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**TAMOXIFEN 35**the all dancing,fat boy snacking and drugs thread

999 replies

MaryAnnSingleton · 26/04/2013 16:15

yoo hoo - over here- bring the trolley...

OP posts:
trice · 02/05/2013 15:14

I am annoyed that I am being a pain in the butt to all my loved ones again. I'm sure they think I do it for the attention. I have scrapped the funeral plan from last time. I am going for a more low key thing this time around as Dh will have enough on his plate without having to source all those black ostrich feathers! Standard crematorium do for me with a do afterwards, probably at the Old Swan as the parking there is easier. Pork pies from Elite Meat.

I want my ashes tucked into Hector who is an ancient pyjama case soft dog. And then left in the wardrobe until Dh can join me.

See it's much easier second time around as you already have everything sorted.

I am going to make sure it is as far in the future as humanly possible though!

Gigondas · 02/05/2013 15:17

That's absolutely how I think of it too trice. And completely get the being. Burden thing.

Weekend away sounds great plan malteesers . Remind you of what is importantant and you , which isn't all about the stupid disease. And you don't sound mad - you sound composed for someone who has just had a big shock.

malteserzz · 02/05/2013 15:21

Pork pie lovely ! We're going to Liverpool and have booked on the duck tour which apparently sunk a while back now that would be a different way to go !

Gigondas · 02/05/2013 15:25

I fear that I will drown in plastic when a sea of Barbies and playmobil falls on my head.

Liverpool sounds fun Grin.

malteserzz · 02/05/2013 15:34

There was a lady on this morning today absolutely terrified of dolls ! She couldn't even look at a picture of one without hyperventilating and wouldn't let her daughter have any Grin

amberlight · 02/05/2013 15:39

Pork Pie? Excellent. Hadn't thought of that. Will add that to the funeral arrangements here. And sherbert dip dabs. Can't go wrong with a sherbert dip dab, I reckon.
Malt, fear ye not; slightly nutty reactions are standard here. In fact all of mine always are. Blush
We got away for loads of weekends. Anything to put a bit of space between appointments and people tutting at things and doing the head-tilt stuff at us.

MaryAnnSingleton · 02/05/2013 16:06

I';m scared of those realistic baby dolls- one of my cousins collects them -eeksome.
I often do funeral planning - woodland burial with lots of nice smelling stuff around me- sandalwood if poss. and really fab music - I want White Horses by Jackie as it was my first record and some v tear-making classical bits and a huge party with prosecco,margaritas,cheese and pineapple on sticks and violet creams.
T's appointment was fine- no blood test thank goodness as he was hyperventilating beside me all the way to hospital. Spleen as far as consultant could tell was not unduly enlarged,bloods from last year fine,bilirubin I think shows red blood cells being broken up which is what they expect to find (for new comers -ds has inherited spherocytosis -my fault- so his rb cells are round rather than bi concave and get broken up because they can't filter through the spleen properly-so the spleen enlarges) His is v mild though so can live with his spleen but they will check him yearly. Mine was taken out when I was six (though CT scan results tell me I have a normal looking spleen apparently-tsk)
sometimes in her former guise was indeed the second poster Grin
Right,really must do some work -though am off out to vote when T gets home as he wants to come an observe.

OP posts:
MaryAnnSingleton · 02/05/2013 16:07

and ash - v exciting about accomodation and university - hooray Grin

OP posts:
trice · 02/05/2013 17:37

Good news about T Mas.

I never did very well with weekends away myself. I get too intense and overly dramatic in a one to one situation with wine. I need mundane everyday tasks and wifi to keep me on an even keel.

Copthallresident · 02/05/2013 18:05

I have many evil thoughts for the playlist for my funeral.

