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Pt 7 (Feb13) Any old prolapse! Uterus/womb prolapse, rectocele, cystocele, enterocele, urethrocele, incontinence, pelvic floor, anterior and posterior repair, TVT etc

994 replies

WhoKnowsWhereTheTimeGoes · 20/02/2013 19:05

This is thread 7 (again - see below) of a long-running series of posts from ladies suffering from pelvic prolapses to support each other through the process of diagnosis, repair and recovery.

With apologies for confusion in thread numbers - the previous thread was called part 7 but it was actually the 6th thread.

Here are the previous threads:

Thread 1
Thread 2
Thread 3
Thread 4
Thread 5
Thread 6

Info from BBC Health

What is a pelvic prolapse?

As the muscles, ligaments and supporting tissues in the pelvis become weaker, they are less able to hold in the organs of the pelvis such as the womb (uterus) or bladder.

Gravity pulls these organs down and, in the more severe cases, may appear through the entrance to the vagina.

A variety of problems can occur, depending on where the weakness lies and which organs are able to descend, but in every case there is some degree of prolapse of the vaginal wall, which begins to invert (rather like a sock turning inside out).
Prolapse of the womb or uterus is the most common prolapse, affecting as many as one in eight older women to some degree
Prolapse of the bladder, known as a cystocele, is less common.
Prolapse of the urethra (the tube that carries urine out of the bladder) is known as a urethrocele.
Prolapse of the intestines is quite rare, and known as an enterocele or rectocele.

Symptoms

Symptoms depend on which tissues descend, and how severe the prolapse is.

They may include:
A sense of heaviness or pressure in the pelvis.
The appearance of a bulge of tissue in the genital area, which can be quite alarming, and is often red and sore.
Urinary problems, such as having to urinate more frequently, feeling the need urgently, being incontinent (losing control of the bladder) or, conversely, being unable to pass urine when you need to.
Pain in the pelvis or lower back.
Sexual problems, including pain and decreased libido.
Constipation.
Vaginal discharge or bleeding.

Treatment and recovery

Once a prolapse has developed, surgery to fix the affected organs is usually the only way to cure it effectively.

However, another option is to use a device known as a vaginal ring pessary. This is rather like a contraceptive diaphragm or cervical cap. It's made of silicone or latex, and placed in the vagina to push back the prolapsed organs and hold them in place. Many women happily manage their prolapse this way.

OP posts:
gingeroots · 12/09/2013 23:03

Thank you Footle and Cardonom - sorry to have abandoned you .

Success ( surely there won't be more ? ) achieved in nick of time to save me using suppository .
As far as I can tell the Laxitol and lactulose do soften the stuff near the exit !

Didn't like to tell DP that I had to rush off and update my poo status on line . we'll have to work up to that !

Very many grateful thanks for support and listening Smile

Footle · 12/09/2013 23:39

This reply has been deleted

Message withdrawn at poster's request.

cardamomginger · 13/09/2013 09:40

Rectocele repairs should be done from the vaginal side.

RainInTheSky · 13/09/2013 10:58

Cardamon, Troubled and Footie. Thanks so much for your replies. I actually got my GP to refer me to a colorectal surgeon but it turned out he no longer saw patients in my area. That's why I posted on this forum looking for recommendations for a surgeon.

It appears from what you are saying that I have had a lucky escape and that a gynaecologist is the way to go to treat a rectocele. I also have some urine incontinence which I am hoping is just down to weak muscles from the recent birth of DS but hopefully a gynaecologist can check this at the same time as they look at the rectocele.

Troubled were you also happy with your surgeon?

gingeroots · 13/09/2013 12:50

You see, they work even if you don't insert them. This is homeopathy at its best.
Smile that's my type of medicine !

Thanks for tip about movicol am and pm - I shall be taking no chances .
I have Laxido prescribed ,apparently apart from mild stimulatant and softner also has some Dioralyte type properties to stop dehydration and to keep electrolytes in balance .

New term/autumn and so much to learn ....what fun !
( I may be a little euphoric having escaped poo hell )

Hmm at husband and Kuwait Footle

WhoKnowsWhereTheTimeGoes · 13/09/2013 12:56

It's true about the suppositories - I bought some for the aftermath of my rectocele repair and all it took was for me to get one out of the packet and look at it and my bowels started performing of their own accord.

Rain - you want a urogynaecologyst, they're the ones who specialise in this stuff. Perhaps look at the website of your local hospitals and there might be some useful info on who's who there. I was happy with my urogynae team (Hampshire).

OP posts:
cardamomginger · 13/09/2013 15:12

Movicol is great Grin. If it all gets really backed up and desperate, a Fleet enema will do the trick. Not for the faint hearted, but provides an astonishing sense of relief, that, for me, bordered on the zen-like.

gingeroots · 13/09/2013 16:39

Oh I can relate to the zen-like relief .

One "tip" I learnt from desperate googling last night was that a sports cap drinking bottle can be deployed to administer an enema if nothing else to hand .

