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The Back Story

999 replies

Matildathecat · 03/10/2013 16:02

Hi to all fellow back sufferers. I've been on Spooning for a while but don't really feel I fit as I'm not actually ill, just have a chronic (and permanent) back injury. So please post here, no niggle too small. We can share experiences, tips and moans!

Quick history, age 48, last year had sudden crippling back pain eventually diagnosed as disc prolapse L4/5. All conventional treatments tried and failed so had micro discectomy privately.

No progress, and much worse leg pain followed. V long story short was finally seen by second neurosurgeon who diagnosed severe scarring around the nerve root as a result of the surgery. Poor outlook for surgery but we gave it a go, so had second op with similar lack of progress and final MRI showed even worse scarring. Only option chronic pain management . Had several injections with not much effect...

So, permanently disabled, use a stick, endless drugs and a lovely blue badge. Along the way dismissed from career of 25years for ill health.

Sorry, it's a grim story, but hey, I'm ok. Not depressed, have an okish quality of life with the help of my fantastic husband and friends. I walk, albeit slowly and not far, swim a bit and can please myself. Luckily my boys are young adults.

So come along and share. Moans and groans ok, tips and recommendations welcome.

Just don't tell me to see your lovely chiropractor, I might just punch you!(wink)

OP posts:
Matildathecat · 14/01/2014 14:18

Well that's kind of good...I think. Poor you. Although getting fired was somewhat crap Confused, I'm grateful that I don't have the daily battle.

You have to try to stop feeling guilty. Not sure how but it's not your fault. They know that, too. Please, please rest, enjoy the rest then rest again. Got any good box sets?

I'm seeing my GP next week and among other things I'm asking to try the slow release tramadol. Thinking it might help with the daily juggling act between activity/pain/analgesia.

I do like counselling. I'm very unsure how it helps but it's an hour of saying what I like.feeling 'got'. Also it feels safe. It's the same place I did Pain Mangement and it feels safe being there. I'm not looking foward to being discharged. I still feel that the rage and trauma are bubbling away but frankly, how can they not be and how can I deal with it any better?

With a long legal case pending I think the support will be really helpful though I probably won't be kept on for all that time.

Steady now girls, steadyWink

OP posts:
PavlovtheCat · 14/01/2014 16:08

I am glad you are finding the counselling helping. As you said, how can you experience what you have and not have anger there. It's all well and good people (professionals, I am looking at you here ) talking about coming to terms with a disability, but when it is so utterly life changing, it's really not that simple. Especially in your case when closure is not yet in sight.

I definitely advocate the slow release. I don't tramadol at all now (I should return to it, but it too a lot of time, and horrible withdrawal to come off it) but, the slow release was fab. As I said when we met up, there's just no seesawing of feeling it working, the high of it taking effect then the low of it reducing. It is more gradual and constant and means you can feel the affects during the night too, and top up with normal tramadol to the max limits on the days you need to. The thing with tramadol is it is a seretonin uptake inhibitor so it increases positive mood, and when it increases/decreases it can also increase/decrease mood accordingly and that did my head in as much as the pain. slow release much more gentle both emotionally and physically.

I almost asked the doc for some today. But, I didn't get on great with it in the end, it felt like I had built a tolerance and it wasn't doing so much, and any time I missed a dose I felt shocking, not pain wise, but emotionally, and got horrible withdrawals, so I seemed to end taking it to stop withdrawal not for pain relief. And, so I went cold turkey, tried several times and it was not pleasant, but one day I seemed ready and it took 3 days of feeling goddam awful, but was expecting more, and worried more about the affects on mood from stopping. Possibly why I get more bouts of depressed moods as it made me 'happy' Grin But, I think if this pain is not going to disappear anytime soon I might as well just take it again.

