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Bit of Mumsnet advice please

65 replies

twiglett · 21/01/2004 17:16

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twiglett · 21/01/2004 18:58

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tamum · 21/01/2004 18:59

Gulp fio, we're reaching the outer limits of my knowledge here (and well beyond). I just did a quick search on Pubmed, and got 41 papers about atypical TB and transplantation, and quite a few of them were about heart/lung transplants. It doesn't sound all that rare, but it may be much less so in the UK. Your poor, poor sister. I'm so sorry.

Deactivated polio vaccine sounds like great advice from CD!

CountessDracula · 21/01/2004 19:03

Twiglett just have to put dd to bed, will be back to answer in more detail later....

fio2 · 21/01/2004 19:04

twiglet sorry I have been so selfish here please accept my appologies. I bet he will love getting out of dirty nappies though if he's anything like my dh!

zebra · 21/01/2004 19:06

Sorry if I didn't read the thread thoroughly enough, but....

Twiglet -- why can't your DH be tested to see if he is immune to Chickenpox? I was tested, just a blood test to me.

Presumably the leaflet is just nervous about CP because it's A) common and B) often serious in adults and would be more so in an immune-suppressed individual...?

Tamum - I know you're more knowledgeable about these things than me, but there was definitely an article in New Scientist a year or so ago about how shingles was less likely if you had had chickenpox, and had regular exposure to chickenpox (this was all in the context of the new CP vaccine and why it may cause as many deaths from shingles as it saves from CP). Anyway, seemed the recurring exposure kept up the concentrations of chickenpox antibodies in an already immune person, making it less likely they would ever get shingles. So, wouldn't that mean that if Twiglet's DH does get a blood test saying he's immune to CP, that he'd be better off if Twiglett's DD does get it, thus giving his system a boost in CP antibody production, and reducing his risk of getting shingles?

fio2 · 21/01/2004 19:06

tanum was my sister one of the patients??... weird though she didnt die from the tb..

twiglett · 21/01/2004 19:07

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fio2 · 21/01/2004 19:08

maybe you can answer my questions then zebra!...only joking I only get depressed...

fio2 · 21/01/2004 19:10

thanks twiglet I think I might actually I have a rare skin condition also! - although it is only cosmetic, and dd has development delays that are undiagnosed at present. So yes I will definately look into it

zebra · 21/01/2004 19:13

I just have bad skin, full stop.
But a good figure... hey, nobody gets it all ... 'cept maybe Hollywood starlets & they pay for the best make-up money can buy.

Lou33 · 21/01/2004 19:14

I am immuno suppressed as well, because of drugs I take for Colitis, and was given the same advice. I've had chicken pox though. I was also advised to have a flu jab every year, it might be worth seeing of your dh should have that too.

fio2 · 21/01/2004 19:15

where is my good figure then?.. blumin heck! I have nice teeth look

Lou33 · 21/01/2004 19:26

Except for that bit of spinach you have trapped Fio!

fio2 · 21/01/2004 19:31

hey cheeky

Lou33 · 21/01/2004 19:37
Grin
tamum · 21/01/2004 19:49

That's interesting zebra, and I'm sure you're right. My knowledge is very out-of-date, I haven't done any virology since uni.

Fio, I don't know, sorry- they never say patients names, anyway

Jimjams · 21/01/2004 20:39

interesting zebra- I very recently came across a similar discussion about immunity to measles. If you have measles (or MMR- and it has worked) then you need regular top ups of exposure to prevent immunity waiving. The authors argument being that vaccinated children would do well to be exposed to unvaccinated children harbouring measles as this would give their vaccine generated immunity a boost.

Jimjams · 21/01/2004 20:40

oh twiglett gave my view to the polio question on the SN thread. (Basically agreed with tamum).

suedonim · 21/01/2004 20:49

THanks for that website, Twiglett, it's very informative. Dh has had three types of psoriasis, plus the yukky nails and the arthritis, too. Our dr said they couldn't do anything about the arthritis but from this thread and the website it seems he ought to be getting some sort of treatment. Hmmm.

twiglett · 21/01/2004 21:21

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CountessDracula · 21/01/2004 22:26

Sorry Twiglett, got waylaid by dh coming in earlier than expected and about 400 phone calls

OK you can get deactivated jabs from any gp, you have to order them in advance

I can't remember which others (than polio) are live, but one of the travel ones (Hep A, Cholera, Typhoid etc) are def live and I had to have a special one ordered each time. I think that the malaria prophelactics eg larium, chloraquine, paladrin etc are fine though.

I should just make sure that your dh checks with his gp before having any jabs.

Oh and fyi I had shingles a couple of months ago and no special problems presented - the gp did call the drug place to see if I needed double the dose of the anti viral drug Acilovar (sp?) but they said not.

Any qs pls email me or post here and I will do my best to answer!

CountessDracula · 21/01/2004 22:28

Oh and as far as I know the polio jab as opposed to oral live vaccine is just as effective, sadly it does mean more jabs which is not nice for a baby but better than getting polio. BTW I think if he just avoids changing nappies for 3 weeks it's not a prob but do check with your doctor first.

tamum · 21/01/2004 22:34

Suedonim, I can't remember exactly where you are in Scotland, but we had a seminar a couple of months ago from a professor of Rheumatology in Glasgow who was really, really good. Very go-getting, very sympathetic, top-notch science. His website is here , and he has an interest in psoriatic arthritis. If it's not too far I would get your dh to request an appointment with him.

pamina3 · 22/01/2004 09:10

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suedonim · 22/01/2004 10:06

Twiglett, Tamum, thanks very much! Dh saw a rheumatologist where we used to live but the HP's here don't seem very interested in his condition. Also, dh is a bit macho when it comes to taking pills etc and won't listen to me (outrageous!). However, I have managed to get him to take ibuprofen on a regular basis and he admits grudgingly that it makes it easier to get in and out of the car and bed and so on. I don't think he realises it but the arthritis is definitely restricting what he can do with his hands now - can't manage fiddly household chores and suchlike.

No private health care, unfortunately, but I can feel a nagging session coming on to send him back to a different GP! Thanks again.