The Feelings Wherever You Will Go for the Coptettes, or the stalking song as we call it Grin, one of our car journey belters, just to make sure they carry on behaving themselves Wink. Though this plan has the unfortunate side effect of making me burst into uncontrollable tears at the very mention of the song, tears pouring down my face as I type Blush)

Then to get the friends going on a weepfest, Empty Chair at Empty Tables sung in person by Michael Ball (Eddie Redmayne will do if he is busy) really for my close friends who have already left such a gap in our lives, there was an empty chair at the table yesterday when my university flatmate was over from Canada as we were a threesome (a rare one that worked) and it was 15 years ago on Monday that our other flatmate was got by this bastard disease.

Then Jeff Buckley's Dido's Lament (which will probably have half the people there with hairs raised on back of neck, the other half in agony as in hearing cat's claws down a blackboard...)

Coldplay Don't Panic, because that got me through chemo thinking of all the beautiful places I was going to live to see...., and then we played it non stop driving down the Great Ocean Road in Australia on that first post chemo trip

And finally Family's Burlesque because that is where I started out, and it makes a change from Cabaret.

Plus lots of lovely words from the Brontes, Eileen Chang (one of my diss authors), Tim Winton, the bit about the bridge of love from The Bridge over San Luis Rey.......

Not that I've thought about it or anything Grin

Spookily DD and I were just singing along to I Had The Time of my Life in the car on the motorway.

maltezers My way of coping with those thoughts is to get them out and give them a thorough looking at, somehow once you look over the cliff IYSWIM it doesn't seem so bad. One of the huge benefits of my support group is that we talked through our feelings about death, held hands as we looked over the cliff together. After that somehow it wasn't so scary or traumatic. Then you can put them away and enjoy being in denial, another skill Cancer perfected for me, almost, is not worrying about what hasn't happened and not worrying about what I cannot change. I found walking in beautiful places really helped me get it all in perspective. I remember on one walk suddenly realising I really could be happy again, and so can you.

MAS Glad all went well for T

gigs Phew that big gigs has not learnt earworm or super evocative song. I went away a couple of summers ago with friend whose 6 year old had just performed The Lion Sleeps Tonight. After just two days we all just wanted to make it stop but it didn't. Whimaway morning (especially after too much Wine night before ) noon and night. And I shall never recover from Big Copts Year 2 class singing "What a Wonderful World"

YEAH!! DD's processing score came out below average, so will get extra time, hopefully. Little Copt said she has never been so pleased to be below average Grin. Ed Psych is in apocalyptic rage. As she pointed out new stupid exam regs are not based on any sound understanding of learning difficulties, they actually mean anyone with below average scores on processing and working memory get extra time, even if they are of below average ability, they have actually made the playing field easier for them, whilst for able candidates it has gone back to being unfair. The ridiculous thing is that universities provide support and extra time on the basis of the gap between ability and working memory and processing, based on sound educational Psychology, so able pupils with learning difficulties are fine once they get there but the problem is getting the A levels that will get them there.... I suppose the universities will catch up with what is going on, as they already have with GCSEs and go much more on the contextual evidence. Gove is just completely undermining the credibility of the educational system based on his nostalgia and prejudices..........

Gigondas · 02/05/2013 18:16

This is one of mine
It's a good cheer up tune anyway.

Lots of classics at my funeral-then sheds loads of good champagne, good and music. And everyone in their most colourful /favourite clothes.

Yay for little Copt doing below average. Is gove worse than lord true?Wink

Copthallresident · 02/05/2013 18:19

Plus forgot big YEAH FOR Sometime's clear smear. I told you we were on a roll...... (and also having had such having had such havoc wreaked on our insides (mine were more twisted than thrust) by Nurse Ratchetts it was surely only fair )

Gigondas · 02/05/2013 18:19

Clear smears are good WineWine

Copthallresident · 02/05/2013 18:26

Don't gigs It's an axis of evil. Just read new Kate Atkinson, not a spoiler as is on first page, which has heroine with power to keep reliving her life to get it right, directing her life so she kills Hitler in 1932. I can dream.....