I have done the school run. Lovely school let me park in their carpark and sent DD out to me. But, the driving, getting the kids settled with snacks and my legs and feet are hurting again. Definitely going steady. Grin

On the plus side, DH went shopping before he went to work and bought a lot of snacks for us - pistachios, almonds bleugh trail mix, greek yoghurt and honey to dribble on it. We are all in bed, watching TV, having a feast Grin

magso · 14/01/2014 16:27

Agree with you both. It is good to discuss life changing events. For me it was suddenly going from very fit to hardly able to function due to CFS - the back trouble may well be less if I could do more IYSWIM. I had some counselling too and it helped a lot. I felt so guilty for ds who was just getting to an age where he wanted to do the active things I used to do and now can't. I came to motherhood late so felt guilty for that. It helped for someone to say it wasn't my fault. I know I know! It helps to realise that this could have happened to any one. I do miss counselling. I think I could do with a top up from time to time!
Pavlov Sorry you have had a 'flair up' ( using this phrase to ward off other possibilities). I so hope that's it not more serious. Do remember the 2 weeks may not be enough - its just a standard time to work out what you actually need.
If I have my way (and nothing more urgent intervenes as it always does) the next big expense in our house is going to be a magso sized easy chair! I was better on holiday where the settee was very small and shallow - spot on for me but a bit shallow for Dh and ds ( who sits with his whole legs up out straight). At home I tend to curl up which is not helping!! Perhaps a nice semi recliner!

PavlovtheCat · 14/01/2014 16:44

My BIL in USA swears by therapy, long term therapy, not just a little bit here and there. He has had a therapist for years! It helped him through some tough patches in his life. He considers it odd that the UK doesn't use therapy enough to manage crisis in life.

yes to a personalised seat!

I am sure it's nothing more than my disc being a pain. I sort of wish that the MRI happened when it was a bad flareup to see what is really going inside. I suspect not much on the last MRI as even though I had pain it seems marginal in comparison Grin I know it was not minimal pain, but wow, this is right back at the beginning on the pain scale. Although, positively there is no horrendous back spasms that refuse to go away and have me walking bent over. Just slow now Grin

livelablove · 14/01/2014 20:02

pavlov sorry to hear it is going to take so long, but saying that, you do sound in a lot of pain. That thing you said about having rusty nails raked down your back was very descriptive.

matilda glad your counselling is helping, maybe you could afford some private counselling if your NHS counselling comes to an end, but you need a really good person of course.

I got back to work and everyone was very nice to me and pleased to see me which was great, but it was quite hard going for me. I felt really tired after and my back was sore. I think the tiredness is because I am not fit, so I have to work on that. I will have to see how I feel again tomorrow, but it is a bit difficult because everyone is pleased I am back to work.

Matildathecat · 14/01/2014 21:20

live great that things are going well! it sounds as if you could do with it being less, though. Is there any way of shortening your shift? Problem is, once you're there and everyone said lovely to have you back, they forget really.

pavlov, glad I'm not sleeping in your bed! Sounds as if it might be very gooey with honey and yoghurt spills...
Re your MRI, I'm not sure that nerve inflammation really shows up anyway. When is your review? Do you think injections might help at all? Anyway, too many questions. Just rest and swallow drugs for now. It sounds as if Christmas and London have truly caught up with you. Glad you told me about tramadol and serotonin, I'm not depressed, I think, but every little helps Grin. I am fed up but that's different.

magso, nice to see you. A heated recliner could be good. With a glass holderWink. Counselling has been good. I don't think I will be paying privately though. It's £90/hour and I do have really good friends who do pretty much the same tbh.

Take care, all. I'm meeting up with my Pain Group tomorrow. Whoever would have guessed?Confused

OP posts:
cowmop · 15/01/2014 09:05

Glad to hear you've got the note for a couple of weeks pavlov, hopefully some rest will get you back to your normal. I used to be the same as you describe on tramadol, but it was sort of worth it for the hour or so of decreased pain. It clashes with my epilepsy meds now so it's out otherwise I'd be asking about the slow release one you mentioned. I like the sound of your snacking, if dh went out for snacks he would return with his body weight in biscuits but I'm a savoury kinda gal!

magso, a recliner would be bliss I think apart from having to fight the kids off it. My friend has one of those spinning easy chairs, it's really quite massive and holds 3 kids, before we go to her house I have to read my youngest the riot act about not using it as a roundabout. Maybe we could have some "just go steady" fabric printed up, incorporate pavlov's heat and Matilda's glass holder and take it to the open market!

