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Original poster

Hysterectomies - it's gotta be done but over here for hand holding part two

992 replies

Oddsocksrus · 09/12/2013 22:57

Over here for the hand holding.
One in five women in the uk will have to have a hysterectomy at some point in their lives.
Come and join us if you are waiting, pre op, bleery eyed on the ward or recovering afterwards.

OP posts:
gingeme · 06/03/2014 18:12

Thankyou twinkle . I guess it moved me up the list a bit the original appt was June. Wonder if theyll give me my op appt then !!

Twinkletights · 06/03/2014 20:14

This journey involves so much waiting gingeme hang in there, it is so worth it for the end result and relief Thanks

gingeme · 06/03/2014 20:26

But I am not the most patient person twinkle but yes I shall try to be as I know it will be worth it in the end Smile

Basketofchocolate · 07/03/2014 17:03

I found as I waited for the appt so long to start with, I was offered a quick operation date due to the pathway time for the hospital being mostly used by the time I saw the consultant.

Twinkle-worth checking the hospital time line which should give you an idea of total time.

Today have been ok. pain not too bad at all. Managed to shuffle around on my own, eat, watch tv etc. Trouble is, I lie on if sofa watching something and forget I am poorly. Then i get up!

shewhowines · 07/03/2014 17:07

Glad you are able "to forget"
Enjoy the rest and don't overdo it.

marymoocow · 08/03/2014 09:16

Hi. Could I join you all please? I'm currently waiting for my op date for an abdominal. I saw my consultant 3 weeks ago who confirmed that I needed a hysterectomy, like so many have said already,waiting now is not fun. Still, at least I can count down the number of cycles left! Really appreciating being to read about all your experiences. Hope everyone post op are feeling well today. I can't wait to feel better again and get my 'life' back. Hope that doesn't sound over dramatic!

gingeme · 08/03/2014 10:09

Not at all marymoocow. Welcome. Im waiting for an op date still. Lucky you being able to countdown. My monthlys have gone awol !! Can I be nosy and ask why your having the op ?

marymoocow · 08/03/2014 11:04

Thanks gingeme:-) I haven't got an exact date but was told somewhere during May/June. I have fibroids, which causes a lot of pain and flooding. I've put up with it for years, but it has reached the point where I keep having to have time off work every month. Not ideal!

gingeme · 08/03/2014 14:17

Flooding Sad I can understand your wanting it over and done with. I have endometriosis and have had it roughly 15 years. Fed up with being a hormonal troll bitch from hell popping pain killers like theyre sweets Sad

marymoocow · 09/03/2014 15:30

certainly fed up of rattling with tablets. I'm also anaemic, so popping iron tablets everyday. I had a biopsy, gingeme, when I had my initial consultation (much to my surprise) as a scan revealed the lining of my womb was 17mm thick - apparently should be between 3mm and 5mm, although I'm no expert! Haven't heard anything, so assuming all is well thereHmm

gingeme · 09/03/2014 20:21

Wow I dont have a clue about that sort of thing. Are you having a full hysterectomy then ?

marymoocow · 09/03/2014 20:39

not sure I have much of a clue to be honestBlush The consultant is reluctant to take my ovaries due to my age, but is going to (in his words) have a good look, and all only leave them if they are absolutely perfectHmm I was just relieved he agreed with me that something had to be done.

gingeme · 09/03/2014 21:48

Do you have children ? I just want the whole lot taken then there is no chance of me getting it again. I havnt told the consultant this yet. She seemed reluctant to offer me the op in the first place Sad But as all tje ladies will tell you here its all worth it in the end Smile

marymoocow · 09/03/2014 21:56

Yes all done with children, so it is absolutely the right thing for me. Would quite happily go tomorrow if I couldGrin Hope you get what you want. It does feel a bit like a lottery as to whether you get an understanding consultant or not. Fortunately for me I have both an understanding doctor and consultant who have both moved quite quickly - I only went to the doctors in January......possibly put up with it for a little bit longer than I should haveBlush

gingeme · 09/03/2014 22:15

Lucky you. My consultant wanted me to try hormone injections for 6 months. I did alot of research about them and a friend of mine who is a nurse told me they had alot of side effects which would have made me feel worse than I do now. I shall tell her this at my appt and ask for the op. Hopefully I wont have to wait too long after that !

marymoocow · 09/03/2014 22:26

Good luck. You sound like you are fully informed. That hopefully should help. If you're anything like me though I would write down your main arguments as I tend to go blank as soon as I step over the thresholdSmile

gingeme · 09/03/2014 22:35

Ha ha Im taking my Mum this time. She will definately get my point accross for me Wink

gingeme · 13/03/2014 13:36

Hi how is everyone doing on this beautiful sunny afternoon Smile ?

LackaDAISYcal · 14/03/2014 16:22

Hey there...I'm back and hanging around for a bit :(

Saw the consultant today, the D&C was clear, however there was definitely cancer cells in the polyp that was removed. The type of cancer is rare, but is often confined within the walls of the uterus, so it's all got to come out. I'm booked in for a CT scan as well, to make sure that there isn't any spread.

She said that the CT scan will be within two weeks and the op will follow shortly after that.

So...still reeling a bit; though I thought that would be the likely outcome, it was still a bit of a shock hearing the words.

How is everyone?

LackaDAISYcal · 14/03/2014 16:26

Op will be a total hysterectomy leaving my ovaries, provided nothing on the CT scan; no mention of whether it would be laparoscopic or abdominal though. I'm assuming I will have another appointment pre-op? I forgot to ask.

One positive is that many years ago I took out a women's health insurance policy, so I will get a pay out and money for overnight stays. It'll help with my finances as I only get SSP as I'm on a zero hours contract.

gingeme · 14/03/2014 21:55

Wow Daisy thats alot to take in. You will be able to relax a bit once the ops over though hopefully Smile How are you coping ? Its that waiting game again thats the worst thing ! x

LackaDAISYcal · 15/03/2014 11:51

Only saw them yesterday, so still trying to take it all in. Poor kids are being ignored as my head is in another place completely.

Still, it is what it is; just want it over and done with, but it looks like another wait. An I am very doubtful of the timescale as I was told two weeks for the results of my polypectomy and it was six, then two weeks for the results of the D&C and it was four... Hmm

shewhowines · 16/03/2014 19:54

Oh dear lack I know the feeling. The worry totally consumes you doesn't it. Last year is just a bad memory for me now. You will get through this... It's just horrible while you are going through it.

Hello mary welcome

ginge it still a long wait for you. What did the consultant say this time?

LackaDAISYcal · 16/03/2014 21:41

and hello marymoocow :) sorry for being a bit rude and ignoring you Blush

I've started telling friends and family what's been happening, and feeling very emotional about it. DH is already doing this face ---> Hmm when I talk about it. He says he got the snip without worrying about his masculinity/sexuality so can't understand why I am being so obsessive about this aspect of it, especially as I have been so, erm, inactive in that department for months Angry. I think he was trying to be funny Hmm

gingeme · 17/03/2014 08:07

Morning all x
You have every right to feel emotional about it Daisy. Just ignore DH and his Hmm face !!
I havnt had my appt yet its on the 29th just before Mothers Day !!