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Don't know where to turn for help to manage the pain

3 replies

Ikethebear · 11/08/2013 22:29

I had a baby nine months ago and I have been in pain every day since and it is starting to really impact my physical and mental health. I had quite a difficult birth and second degree tears and had a lot of vaginal pain after the birth. I thought it was normally after stitches and was told I was healing well. I also got a UTI the week after DS was born which took ages and three rounds of anti bio to go. My bladder has never felt right since and I often have the urge to wee without actually needing to.

I made repeated visits to the GP in the early days to be told it was all in my head and that it was anxiety causing all of my problems. I was prescribed anti depressants which I took although I knew I wasn't depressed just in pain and overwhelmed by the stress of looking after my beautiful baby whilst being unable to move, walk or sit without pain. I thought this was just what happened after childbirth so I tried to cope as best I could. The past nine months have been so so difficult and I am trying to remain positive but I can feel myself starting to give up.

I was finally referred to an NHS consultant who keep me waiting in a corridor in tears before diagnosing me with vulvodynia- this was without a proper examination. I had a Fenton's procedure which has not made any difference. I paid to see a private gynae who was thorough and said I have nerve damage due to thick scar tissue which is affecting the nerves that control the bladder. I am sorry if I am rambling- it hasn't been a good day. I have a wonderful DP and a beautiful baby but I feel utterly traumatised by the pain and the hopelessness of trying to get someone to listen to me. I feel like I can't do it anymore. Its either pain every day or panic that the pain is coming. I am sorry it was so long.

OP posts:
AndIFeedEmGunpowder · 12/08/2013 07:45

Ike I am so sorry you are still in pain and that the hcps you've seen were so unsympathetic. My tear was much less complicated so don't have advice, but there is lovely support thread [[http://www.mumsnet.com/Talk/general_health/a1597449-Calling-all-Raggedies-the-THIRD-Ragged-Bits-thread-Childbirth-injuries-sphincter-problems-fistulae-all-welcome#thread here] that I lurked on when I made the mistake of a post birth vajayjay inspection!

Matildathecat · 12/08/2013 19:33

Poor you. Have you discussed pain relief with your GP? Drugs like amytriptiline can be really effective with nerve pain which is utterly miserable.

Can you ask to be referred to a Pain Clinic? Some offer special clinics for uro genital pain. Certainly UCLH in London do, but there will be many others.

Don't put up with this, you must seek specialist help. Be wary, though re further surgery, try other options first.

Sounds like you have had to push your GP for help, can you try another one who is more clued up? After all, you do have a diagnosis from the private specialist.

Good luck.

AndIFeedEmGunpowder · 12/08/2013 19:46

Sorry clickable link

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