Matilda I'm glad the counselling helps, it's a huge thing to come to terms with and can very easily drag you down. Your right about the not depressed, just fed up thing although it's hard to get some gp's etc to understand this. Hope you go on alright at your pain group.

live, you are obviously a valued member of your team at work, but don't let them put on you just yet. It's easy for other people to forget you're in pain. Maybe we should have "oi, it hurts" badges made as well as the recliners?!?

I've had to bite the bullet this morning and get mum to take the kids to school. It's not very often I don't hobble down there but I just can't today. I've bought some paracetamol to add to my drug mix after hearing your votes for it so hopefully it might take the edge off a bit. The pilates instructor took one look at me and went "feeling rough?" which was nice. She says to try acupuncture again, but with a specialist rather than a physio, she's got a bad back herself and has told me who to ask for so I'm going to give it another go. Nothing ventured and all that!

I hope you all have as pain free day as possible and just go steady (as much as possible!)

cowmop · 15/01/2014 09:06

Sorry for the epic post and many grammar fails!

PavlovtheCat · 15/01/2014 09:12

matilda I spoke to pain clinic about the injections, he was reluctant to arrange them until the MRI results came back and I had seen the surgeon again. He did say he would speak to the Doctor who does the injections to see if he was prepared to do them while waiting, but he has not got back to me about that, and to be honest I felt like he was bullshitting me to get me out the door and not have to say an outright 'no'. I was offered it last time before surgery, so don't really get what is different now, apart from no MRI result yet. But, I would be happy to try the injections absolutely, in fact, even if surgery is discussed again, which I don't think it will, as nothing is probably going to show in the MRI that can be fixed, I will try the conservative routes again first (I had the caudial/epidural injection not the direct nerve blocking one last time, it did work for a couple of weeks, but that was all).

Is this counsellor available for private sessions, live has said consider private, so it might be worth exploring if you are finding the sessions useful? Especially if you are awarded PIP you could use some of it to fund a few sessions. Although, the reality is that money is most likely already spent on horrific expenses, it is worth considering as a way to support you through the coming months.

live that's a huge problem with returning to work, everyone is glad you are back, so if you need to be off again, you are faced with that added pressure/guilt! I know that our employers pay our wages and in effect allow us to live, but, I sometimes feel they own me, they seem to expect such huge explanations and need to know so much personal information about my disability in return for paying me sick pay, and the guilt I feel when not at work is almost worse than what I feel for not being able to be as good a mum as I would like. I agree, a phased return might be a good idea, doing less ours for a couple of weeks and building up slowly. Is that possible?

My mood is better today. I think the weight of not having to go into work and no expectations from me other than school run, and I have that sussed with little effort has made a huge difference. It has also eased the pain I think as I am not stressed. And I am not doing anything! When I do too much it is hurting a lot, but simply taking away the day to day routine has improved things already. I might suggest to DH that we go to the gym this morning together, not for a swim, but to sit in the spa, sauna, get some heat going on it, and maybe a coffee after, just to get me out of the house and not just for the school run. We shall see - I might find getting dressed is enough to wear me out, it was yesterday!

PavlovtheCat · 15/01/2014 09:15

ex-posts sorry cowmop sorry you are feeling bad today Sad definitely go steady. I love our collection of marketable things coming together. If I win some windfall I will design us that chair with all our bits and bobs on, we will make a fortune Grin, hope the paracetamol takes the edge off with the other meds and you can rest today.

Matildathecat · 15/01/2014 17:58

Hope everyone has been good and steady today. I've had an epic day of meeting up with people for chats...actually quite exhausting and finished with a long conversation with my lawyer.

So, I met up for coffee at 11am with the bods from my Pain Management group. So far, so good. Now one particular lady was, well, odd. Quite odd. Happy to share very intimate details with all and sundry for ahem, long periods of time. Generally quite depressed. Anyway, today I arrive, codeined up and she jumps up and says 'I'm buying us all Champagne!' Well, we all look a little surprised and say oh goodness, how kind but shouldn't really, I'm driving etc. undeterred she goes off to the bar (it's a riverside bar/ restaurant ) and returns with two opened bottles of champagne nuts! olives the lot! There are 6 of us.

