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Pt 7 (Feb13) Any old prolapse! Uterus/womb prolapse, rectocele, cystocele, enterocele, urethrocele, incontinence, pelvic floor, anterior and posterior repair, TVT etc

994 replies

WhoKnowsWhereTheTimeGoes · 20/02/2013 19:05

This is thread 7 (again - see below) of a long-running series of posts from ladies suffering from pelvic prolapses to support each other through the process of diagnosis, repair and recovery.

With apologies for confusion in thread numbers - the previous thread was called part 7 but it was actually the 6th thread.

Here are the previous threads:

Thread 1
Thread 2
Thread 3
Thread 4
Thread 5
Thread 6

Info from BBC Health

What is a pelvic prolapse?

As the muscles, ligaments and supporting tissues in the pelvis become weaker, they are less able to hold in the organs of the pelvis such as the womb (uterus) or bladder.

Gravity pulls these organs down and, in the more severe cases, may appear through the entrance to the vagina.

A variety of problems can occur, depending on where the weakness lies and which organs are able to descend, but in every case there is some degree of prolapse of the vaginal wall, which begins to invert (rather like a sock turning inside out).
Prolapse of the womb or uterus is the most common prolapse, affecting as many as one in eight older women to some degree
Prolapse of the bladder, known as a cystocele, is less common.
Prolapse of the urethra (the tube that carries urine out of the bladder) is known as a urethrocele.
Prolapse of the intestines is quite rare, and known as an enterocele or rectocele.

Symptoms

Symptoms depend on which tissues descend, and how severe the prolapse is.

They may include:
A sense of heaviness or pressure in the pelvis.
The appearance of a bulge of tissue in the genital area, which can be quite alarming, and is often red and sore.
Urinary problems, such as having to urinate more frequently, feeling the need urgently, being incontinent (losing control of the bladder) or, conversely, being unable to pass urine when you need to.
Pain in the pelvis or lower back.
Sexual problems, including pain and decreased libido.
Constipation.
Vaginal discharge or bleeding.

Treatment and recovery

Once a prolapse has developed, surgery to fix the affected organs is usually the only way to cure it effectively.

However, another option is to use a device known as a vaginal ring pessary. This is rather like a contraceptive diaphragm or cervical cap. It's made of silicone or latex, and placed in the vagina to push back the prolapsed organs and hold them in place. Many women happily manage their prolapse this way.

OP posts:
Tr0ubled · 11/03/2013 08:31

Thanks cardamom I'm pretty sure there's a simple explanation, googled numbness post op last night and swelling compressing nerves comes up as an option, reckon that's what I've got.
Pooing is still hell unfortunately, and will be until the bottom op stuff has healed apparently. My surgeon thinks that because he has had to virtually reconstruct my pelvic floor it is going into spasm occasionally, causing me the intense pain. Because when I poo I get the backside pain I then tense and bring on the spasm, which on top of the other pain is giving me agony. Strangely just having a reason why has helped a little, I am practicing your 'hypnopooing' each time I go and knowing the pain will pass helps me focus.
Sorry to read that you're feeling worse now than post op. Are you starting to do too much? I would imagine there is a danger around 3/4 weeks of overdoing it as you start to feel better. Guess its a vicious cycle.

Apologies for not responding to other posts, I've been a bit consumed with my pain :( . Will be back soon.

edwinbear · 11/03/2013 09:32

Tr0ubled glad to hear you got to see your consultant. Things can only get better from now, as the nurses kept telling me. I've not had tingling but maybe I have that still to come.

roseanna1 · 11/03/2013 11:31

Hi Troubled...I had a similar numbness after the posterior repair. Lasted about 3 weeks and cons. put it down to nerves being severed. They healed back together again and sensation definately returned at that point...ouch! lol

Re the tvt query - was it tvt or tvto you had done (sry on my phone and can't scroll back to see the name of the person who asked)?

RF67 · 11/03/2013 16:29

Hi, Roseanna1 - It was TVT.

roseanna1 · 11/03/2013 17:42

Thanks RF....reason I asked was that the tvto goes more from side to side than the tvt, which is more centrally 'slung' iykwim...in any case it could be from nerve irritation. Do you have a follow up consultation soon? If not, you could try calling the ward you were booked into to see if they can give you any advice?