Just thought I'd pass on that pearl of wisdom ,you never know ....

cardamomginger · 13/09/2013 16:49
Grin
Tr0ubled · 13/09/2013 18:52

rain I think I'm happy with my surgeon; sounds silly but I'm not sure what another surgeons work would look/feel like so there's no one else to compare him to! But as I mentioned above I'm having such ongoing issues with my pelvic floor and bowels that at the moment I just feel sorry for myself.
However his bedside manner was brilliant and he put me totally at ease. He repaired an entrocele, cystocele, rectocele and did a perenioplasty for me and physically I am able to comfortably have sex (mentally I'm not ready to do it much just yet!) and according to my most recent defecating proctogram my rectocele is almost gone.
I would suggest seeing a couple of consultants though if you can and then go with your gut.
I was initially meant to have my surgery on the NHS but was cancelled on the day. The lady UroGynae I had there was very keen to tidy things cosmetically at the same time as carrying out my repairs. She totally understood that I had lost all my confidence and that look was as important to me as function. Sadly I'm not sure my male consultant understood that quite as well and although he performed a perenioplasty (it was needed as my perenium was shot from grade 3 episiotomy scar that had broken down) he didn't carry on the repair internally and so I'm neat outside but not in, therefore I still hate to let my DH touch me intimately. However I'm sure the consultant had the skill and I actually blame myself more for not highlighting how important it was to me.

Gosh what a rambling response! Please feel free to PM me if you want any more info.

RainInTheSky · 13/09/2013 21:04

Troubled, thanks so much for your reply. I have made an appointment with this surgeon and will see what he has to say.

There is a bit of me that feels things aren't actually that bad at the moment (at least not in comparison with the issues you and others on this thread describe, massive hugs for your on going problems) so that perhaps I shouldn't run the risk of making them worse by having an op.

I also have an NHS referral for physiotherapy and am frantically doing pelvic floor exercises as I type this.

On the other hand it would be so nice to be able to use tampons and have a normal sex life and learn to play tennis without being concerned that my insides might fall out and not have to glug on lactulose at the first signs of constipation or run for the loo when I feel a bowel movement coming and not have knickers that smell of wee.

Really hoping the last symptom is just some temporary weakness after my last delivery which is going to get better with some physiotherapy rather than a cystocele but I guess I need to get that checked.

gingeroots · 14/09/2013 16:42

Crikey Rain things aren't actually that bad at the moment- they sound pretty bad to me .

And while I know what you mean about others being worse off ....well that doesn't actually make your stuff any easier to cope with ,does it ?
I often think along those lines but I only end up still feeling cr*p but with guilt and wimpishness thrown in Smile

What a whole load of perfectly ghastly issues you ladies have .So debilitating and ....undermining to one's confidence . Plus you can't even discuss it much in RL . Or get as much sympathy and attention as some of us ( me for instance ) get for other health conditions .

Before I had my TVT my 3 year old would sometimes say to me when I snuggled up with him to read bed time stories " Mummy why do you smell funny ? " A low point indeed .

No doubt I'll be calling on your knowledge and kindness when I get around to tackling my bulging perineum . Meanwhile I think I'll be reading and learning .

Lots of Flowers to anyone feeling low on this grey cold autumnal saturday . Which I actually quite like - makes lying in bed v.cosy !

Footle · 14/09/2013 19:14

This reply has been deleted

Message withdrawn at poster's request.

WhoKnowsWhereTheTimeGoes · 14/09/2013 22:09

Rain - I had my op last year on the basis of all those things you have mentioned and nothing more really. I'm in my 40s and realised it wasn't going to get better by itself, only worse, it was restricting my life and like Footle wondered if NHS cuts might mean I didn't get the chance later.

OP posts:
RainInTheSky · 15/09/2013 16:50

Thanks to everyone for the advice. There are lots of good reasons for me to deal with this now. I am still pretty young. I have completed my family. I am on maternity leave so I don't have to deal with getting time off work and I have private health insurance through work which might not be the same if I change my job. Anyway I am booked into see the surgeon so I will see what he has to say.

cardamomginger · 15/09/2013 23:07

Am I ever going to be normal again?
Feeling (again) like I should just divorce DH so he can have a chance at a normal relationship and to put an end to the anger, the resentment, the guilt, etc etc. Sometimes it feels like it would just be the simplest answer.

gingeroots · 16/09/2013 11:34

cardamom ,sweetheart .
These are your thoughts ? Not coming from DH ?

Understandable if coming from you . Can you just hold tight ,try and wait for these feelings to pass ? Can you ask GP for help - AD's and or therapy ?

Meantime >>hugs

cardamomginger · 16/09/2013 12:16

Thank you. No, this is all me. DH is so calm and patient and supportive. There are other problems and stresses in the relationship that don't help the way I feel and that don;t help when it comes to intimacy. But in times of crisis, including this extended 3-year long crisis I'm in, he is great.