So we sip at the bloody Champagne, finally suggest that coffee might be nice, too and have a nice time. When we left, this lady attached herself to another (the quietest!) and announced they could go into town and spend the rest of the day together. I'm afraid I made my excuses and left.

Odd, no? At least, not what I was expecting. Will suggest Costa next time Grin.

My pain was bad this morning but at least hasn't spiralled out of control. Hope you are all ok, too.

OP posts:
livelablove · 15/01/2014 18:24

Well strange but I guess a good way of managing your pain! I had a better day today lay in bed all morning till just before work and had another lie down after. I got back up till just now when I have gone back to bed again with my microwave hottie, which I found yay! It was my mums suggestion to try to rest a lot more, mums are great. I also tried to go steady at work, as per cowmop's mum's advice. It is not always possible there though as it is so busy. I have a meeting tomorrow, which will cut into my lying down time but want to see my boss and may be able to ask if there is any more they can do to help.

Hope you are all ok and lying down with drugs and heat pads as well.

Matildathecat · 15/01/2014 19:36

Yes, I am! Boring aren't we...

Just a thought, would a lumber support help you when working? It's a wide, stretchy Velcro band. You can buy at the chemist fairly inexpensively. I used mine quite a bit until I lost it. Losing things is another common theme really Sad.

Keeeep pacing. ( the 'in' lingo for rest, potter, restWink)

OP posts:
PavlovtheCat · 15/01/2014 19:45

live lying down is most probably my favourite ever activity now. In particular with a hot water bottle of some kind and my duvet and the laptop I am glad you have found a way to manage a little bit better, hope the meeting with the boss finds some helpful solutions for you. enjoy your lying down right now I won't be too far behind, hopefully.

matilda how odd! nice, but very weird. But, tbh I am not a huge fan of champagne at the best of times, prefer prosecco, could happily quaff a glass or two of that at 11am Grin but maybe not if driving and not if it meant shopping with someone who had probably finished the rest of it by midday! Did she have a reason? Celebration of you all meeting together? winning some money or something? I mean, it's not cheap but especially not in a restaurant!

PavlovtheCat · 18/01/2014 17:11

Back's gone again. Went swimming with children. They promised to be good,and they were good mostly. But, it was a bad idea. Putting ds/ trousers on him after getting out, bent down, got up, got stuck, gone. Foot is painful, some cramp which I don't know if it's linked or not, and some tight pain around ankle, aswell as butt and leg pain, pressure on bowels (but all working fine). I would say, it's definitely my disc. The pain is very deep inside. Ffs.

I went with a friend, who took her little one too. She is pregnant, so not able to do huge amounts herself, but insisted on carrying my bag to the car and made late lunch for us all at my house. Lovely friend.

livelablove · 18/01/2014 20:35

Oh no Pavlov I remember once a few years ago I hurt my back and went to a hydrotherapy pool but hurt my back more getting dressed again after. Also at that time I went for some sort of electrocution (tens machine type thing) at a sports clinic it did help a bit but by the time I walked back up the road to my taxi it had gone again. Hope yours is easing off a bit by now.
I am feeling a bit better today. I have gone back up a bit on my drugs and restarted taking my codeine. I was finding.evenings getting very achy. The physio wants me to reduce drugs but the dr has given me some more so ha! Also the physio hates my cheap crocs-style clogs as they have a stiff sole and are a bit clompy. He says this is very bad for spine. I will try to do both things and reduce drugs once pain is bit less also try to find better, but still cheap, shoes. But as for the drugs I will have a couple more days at least until I try to reduce any more.