RF67 · 11/03/2013 21:35

going for a second opinion. Pain only started 5 weeks post-op and feels like a ripping pain, really intense but not constant. Only kicks in after I've been on my feet for a few minutes or meeting kids at school gate. Agonising once it starts but can be pain free all day just sitting at the computer at work! Consultant has no idea of the cause, to be honest, so going to see someone privately (no health insurance!) to see if they can shed some light. X

roseanna1 · 11/03/2013 21:47

Best of luck rf...these things are great when they work, but seem to cause all sorts of problems when they go wrong. Good to get it seen to quickly though, as my understanding is that they get embedded in the scar tissue very soon. Hugs x

RF67 · 11/03/2013 22:44

Thanks, Roseanna. I think! :-)

roseanna1 · 11/03/2013 23:24

Sorry rf...just reread my post and it sounded a bit scarier than I'd intended! All I mean is, best get it looked at sooner rather than later to give yourself the best chance of a speedy recovery :)

Tr0ubled · 12/03/2013 08:30

edwinbear how are you feeling? Are you still mostly bed bound or managing to get up and about a little? And how's your pain? All going in the right direction I hope. I'm more bed bound than I thought I would be 11 days post op; I can get up and potter but only for about 10 minutes before it all hurts too much.
I spoke to my colorectal surgeons nurse about the numbess yesterday and she reassured me it's perfectly normal as tissue and muscle starts to heal. Such an odd feeling! Wish it was numb enough to mask the pain though!

RF67 I'm afraid I have no experience of tape but I hope they fix it for you really soon. Certainly can't be right to be in pain within minutes of standing, but it could however be a perfectly normal stage of your healing if so for the moment you need better painkillers? I am taking tramadol, diclofenac and paracetemol throughout the day and only just keeping my pain at bay! Don't be afraid to take what you need to help you through this temporary stage in our lives.

multimum4 · 12/03/2013 11:02

Just been for 6 weeks consultant check and everything is looking good with my repairs.He said that as it had been a 'massive' enterocele it wasn't unusual to have some granulation which I had treated on the spot with silver nitrate. Anyone else had this?

edwinbear · 12/03/2013 11:38

Hi tr0ubled. I'm pretty good thanks, 7 days post op and I'm pottering about OK. I can be on my feet for maybe 20 mins at a time before I need to lie down again. My stitches are still pretty uncomfortable if I sit though. Pain wise, I'm not clock watching to see when I can next take my painkillers, I'm taking some ibuprofen about lunchtime and a Tramadol before bed. I'm still dosing up on lactulose though, as I'm finding it's having the rather lovely side effect of allowing me to eat biscuits all day and not put any weight on Grin. How are you getting on with your new meds? Is the pooing getting any better at all? I think if 10 mins is the maximum you can manage, then go with it, your body knows what it needs to heal and it's still very early days yet.

Tr0ubled · 12/03/2013 11:50

Hi edwin, I guess I was just expecting a little more. It's bloody boring lying in bed! The pooing is still horrific however the pain subsides to bearable in about 15 minutes now as opposed to taking nearly an hour, so a definite improvement (keeping positive!). On the plus side I don't have any discomfort from my stitches, strange how we can all have a different experience. My surgeon did say he was going to hide all my stitches, I have no idea how he did this but I've had a look and there's not a stitch in site and that includes on my perenium which has been repaired Confused!!

multimum glad your appointment went well. Not sure i know about granulation, what exactly is it?

edwinbear · 12/03/2013 14:58

tr0ubled hats off to you for being brave enough to have a look! I haven't even been brave enough to have a feel yet, the thought of looking makes me come over all funny.

cardamomginger · 12/03/2013 21:24

Well done to everyone who's had check-ups.
Tr0ubled - I have no idea how he does it either!! I had a big re-build in my second surgery and tighten up this time round, and neither time was there anything visible externally.... Strange...!!
RF - sorry you are in so much pain Sad. A second opinion sounds like it might not be a bad idea.

