Tamoxifen 34 *the power of Sauron*

[MaryAnnSingleton]

new thread !!!

Thank you amber - I think you have hit the nail on the head, - I always tend to err on the side of excusing it, and there are plenty of thing that I know he struggles with - facial expressions, tones of voice, and certain social things etc, which I help him with as much as I possibly can - I know he finds those things v.hard.

But he is also an intelligent person and is in denial about this. I appreciate he needs to have time on his own, and relax - probably needs quite a bit more alone time than average, he does find social interaction a bit overwhelming sometimes - but he's lost the line between what is OK and what is an uncontrollable obsession.

I mean he does have other obsessions, but they are pretty harmless and I'm happy to accomodate them (things like having to pick up every screw or nail he sees on the pavement, or searching through endless internet photos of The Reading Pop festival circa 1980 to see if he recognizes anyone) - I don't mind any of that - it doesn't affect me in any way, or harm anyone else, and in fact it is part of what makes him unique and special. But this is different. And as you say rude and selfish.

The speaking over the top of others thing I get, though - when we hear speech, the left hand side brains have to rush over to the other side of the brain, convert it into pictures...stare at it...think about it...convert it back into a picture answer...rush back over to the left side of the brain with the picture answer...and try to match it up with the right words. All whilst not losing our place in the conversation...and maintaining good eye contact/body language. No chance in hell. Other peoples' brains do it all automatically, on the left side of the brain. Way way faster and better. So we can take bloomin' ages to think of a response.

But blaming others = no. We have to negotiate a fair compromise.

yes he does definitely struggle with that amber - and I am very conscious of not excluding him from conversations (when there are several people present, he can't pick up the signals and lulls so tends to talk over because he worries he'll forget what he wants to say or the talk will have moved on).

But actually I don't think in all honesty I monopolised the convo, - in fact DS did much of the talking and I just made encouraging noises
But I'll give him more time to have his say next time we go to DS's.

greetings all - sorry to hear you're not having much fun with your DH kurri. I don't think aspergers or autism is an excuse for playing video games to the point of exhaustion. I think is simply the addictive power of video games. Video games are extremely good at getting you hooked - all those apps that start free and then you have to pay to go up a level (only a small amount - but it adds up) feed on that addictiveness.

I don't know what to advise. I get hooked on games for a short time - then get bored - but they're jigsaws and word games on my ipad - rather than those dynamics affairs.

On news side, my results appointment was good news all round. The cancer plus margin all gone, no chemo and tamoxifen is up to me. They said I need to weigh up a marginal benefits against the side effects. And there was more decanting - 186ml of seroma ... .... the colour of a cote du rhone - or perhaps a very light pinot ..... anyone .... 186ml is definitely an acceptable unit...

Coorong, yay re results!!!!!!!

excellent results coorong !!

thank you - very relieved as I'm sure you'll understand.

Brilliant results coorong - big phew and is in order I'd say

Just checking for news of gigs and waving madly at everyone else :)
Mad dgc activity here-safari parks,play parks,soft play etc!
Yesterday dgs aged 9 and dgs aged 6 were playing at Attingham park while some older kids used some very bad language to get them to move.We [dd,dd-i-l and I] were sitting where we could see but not hear.
Dgs[6yo] asked dgs [9yo] what the words were! The older boy spelt them out and explained he wasn't allowed to say them ;of course the response was ,"Why?"....answer "I'm not sure.Let's ask Mum."
6 year old rushes up to mummies watching area yelling,"Mummy why can't xx say f or c?" No asterisks of course.There followed a complicated explanation which made us all realise that he didn't understand the term 'swearing' at all.When it was explained to him that the words were used when someone was being very rude or unpleasant his younger brother aged 4 said,"like if daddy makes a smell in bed and Mummy says,"that's not very nice is it daddy?"Well its like that with your talking not your bum!"
I was quietly hooting with laughter and 12yr old dgd couldn't contain herself.She was trying to persuade the little one to say it again so sh could record it on her phone but he wouldn't.

coorong that is a great result :)

Woo-hoo!! Am waving from toucan land, though we're flying home tomorrow. Thought I'd nab the chance to see how Gig is. What a sod and a half to be bumped like that. Will keep my (v.hot) toes and all else crossed for you Gigs xx

Waving madly to Figgy. We miss you! Good to hear you're well though. i had preventative mx, but had to talk them into it so ask me more if you want some hints. Am about to go onto Letrozole. How is it??

