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Pt 7 (Feb13) Any old prolapse! Uterus/womb prolapse, rectocele, cystocele, enterocele, urethrocele, incontinence, pelvic floor, anterior and posterior repair, TVT etc

994 replies

WhoKnowsWhereTheTimeGoes · 20/02/2013 19:05

This is thread 7 (again - see below) of a long-running series of posts from ladies suffering from pelvic prolapses to support each other through the process of diagnosis, repair and recovery.

With apologies for confusion in thread numbers - the previous thread was called part 7 but it was actually the 6th thread.

Here are the previous threads:

Thread 1
Thread 2
Thread 3
Thread 4
Thread 5
Thread 6

Info from BBC Health

What is a pelvic prolapse?

As the muscles, ligaments and supporting tissues in the pelvis become weaker, they are less able to hold in the organs of the pelvis such as the womb (uterus) or bladder.

Gravity pulls these organs down and, in the more severe cases, may appear through the entrance to the vagina.

A variety of problems can occur, depending on where the weakness lies and which organs are able to descend, but in every case there is some degree of prolapse of the vaginal wall, which begins to invert (rather like a sock turning inside out).
Prolapse of the womb or uterus is the most common prolapse, affecting as many as one in eight older women to some degree
Prolapse of the bladder, known as a cystocele, is less common.
Prolapse of the urethra (the tube that carries urine out of the bladder) is known as a urethrocele.
Prolapse of the intestines is quite rare, and known as an enterocele or rectocele.

Symptoms

Symptoms depend on which tissues descend, and how severe the prolapse is.

They may include:
A sense of heaviness or pressure in the pelvis.
The appearance of a bulge of tissue in the genital area, which can be quite alarming, and is often red and sore.
Urinary problems, such as having to urinate more frequently, feeling the need urgently, being incontinent (losing control of the bladder) or, conversely, being unable to pass urine when you need to.
Pain in the pelvis or lower back.
Sexual problems, including pain and decreased libido.
Constipation.
Vaginal discharge or bleeding.

Treatment and recovery

Once a prolapse has developed, surgery to fix the affected organs is usually the only way to cure it effectively.

However, another option is to use a device known as a vaginal ring pessary. This is rather like a contraceptive diaphragm or cervical cap. It's made of silicone or latex, and placed in the vagina to push back the prolapsed organs and hold them in place. Many women happily manage their prolapse this way.

OP posts:
NeopreneMermaid · 16/07/2013 03:02

Well done Tink! When's your next test?

roseanna1 · 16/07/2013 09:23

Hats off to you Tinkx...you're a brave woman. They wanted me to have a defecating MRI which sounds a bit similar and I just point blank refused lol.

I'm doing much better now. Still very sore when a bm is in any way formed, but otherwise just a bit achey so I decided just to stop taking any pain meds and work through the pain as and when it happens. One question though - I know when I need a bm only because of the build up of pain, but otherwise don't feel any sensation until its actually right there and just about out (can't believe I just wrote that!). Is that normal because of swelling etc do you think? Can't remember having that problem last time around....

mistyviolet · 16/07/2013 22:06

Roseanna I had the problem you described. I had an anterior repair, posterior repair and TVT in August of last year. For a good month or so after the surgery I could only tell I needed a BM when it was about to make an appearance and seemed to have no muscle control in that area at all. I also couldn't control my wind (normally I could squeeze and hold it in) and when I was taking lactulose that was a big problem. I was telling my husband that I couldn't go back to work because if I broke wind in front of other people I wouldn't be able to face them again! Blush. Luckily as I healed the problem got better. I hope that eases your mind a bit.

tinkxx65 · 16/07/2013 22:30

Roseanna, the only reason I swallowed my embarrassment is because I want to be sorted, I want them to find out what is wrong, I am already having to have a second op and I want it to be my last. And like I said it was not anyway as awful as I had imagined, the staff were lovely and made me laugh which helped. Glad to here you are on the road to recovery, I am sure you will get some sensation back as the swelling goes down.