After my good news last week, I have had a minor setback in the form of a bacterial infection. I have pus and everything Grin. It feels like I am sitting on broken glass. I had an appointment with surgeon today and am on antibiotics and am back on the voltarol. Might self-medicate with a large Wine as well...

WhodveThought · 13/03/2013 04:38

Multimum4 -I had some treatment with silver nitrate (although my GP thought he was using it to treat polyps...they were NOT polyps, they were exposed veins from a tear omg!)...it was painful for about a day and then fine. My granulation tissue was removed surgically, no problems. I had a lot of discomfort from that granulation tissue, so I hope this treatment gets rid of yours for you!

Dahlialover · 13/03/2013 09:40

I definitely had external stitches for my rebuild - it was the episiotomy I didn't have when I had my children :(. I think there was some skin cut out - it looked like my vagina was all sewn up with an overlocker! Quite a shock!

The stitches dissolved quickly and it looks fine now.

LovesBeingWokenEveryNight · 13/03/2013 22:29

Dahlia - sounds like embarrassing bodies the other might. The women was so happy after you could just see it in her.

LovesBeingWokenEveryNight · 13/03/2013 22:32

Re hiding the stitches this might sound a little strange but I've done this in seeing to close say a cushion or doorstop and can see how this would be possible. Would be very hard to explain but if you fancy looking up invisible stitching on YouTube you might get an idea.

LovesBeingWokenEveryNight · 13/03/2013 22:34

Best rushes to all of you still recovering.

Just wondered about some advice on exercises what best to avoid what really good etc.

WhoKnowsWhereTheTimeGoes · 13/03/2013 23:12

Loves low impact is best, walking or swimming. Running only with care to minimise impact. Sit ups and strenuous core exercises eg Shred are best avoided. Pilates good but avoid exercises where both kegs are raised. Google Michelle Kenway for more advice.

OP posts:
LovesBeingWokenEveryNight · 14/03/2013 06:17

Thanks. I had my worst 'episode' after having to lift 4 yr old dd a lot and doing just dance on the wii Sad was a fast forward of what life could be like do really want to avoid it but have to start doing something.

MrsAnnie · 14/03/2013 12:06

Loves I am just over 4 weeks after posterior repair and am now doing one hour of walking each day which seems fine. I'm keen to start doing something more aerobic but certainly don't feel ready for high impact. Thought that cycling might be good - as long as I don't fall off!

Other than that its just keeping on top of the constipation. It was fine at first but took my eye off the ball and now day 4 without any sign - gulp! Can't really understand as I have been munching figs and dried fruit all day. DH says I need a pint of real ale, might try that tonight.

I'm back to work next week but its been a great help to have had input from this community and I wish all you ladies well in your recovery.

Dahlialover · 14/03/2013 14:31

Miss Annie - I am in the same boat 8 1/2 weeks post op. It was really good for the first 3 weeks, then I got an infection etc and it seems to have gone downhill.

Mine is definitely hormone related and I have just had my first period for 6 months with all the other symptoms, so hoping it will improve now.

I am eating soluble fibre, water, fibogel, bactera capsules, and now have added wheat bran. I am sitting forward on the loo to straighten my rectum, doing pelvic release exercises, etc etc ......... and have even seen a physio with a special interest (it was good to see her, but my intestines are still on a go slow)

Hope you have better luck :)

Loves Had a look at embarrassing bodies - I did not have epis with babies, but had the muscle tearing which was not stitched. The repair gave me the 'episiotomy' but there is no pain, not even where the muscles have been restitched :D - it has healed well and I am pleased

Tr0ubled · 14/03/2013 15:34

How soon do stitches start to come out?
I'm a little concerned as I'm only 12 days post op and lost one yesterday and another just now.
When my DS was 6 weeks I had a revised episiotomy and it all broke down within a week, mainly due to a hideous infection :( . I've been really careful this time, especially with not having baths so as not to soak the stitches and dissolve them too fast. But I'm nervous now they're starting to come out that its too soon for any significant healing to have happened and ill be back where I was before :(