment of the day.

It is my birthday next week and I am off out today for a girlie lunch. I was planning on wearing my wig for the first time today, but am a bit worried about the wind blowing it off my head!

Just seen all those empty bottles Malt, no wonder you are feeling a bit delicate!

Not all mine tiny
I always worried about my wig blowing off but it never did, on windy days I wore a hat on top of if which seemed to anchor it down !

Bad night. Combination of howling winds and dark thoughts, so had to listen to the Archers replay to settle things down. But an ill fitting window (crappy double glazing) had the wind whistling through an unseen gap so shrilly that there was still no chance of sleep until (excellent piece of DIY this) I sealed the gap with E45 cream. Wonderful stuff. Worked a treat.
Looks a bit odd, mind you.

wren shall add that to my list of uses for e45

Day in bed for me!

Morning or rather afternoon all. OK night. Did speak to the sister. I explained I wasn't bothered by the mistake but I was bothered by the attitude. I had to tell her twice to go and get a gown which isn't acceptable.

Had second blood unit but not as early as I wanted as apparently my notes had do not wake early (nothing I'd said, I'd asked to have my other unit at 6am in the hope that I can feel crap in the morning and then start to be a bit better. The time I had it means today is a write off as I always feel shattered after a tranfusion. They still came and took blood at 6am so not sure why the rest had to wait until 9.30am.

My current battle is to be allowed outside to take off a bloody tinkly bell hanging from a tree outside my window. They've said I'm not allowed out of my room. I will just have to send ds out there when he visits tomorrow! Windchimes make me want to kill people

Pickle Sympathy re wind chime! You can put up with treatment but having that tinkling outside must be torture!

malteserzz two ds but both live away from home now.but dh and i went out for lunch today but its hard to be normal and the conversations always end up with what is going to happen on thursday.I know he is scared but trying his hardest to remain positive.Also worried about our lack of knowledge and hospital has recently been in special measures.

mildmay if it is any comfort I'm in a hospital most people I know would do their best to avoid. Same goes for me for some parts. However the bit I'm in is excellent, especially now they've taken down the sodding windchimes! Care can really vary between different wards. I'm in a room by myself and the cleaner spends nearly an hour every day just cleaning my room. The nursing staff are good and caring (only 2 I've met so far who weren't).

I was scared witless and remember saying that at least I don't have cancer (when they first thought I had something else). Then I was told it was cancer and for a couple of days I thought my life was over. I'd sit on the train to work crying silently and trying to mop my tears without anyone noticing. I'm now in the middle of what will be long and arduous treatment. I will get through this process and out the other side but in the middle of it all I try not to think about the worst.

Not knowing what it could be was the absolute worst part of this process. Once you have a diagnosis you get a plan and with a plan you can feel more involved in what's going on.

Yes, mildmay, I completely agree with pickle. The waiting is really hard, but a plan and active treatment helps. Good luck with finding a way of managing the next few days.

Glad the windchimes have gone, pickle. An exquisite form of torture, I thought.

difficult pickle thanks so much for your positive comments.great news that wind chimes have gone.its hard not knowing but you are right i will be able to start to fight it when i have a plan of action, rather than just worrying about what might happen .

Bloody wind chimes. Gimme the location!

Wren, true E45 genius!

Morning all

Could I start today by putting Chocolate Rocky Road with ice cream, on the trolley!!

It was my Best Friends favourite treat. It's was a year today, that she sadly passed away. I didn't think I would ever be able to carry on without her, especially after being diagnosed in August! BUT thanks to the wise words and continued support of all you lovely ladies. I'm still here.

So Thankyou to all of you xxxxxxxxx

really, chocolate rocky road and ice cream being enjoyed here. What an excellent favourite treat. I will be thinking of you and your friend today.

Morning
Hope everyone's ok
I'm still in bed, had a good night out last night with friends

Pickle glad you got rid of the wind chime !
Really thinking of you today. How's things with your mum now ?

Need to pack for the kids today, their grandparents are taking them away for half term as I can't go anywhere with having rads every day :(

Pickle, I'm rejoicing at the fate of your much-loathed chime.
I screamed at the ward while in ICU "If you don't take that ducking bin away, I'll get up and move the fucking thing myself!"

At the time, I was in no condition to do so (leg straps, back drain, catheter, 5 IVs, oxygen and not able to open eyes properly for some reason).
Wasn't moved. I demanded to see Head Nurse. A man came. I repeated my less than polite 'requesty-threat'. It was moved.
On my notes (mum looked through while there), it read: 'operation has not affected voice box.'

I just revel in that.

Not so powerless. Haha

Love the comment on your notes goodness!! Can't beat a bit of British understatement!

Hahaha

My proudest moment.

Really, how many scoops of Rocky would you like?

Morning all. It's hard to believe that I've actually been up since 6am but only just managed to have a shower and get dressed. Being ill is busy work!

I have my last funny red chemo today. Hoping to have it finished before ds arrives as I don't want him seeing me connected to wires. He is coming to visit with my mum. She is still struggling with it all but ds seems happier.

Lovely sunny day here today and quiet (thank god those chimes have gone). Nice nurses on today too. I was a bit concerned that there may be a different group from weekdays but they aren't. Funny that I've not seen rude nurse since my first night.

Welcome mildmay sorry you are here, i am fairly new here and everyone is great with advice, handholding etc, I can assure you that waiting is defo the worst thing, my DF had a biopsy on his vocal cord and we waited 2 weeks for results, alas he has cancer and is about to start 6 weeks of daily radiotherapy, once you get a plan in place you will feel much better, and the Macmillan nurses have been wonderful
maltes glad your radiotherapy is going well, my DF starts his next week, daily for 6 weeks, has it affected you with tiredness, nausea etc? As DF's will be on his throat they have warned about soreness, dry mouth etc but until it starts I guess he won't know how it will affect him,

Pickle enjoy the visit with your ds bet you can't wait to see him

Honey I'm fine so far, the area is very slightly red that's all. I'm tired today but that's because I've had 2 late nights more than the rads ! I guess it's like chemo though and the effects build up the more sessions you have.

maltes good to hear
You haven't been affected to much with radio, how many sessions do you have altogether? I think you have said but I can't remember!

Pickle, I'm still in bed. Nightie on, inds down (window open). So feel proud that you've showered n changed.

Glad horrid nurses are nowhere to b seen. Hope night ones r nice, too.