Sometimesiwonder · 02/05/2013 18:55

ooh I've just bought that! Is it good?

MaryAnnSingleton · 02/05/2013 19:07

sometimes I forgot to say yay for clear smear - fab news !! EnvyEnvyEnvyEnvy

OP posts:
smee · 02/05/2013 19:20

Hip-hip for your DD, Copt. Great news. That must feel like a huge weight lifted. Smile

malteserszz we did the Liverpool Duck Tour a long while ago. Lots of fun, though we did keep afloat. Definitely good to go away, though we had a long weekend booked in Spain just before my op and went, then that Volcano ash hit and we couldn't get home.. Hmm

Trice, there's a lot to be said for mundane everyday things.

Gig, I love that track too, though do the housework to it, so not sure if it should make my list. Grin

Glad to hear DS avoided a blood test, MAS. Smile

Ooh, me too on Kate Atkinson - I'm mid way through. Took me an age to get into it, but am quite hooked now. Read that Rachel Joyce one - 'The Unlikely Pilgrimage of Harold Fry' before that. Bit annoying in places, but also strangely addictive. Smile

Where's Kurri?? Hope you're okay, lovely woman and just busy. x

malteserzz · 02/05/2013 19:57

Sorry I have a question I've just thought of. My mammogram showed the lump was 2.5cm and the ultrasound showed it was 2cm which is the most accurate and why do they do both ?

topsyturner · 02/05/2013 20:01

Jeez you guys have been chatty today !
Thanks for that Cop , now if they do it in purple leopard ...

Can't keep up with all the chat , but yippee for clear smears and no bloods for T .

Might have slipped and fell and opened a bottle of rose Grin

topsyturner · 02/05/2013 20:03

Malt don't get bogged down in tumour sizes etc .
It's easy for me to say , but just hang on in there and wait for your treatment plan .
Listen to Ambers stats , she really knows what she's talking about .

topsyturner · 02/05/2013 20:04

Gigs loving the ska , makes me feel all summery !

trice · 02/05/2013 20:10

Malt, size is not as important as type with bc. Can be big and lazy or small and vicious. Buggers the lot of them though.

Copthallresident · 02/05/2013 20:31

Malt Forgot to say I am another variation on the treatment sequence. I had biopsy, then PET scan and bone scan, then attempted Lumpectomy with full lymph node clearance (sentinel node was just coming in but as it showed up in my lymph glands on the PET scan they wanted to be conservative) but there was DCIS (Cancer in situ) on the margins of the tissue so then I had a Mastectomy. I then had a full investigation of my heart function because one of the chemo drugs Adriamycin can affect your heart.

Definitely don't get hung up on tumour size, mine was 1.7cm long but barely palpable in terms of it's width, more stick than lump, Consultant thought it had probably only just become palpable but no matter, it was still a 1.7cm tumour. Perhaps the mammogram and ultrasound were measuring from slightly different angles You will find some other things out about it in due course, how agressive it is, how fast growing and whether and by how much it is Estrogen or Progesterone Receptor positive and whether it is positive for Her 2 Neu so there is a lot that goes into the melting pot in terms of treatment. In fact my consultant says that my tumour was so Estrogen receptor positive I might now be recommended mastectomy and hormone therapy alone in spite of the fact my tumour was a nasty one and was in a lymph node, chemo threw me into menopause anyway so it was a slightly more drastic way of achieving the same end.

Ash Great you have the room you want! And yes DH thinking of Consultancy which hopefully will be more humane.

smee · 02/05/2013 20:47

Impressive falling, Topsy. Grin

That's interesting Copt - about just having mastectomy and hormone therapy. I sound similar in original diagnosis to you. Wonder if my lot would say the same.

Malt, there's a whole raft of things which affect what you're offered and between us on here we've had all of them I'd imagine. Just ask us lots and let us demystify it all for you. Knowledge takes a lot of the fear away imo. Smile

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