PavlovtheCat · 19/01/2014 07:40

It's funny the different advice that different professionals give isn't it? Within the same field in different counties/hospitals, in different fields in the same area, I get the impression no one really knows how to handle back pain, not even those who are specialists! For example, my physio told me to up my painkillers when I was increasing certain activity, my GP agreed, then the pain clinic said reduce the anti inflammatories! Although, tbh my view of GPs are they are medication happy as they have such little control over much of the treatment/it's what they know. My GP, lovely as he is, happily gives me as much medication as I require. Which is great as I am sensible, and perhaps not using it all enough, but it's not necessarily the answer to back pain. Although he is not easily encouraged to prescribe muscle relaxants, a friend has a back problem and he won't prescribe them for him. He upped his readiness for handing out pills when I got a diagnosis of disc problem, then he was like 'right, what do you need?' And he always asks me now 'do you have enough of everything?' Grin

Are you still working? Is that why you are finding the evenings so hard? Haver they made any adjustments for you in the longer term?

If you have had problems before with your back, do you think this is a follow on from that? My back 'went' a good four times before it finally 'went' badly and from which I didn't ever really recover. I wonder if this is a continuation of a pre existing problem, with perhaps your disc or something else going on? If it doesn't go away after 6 weeks (it's been that long at least right?) you can and should ask for a further investigation like MRI.

Back is stiff and sore, but a little better than I expected it. Stinging through back and legs is getting me down though. Kept me wake last night and it's just there all the time, whether I am moving or not, but worse when moving around.

I have a follow up pain clinic appt on Wednesday, no letter, just an automated call to 'remind me' Hmm but at least I got it in time. I think this a meds review with nurse practitioner so I am going to probably have to consider pregabalin if they won't offer me something more practical like a tens machine, as I have I think reached the end of my tether with it. The pain has gone from around 7/10 to probably 5/10, but it's now constant.

And I have to take dd to swimming party 30mins from here and entertain ds while she is there, go buy a present first, get kids ready etc, DH is working today. I just want to go to bed and stay there.

Matildathecat · 19/01/2014 10:50

I, too had a few 'episodes' before my back went for good. Now, when people I know have episodes I say, please, please listen. You back is speaking to you. I've also had heaps of sessions that theoretically help, like going to the pool but actually the sheer effort of it all out ways any benefit. I shudder to think about taking children ( wags the naughty finger at someone). And yet, yes, we've all proved we are ok if we do nearly nothing but is that a) a life anyway or b) possible?

I had a very rare quite good day on Friday so yesterday was crap. Today, well who knows? I haven't left my room yet.

I now think that I will listen to all opinions on my back and pain but actually I am the expert on myback. How studiedly frustrating is this merry go round of wait for this, might do that. Meanwhile our lives are blighted. pavlov could you call the pain clinic to ask for an update on the doctors' ahem, discussions? Reiterate that you are off work.. Are you still waiting for the MRI result? It's bloody ages since you had it. Very unacceptable.Sad.
I may have a spare TENS machine knocking about if you want one?

live, we've had major shoe debates on here. Sadly the better shoes for us back girls are more expensive. I'm currently in my Fitflop boots everyday and my Fly London ones for going out. They are both very, very comfy and cushioned. Failing that, good trainers would work. Ditch the Crocs!

I'm going on holiday next week, yay! Actually I'm very nervous. I'm visiting family a long, long way away. It will be veeeery hot and it's a long flight. My DDH (!) has paid for a very expensive flat seat and I'm booked in as needing assistance. I'm hoping that the good bits will outweigh the bad. Also nervous that the house will be a tip and the animals dead. Did I mention I'm going alone?!

The day before I go I've got injections up in Central London and another appointment there the day I return. Busy girl. Ah well, if it's all a terrible mistake I'll know for next time.

Good timing for me, I'm knackered, stressed and fed up with all the forms, statements and detailed law stuff. I need a break and want to be far away when the first surgeon finally, finally gets a taste of his own medicine. Utter, utter bastard.

Have a good day, everyone.

OP posts:
PavlovtheCat · 19/01/2014 11:33

matilda far away and hot! On your own? Oh lovely. And exciting! You bloody deserve a break. And how lovely of your DH! Yes yes to assistance. We are potentially going to USA in summer and instead of looking forward to it, I am actually panicking at the flight, especially with two children. But life is to be lived yeah? Are your forms in now? And good luck with the legal stuff.