I'm having trauma therapy, and have been for a year. I'm doing better than I was, but there's still a long way to go. I don't think ADs are the answer - I've got PTSD not depression. I'm just so, so tired of it all and just want it to end.

gingeroots · 16/09/2013 16:20

I'm so sorry that you're coping with PTSD on top of everything else cardamom .

Obviously you know more about yourself than me ( >>stating the obvious

Westcountry · 17/09/2013 14:49

Hi everyone ,

I followed this thread throughout my recovery from anterior and posterior repair on 04/06 - I had the surgery done privately.

I have had some really worrying aches and pains and am wondering if anyone can offer and support or advice , I am not sure what I am feeling is normal.

Following surgery I had a lot of pain .. Like a hot poker in my back passage it was agony , it was radiating from one particular spot , everywhere hurt though but not like this bit.

Now 14 weeks on I've had pain , discomfort and most recently very strange pains , it feels like a pulling between my rectum and the rear repair . I get tingly ,throbby, hot pains in my buttock and tailbone and it's just about driving me nuts. I've had anti biotics several times , taken thrush meds and latest swab shows clear and yet still this pain. Maybe tmi but just recently I've also noticed a change in sensations in clitoris - I'm scared !

I am just about at work , I returned at 11 weeks and am on phased return

I am going to see the surgeon next week

Has anyone experienced any of these symptoms ? I wish I hadn't had it done :(

Bladderama · 17/09/2013 19:35

Cardamom so sorry to hear that you are feeling low Sad you have been on such a long journey with this.

Rain I would happily recommend my surgeon but am oop North not in London.

Ginger glad that you had some progress and hope that you are resting up and recovering.

Good to hear from you Summertime and that things are better overall

Westcountry welcome to the thread (sorry if you have posted before now) and also sorry to hear that you are still uncomfortable. I can definitely relate to the buttock pain. If you are only 14 weeks post surgery then this is still very soon. I would mention the change in sensations to your consultant next week and try and be as clear as you can. It did take me quite a long time to be unaware of the tingling and pains from the repairs. My consultant said that it would be at least 3 months post surgery before I would be fully comfortable again. Its awful all the worrying isn't it?

I am still a very worried lady. The back ache and pulling sensation has been bothering me for weeks. I am struggling to both sit or stand for any length of time. After being pain free of this for a year I have no tolerance for it anymore. I am very worried that I have compromised the repairs. More waiting and worrying, I cant sleep for the pain never mind the worrying. GAH.

Footle · 17/09/2013 19:56

This reply has been deleted

Message withdrawn at poster's request.

Westcountry · 17/09/2013 21:47

Thankyou ladies for your responses , I'm feeling a little overwhelmed with the messages I have received .. So kind

It's been a lonely journey and the fear of permanent damage , no sex life and pain has been all consuming for a while

Ill see what the consultant says next week , but it really feels like from day one a nerve has been trapped ,caught , pressed etc.. It feels a little like an abcess at times that is caught between my vagina and rectum, I'm ready to beg him to release the repair for some relief ! The bladder repair has been a doddle , it's all the posterior repair

Tr0ubled · 17/09/2013 23:20

westcountry it could also possibly be muscles in spasm. This is what I'm told has happened to me and I have been seeing a number of physios who deal specifically with trigger point massage down below (what's one more person looking at my fanny!!). It makes sense in that where there is a muscle there can be tension and pain - if you've ever put your back out you'll understand how bad it can be. All too often I feel as if someone has kicked me so hard in the perenium - it's difficult to tell if the pain is within my vagina or rectum. I haven't ever lost sensation but I did get lots of tingling and numbness from about 8 weeks which I believe is the nerves re awakening as the swelling subsides.
I hope your consultant has some answers for you. Good luck.

cardamom I'm so sorry that you're feeling so down. Please keep posting here, you know yourself what a great source of comfort this board can be. I often feel that this journey is one of the loneliest to take in RL and am so thankful there is somewhere I can come and discuss it all. ((Hugs))

bladder I can't believe you're suffering again, my heart goes out to you. Hope it can be resolved soon and you can be pain free once more. Do you have some good painkillers for night time? My GP has been very good at prescribing me something a little stronger and also some low dose diazepam for when its really bad as its the only thing that eases my spasm.

gingeroots · 18/09/2013 17:10

I'm not familiar with everyone on this thread but golly what a lot you all put up with so sending hugs ,strength and healing vibes to all .
Especially to those having trouble coping like "Cardomom.

Westcountry Footle is right about post surgical healing .My ( very nice ) surgeon even looked a little hang dog when I talked to him about all my numb bits ( not down below in this case ) and said that surgeons didn't really like to call it nerve damage as it implied they'd not done their job well .But he said there are hundreds of nerve endings that get " disturbed " and that it's inevitable .

Also ,I don't know if any way the same of course but I had bad pain weeks after surgery ,still have but now have stronger painkillers ,which an ultra sound has indicated is basically a bruise/some bleeding from surgery . Apparently this can be more accurately pin pointed by CT scan ,but normally the body just re absorbs the blood .
But can cause pain ,hardness ,pulling .

Maybe something like that going on ?