Neo, my next test is next monday, flexible sigsomethingorother lol, which I believe is just as embarrassing as the protogram and they fill you with air which makes you fart = not looking forward to it AT ALL.

Footle · 16/07/2013 23:06

This reply has been deleted

Message withdrawn at poster's request.

roseanna1 · 17/07/2013 07:31

Thanks Misty and Tinkx that puts my mind at rest, and good luck with the next tests Tinkx. Hopefully they'll give you some answers.

NeopreneMermaid · 17/07/2013 18:18

Tink, can you arrange a visit to a relative you dislike for immediately afterwards?

mrsclairet · 18/07/2013 09:27

neoprene how are you?

I have got my check up tomorrow, I am really hoping everything is ok as I am still feeling really uncomfortable with that dragging feeling in the evenings and have had to lift my ds a couple of times. On the plus side I have only had to give my ds's a bath once in the last 2 months as my dh has been doing it bless him!

MiseryArse · 18/07/2013 11:32

Hello Ladies!

I've not been here for a while because I've been avoiding prolapse discussion until after my surgery

I'm now 2 weeks and 2 days after an uncomplicated posterior repair. Healing has been unremarkable. No problems peeing on removal of catheter and first poo was 3 days post surgery and needed no medical assistance. Pretty good so far I suppose. Stitches are easing and I'm feeling stronger daily.

However..

I know that after two years of investigation and final confirmation after surgery that my rectocele was 'significant' rather than 'mild' I'm still uneasy around the whole bowel emptying issue.

I have been frankly flabbergasted at the volumes I've been passing these last two weeks. Sorry about the TMI but I wake up, virtually fill the toilet, wander off happy then I'm back again in ten minutes or so for at least the same volume again. My bowel never feels empty because quite honestly it isn't. Where is it all coming from? Could it possibly be years of backlog?

Also I'm still struggling to 'finish'. I know it's very early days but what are the prospects of normality returning in the next few weeks? I'm prepared fr 6 months for my bowel to learn what's normal again but it's nice to have an idea of timescales.

My GP has said that if it's still the same in a couple of weeks she'll refer me for further tests

Dahlialover · 18/07/2013 12:40

Hi - I have also been staggered by what comes out, but the other way round - I used to do huge hard poos, and now they are soft they are small and skinny. Not sure where it came from before Hmm

I saw a physio who had a special interest in bowels who told me to go when I have the 'urge' (took some finding), put my feet up to achieve a 'squatting' position in order to empty bowels properly, keep stools soft, and do 'pelvic release' exercises, as well as the kegals. I have put some links further up the thread. 'Pelvic floor dysfunction' is worth a google

mrsclairet · 19/07/2013 16:17

I had my check up today. He examined me and said well if I'm being critical I could have tightened it up a bit more, trouble is if you tighten it up too much you can render the vagina useless, once you've tightened it you can't loosen it up again. Hmm, not really exactly what I wanted to hear. I have got to go back to the physio dept and they are going to do biofeedback to make sure I am doing the pelvic floor exercises properly, make sure I really do lots of those and then see him again in 3 months. I'm not sure what use there is in seeing him again, I guess he is hoping the pelvic floor exercises will have improved things. I feel a bit down really as I'm only 31 but I suppose there's no point in getting depressed about it. Hope everyone else is doing ok!

kotinka · 19/07/2013 22:48

This reply has been deleted

Message withdrawn at poster's request.

KeepTheFaithBaby · 19/07/2013 23:19

Erm, hi....I have a query and you guys are likely to be the people to help?!

I had DD nearly 14 weeks ago. She came out back to back and faster than a speeding bullet (I was in labour for 1 hour 50 minutes and only pushed for about 10!). I had a tear - based on reading I think second degree - it needed stitches done by the MW. It healed up ok and I did my pelvic floor exercises.