Thing with swimming. We only went to my gym, where kids go free, dd can swim, ds has armbands but is water confident so it should not have been a huge deal. Being in the water seemed to aggrevate/highlight the nerve pain. But it was getting them dressed after that was a problem.

No MRI results. GP said if nothing by Monday he will chase it for me. It's been since 4th December (0r maybe 3rd). It's beyond a joke now. And seems consistent, I seem to wait forever for every tiny step. There is no urgency to any of it. And I know he had results quickly as pain clinic told me he would likely have had it within hours, if not the report itself, which he wouldn't really need as surgeons read different things into the MRI than say the pain clinic as their decisions are different and he wouldn't really care what the report says.

I've had enough, actually really truly. DH is trying to get his shift covered today as I really am worried about how I am going to manage what needs doing today.

GoodnessKnows · 20/01/2014 05:32

Hello everyone Wink
I'm finding it hard to find the thread that's right for me - and I'm feeling frightened and alone. I'm on the Tax thread which is super supportive but the C word scares me (largely because it MAY, gd forbid, apy to me - but the biopsy I've had is inconclusive. So here goes:
I'm fine
I have no pain
Just ache in my hip at night and along the top of my pelvic bone - also at night. I've shrunk a bit, according to a recent height check and I have one leg a bit shorter than the other.
No big deal!
Thought I'd get a new mattress. Thought I'd get a referral (private insurance, thank gd) to see what this aching at nights all about - wake up at 2am for a couple of hours, or from 4am I'm up. It's NOT painful. Just achey but after about a year n a half, thought I'd check it out. Thought I'd also sneakily ask consultant which mattress to buy.
So here it goes:
Didn't want to give me MRI and X-ray until I'd had Physio but offered it. I accepted. He said pointless really as 99.9% sure nothing would show up on it. But accepted as aching couldn't be nothing and he could to to odd any explanation for it & didn't even know what to tell Physio!
MRI showed shortening of vertebrae in lower back
Second MRI requested
Second MRI showed ('scuse my French, I'm still in shock and have been swearing A LOT) a fucking tumour in my sacrum and spinal canal!
WTF
They think it's a melanocytic schwannoma
But biopsy inconclusive
So can't rule out a low grade sarcoma
If you don't know what these are, don't worry. NOR DO I!
I'm fine
I'm not in pain
But I will be and I'm freeeeeereaked out
I've a 3 k a 6 yr old
Hmm
Shit
Fucketdy shit Hmm

GoodnessKnows · 20/01/2014 05:35

Oh, and I'm down for spinal surgery where their aim is to get it all out and preserve as much nerve function as possible, find out what it is and... I think it's not going to be resolved in a flash. It's already taking over my life with tests, MRIs, pre ops, more tests, urinal diagnostics, Hmm
It's such a shock
I'm so sad
I had no idea
Not did they
GP called t apologise as he had and 'would've had no idea and didn't even know how to spell it (schwannoma) as it's so rare' (his words).

PavlovtheCat · 20/01/2014 09:36

oh goodnessknows how absolutely terrifying for you! Shock Sad You are absolutely welcome here, for hand-holding at the very least. There are lots of different types of back problems experienced by us lot here, there is no one set type of situation although there are some common themes that's just how it's ended up, so you will at least find sympathy even if no other person with the same condition.

PavlovtheCat · 20/01/2014 09:39

Do you have support in RL? you have such little babies! There are some spinal health support groups around, and you may find if you take a look at some of those forums there may be people there who have been diagnosed with the same and may be able to guide you through the next steps. one is called Spinal Health I think, will try to find a link.

livelablove · 20/01/2014 09:58

Hi goodness I have seen your other threads. You sound a bit freaked out. Hope you are getting plenty of support in real life. The posters here will give you great advice on the back related problems anyway. I am just recovering from a bad case of sciatica and they have helped a lot.

Going back to my previous post, yes I did have quite a lot of minor episodes of back pain, plus one really bad one which they told me at the time was a torn muscle in my back. Maybe this was a bit of a misdiagnosis thinking about it, as from what I have read the spine is usually in some way involved. Anyway that was about 10 years ago but I have always had a "weak" back since then and would often get minor back pain, but this is the first really bad episode and it was worse than the other bad episode I mentioned. That time I did not have the sciatica it was all in my back, though it was in the same location which makes me wonder if it is all related.