Coring, just spotted your excellent results. Yay for you. Hope you're celebrating.

Sorry can't post more, dodgy wifi, but we're Having a whole heap of fun. We've been on an extraordinary beach today with monkeys in the trees above. We almost got mugged by a gang of raccoons, but I shrieked like a girl shouted and they ran off. Wish you could all be here too. Back soon xxx

Waving to grey lady - love the story about your DGS - what a sweetie

Also waving to Smee - glad you are having a wonderful time - - bring me back a monkey please!

Figgy - I can't believe I missed your post - I am so bloody unobservant - think I cross posted with you somehow .
It's great to see you and to hear that all the Figgy household are well, happy birthday to MrFiggy - hope he has a great day, and good luck to the DS1 with his house and DS2 with his extra college year

Good luck with your check up and chat with consultant - do let us know how you get on - if I could have a preventative MX I definitely would, but it doesn't seem to be offered here (although I suppose it depends what type of BC you have had as well) - but I hope he agrees if that is what you would like and it would make you feel reassured

Gig - hope you have had op. and are snoozing cosily in bed xx

Happy birthday to Mr figgy and v lovely to see you figgy - thanks for saying hello to lovely Walberswick
smee !!! Sounds as though you are having an excellent time indeed
Waving to greylady !
Am excited as friends from my old home are coming tomorrow

Yay for coorong's results!

Op done -went ok but was the most painful thing in my life after and had massive anxiety attack which drove up my blood pressure. So sat here feeling very low and fragile.

Gig - you poor thing - I'll put some relaxation stuff on the trolley ...... whale music anyone ...... and a big fluffy cushion or gentle puppy to stroke

Gig that sounds horrible and scary you poor thing. I can see why you were hit with anxiety if you had terrible pain that you weren't prepared for, it must have fel like something had gone wrong. It's good news that it went well though.

hello, just popped in for a quick update. D relative had positive results yesterday - all removed, healing well and lymph nodes clear. Will have precautionary radiotherapy, so now awaiting radiology appointment, then 5 year course of Arimidex (sp?) , does anyone have any advice re. side effects or q to ask please.

oh poor gig sounds awful...soothing stroke from me. Are you home yet ?
LIZS that sounds like good news- no experience of arimidex though.

Gig, gentle hug from me too and
Lots of really lovely things needed for you today now.

Lizs, not sure if this helps -
www.nhs.uk/medicine-guides/pages/MedicineSideEffects.aspx?condition=Breast%20cancers&medicine=Arimidex&preparation=

gigs I am so sorry they left you anxious and in pain. Are they helping you with that? If not we are available for worries/ ranting / offloading / distractive pain relief with tasteless and poor humour/ artisan snacks. At least op is over with but not good that you are feeling fragile and low. If you need healing licks I could always bring Sauron's minion up..........

Gig - you poor thing - that sounds scary and horrible How is pain level now - hope it is under control for you xx

LIZS - that sounds like v.good news for your relative, I'm not on arimidex, but have a couple of friends who are - as far as I know one of the side effects is possible osteoparosis - so they do bone density checks before you start and then regularly to make sure it isn't having an effect.
I think it is used only for post menopausal women - so I would guess that means it doesn't have any of the horrid menopausal effects that tamoxifen and others do.

Waving to all xx

Very gentle hugs to gigs. Hope your pain eases soon. Was it the actual angiogram which was painful or the after effects? My angiogram went in via my wrist and it was unbelievably painful - seemingly ladies have smaller arteries which mean they can go into spasm. . Thinking of you loads and hope next part isn't too painful.

Waves to figgy glad all going well with you.

smee sounds like you are having a whale of a time. Did you ever tell us where you have gone or have I missed it?

Sorry DH is being a pain kurri. Hugs to you too.

Just in from work - week 1 done so off to walk the dog before the school run.

Bit of both gracie- after effects then if kicked off nerve pain in my arm. Was worst experience of my life painwise and felt completely traumatised as wasn't expecting it. Made me wonder what op proper will be like - did chat to anaesthetist who was reassuring.

Hugs to gig grrr about the pain.