Fast forward to the last couple of weeks. We have only dtd once. It felt very tight, a bit like losing my virginity again! I had an IUD fitted last week (no rush to have any more!). I've been having some bleeding and decided to use my moon cup. Ok going in but I'm really struggling to get it out. Do you think this is something that will settle down? Is there anything I can do to improve things? Thanks!

kotinka · 20/07/2013 00:02

This reply has been deleted

Message withdrawn at poster's request.

whoah · 20/07/2013 02:27

I went back to my cystocele/rectocele surgeon to ask her about this - she said that's my urethra - it's normal there is nothing I can do about it - which was so weird because it is not normal for me - I used to have a tiny hole for urinating but now it's a big old brain looking thing - someone on one of the other boards said it may be Urethrocele which fits with all of this. Is there surgery to fix this - it is really in my way bulging out of the vaginal entrance. If you can have surgery what is it like? And what else can be done?

KeepTheFaithBaby · 20/07/2013 06:10

kontika only been examined in terms of IUD insertion very uncomfortable! Bowel movements on the good side of normal for me, given that I have IBS - I'm BF so the meds I can take are contraindicated. Peeing is ok. There's a lovely female GP at my practice so I think I'll book an appointment with her. Cheers.

mrsclairet · 20/07/2013 12:54

kotinka - no I haven't had sex yet, my DH is keen but I'm not! It just still feels really uncomfortable, like I have got something stuck in my bottom and like I haven't finished when I have done a poo.

I'm really disappointed because it does look different, I thought originally wow this has made a big difference but now I'm thinking it hasn't worked as well as I had hoped : (

librarygirl55 · 21/07/2013 18:06

Just wondering if anyone else has had these two surgeries and what you are felling like at this stage. I still feel like I have rubbing in vaginal area. It seems to be coming from the urethra. Saw my gyno last week and she said all looked good and that I had good support. So afraid for this to happen again. Also seem to not be able to empty my bowels completely sometimes and this makes it uncomfortable to sit. I am taking all kinds of stuff for constipation. Starting to get really sick of this.

Dahlialover · 24/07/2013 10:45

Library girl - I am 6 months post surgery and still obsessed with bowel movements! (if that is any consolation!). My recovery has also been hampered by unexpected menopause side effects (well, they were anticipated as a possibility but the reality is something else). Is this a possiblity? Worth going to the gp if that is any good - maybe a physio referral? Hope you are feeling better soon.

PS - recommend kiwi fruit for breakfast - 2 a day if you are having big problems.

tinkxx65 · 26/07/2013 07:30

Where has everyone gone?

I had my flexible sigmoidoscopy and it was not good news. I think or should I say they think I have bowel cancer, I am only 48. Anyway this is going to be my last post. Just want to say if anyone has any bleeding, or blood in or on your poo insist on it being investigated. Also if there is any sort of mucous I would also insist on a test. I was told my bleeding was coming from piles and was not giving any tests for bowel cancer so have put up with the bleeding for over 2 years now. So please please do not be fobbed off like I was.

I wish all you lovely ladies all the best, take care everyone xx

mrsclairet · 26/07/2013 13:34

tinxx - not sure if you will read this or not but I am so so sorry to hear that, I don't really know what to say. My aunt had bowel cancer and is in remission now so I really hope they get it sorted out and you will be okay. I didn't know about the mucous being a problem, I will watch out for that. Take care xxx

Dahlialover · 26/07/2013 14:16

Tink - I am very sorry to hear that.

I have followed your progress whilst waiting for my op and want to say thank you very much for all your valuable information and input. It has really been a help.

I hope you get good treatment from now on and , like MrsC says, that it is sucessful. All the best.

roseanna1 · 26/07/2013 18:08

So sorry to hear your news Tinx. You are obviously a very strong lady and I'm sure that will stand you in good stead in difficult times.

Wishing you the best of luck, and thanks for all the support and encouragement you've given all of us here x

Tr0ubled · 26/07/2013 23:18

tinkx I am so deeply sorry for your news. I have been thinking of you as I felt we'd been making this journey in a similar way and so your latest news is such a shock. Please don't be a stranger to this board, if you need any extra support just shout. X

kotinka · 27/07/2013 19:14

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Message withdrawn at poster's request.

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