I do think my pain increased going back to work, and I was tired. But I felt a lot better this weekend. I am going to see how I get on this week, taking the painkillers if I need them and being careful at work and resting as much as possible when not at work. It is a bit annoying because while I was away it was agreed I could have an assistant however it takes ages to find and train/get paperwork approved (not sure why it is a very simple job)so it will be probably months before I get one, when I could really do with some help now, when I am better will need it less, but will still be nice.

matilda I am very jealous of your hols! But you deserve it. I hope the trip out goes ok. Do you have medical care available there if you need it? Hopefully a relaxing break somewhere warm will do you a lot of good. I know cold weather does aggravate joint pain for a lot of people, so maybe you will find warm weather is good for your back. Let us know how you are getting on with the packing.

PavlovtheCat · 20/01/2014 10:19

live my first ever bout of back back pain was about 10 years ago. I could not get up at work after it 'went' for no reason. Diazepam and two days in bed and it was back to normal, never to be problematic again, and I forgot all about it.

Then, it re-occured with (well, I now know what probably caused it, but 't digress right now), my back 'going' when i bend hardly any distance to pick my son off my bed when he was 10 months. I went so badly, and the pain increased over about 2 hours, that I had to crawl, bracing myself every few minutes to get to the bedroom and it took me, no lie, 45 mins. I could not reach the phone. DD was 4.5. She had to get a chair, get the phone and call DH. He came to find my bent over the bed, unable to get in it. Luckily, DS had been put down for a nap and was asleep at the time. I had to wee in DS's potty, and screamed when my legs were touched. Emergency Doc prescribed codeine over the phone, I wasn't seen. When I saw my own gp that week, he said it was pulled muscle or ligament. I was off work for two weeks, it got gradually better and then it was like it had never happened by 3-4 weeks onwards. It went again about 4-5 months later, not as severe, but bit of time off work, and again it disappeared. Again, told muscle problem. This happened several times. In the middle of all this, when I was feeling absolutely fine, I had lots of twinges of pain in my legs, but no backpain. I didn't know really what sciatica was, and it came and went enough that I convinced myself these types of aches and pains people just got from time to time, but no-one complains about every little twinge. I honestly thought I was just making a big fuss and so ignored it, even though it bothered me I just pretended it wasn't there. It was not major, it didn't disrupt my life and I definitely didn't connect it to my back.

Then, two years ago, just before Christmas, it went again, badly. Really badly, and after two weeks, it was not ok. And I went to the GP following christmas holiday and said it had to be something other than muscular. He said I was too young/not overweight/didn't smoke/otherwise fit and healthy (he had said this before and is why he said muscular) and so was confused as to why my symptoms suggested disc related, which he reluctantly admitted it did (I didn't think of disc problem then, really although Dr Google suggested it might be). he said i just didn't fit the criteria, however, he agreed to refer me to osteo and it was the osteo who said without even touching me that it was my disc and it appeared I had the problem for some time.

ok. I talked far far too much there. What I am saying, is those diagnoses of yours, saying muscular, very, very likely to not be muscular. Sciatic pain is always due to a problem with the nerve, and although there are numbers of other causes, it is never normally muscular. It might be a disc, but, could be stenosis or other structural issues impingeing on the nerve, maybe sacral not spinal itself, but, it's definitely definitely not muscular, although that does not mean your muscles are not screwed from the rest of it. You are right, mostly, the original cause of back pain with sciatica is spinal in some form. And, this has not gone away after a few weeks, like it has in the past. This reminds me of me, it's there, you are desperately trying to get on with your life, but actually, it's still very much a problem and now you are having to adjust. This is not 'a bad bout of sciatica'. You need to go get some more tests. You need an MRI.

One thing I have learnt with medical professionals. You have to ASK for stuff. INSIST on stuff. Don't wait for your GP to offer an MRI. S/he is unlikely to as it costs and they have targets to keep within. Don't just accept medication anymore.

OK. Nag over Grin

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