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Pt 7 (Feb13) Any old prolapse! Uterus/womb prolapse, rectocele, cystocele, enterocele, urethrocele, incontinence, pelvic floor, anterior and posterior repair, TVT etc

994 replies

WhoKnowsWhereTheTimeGoes · 20/02/2013 19:05

This is thread 7 (again - see below) of a long-running series of posts from ladies suffering from pelvic prolapses to support each other through the process of diagnosis, repair and recovery.

With apologies for confusion in thread numbers - the previous thread was called part 7 but it was actually the 6th thread.

Here are the previous threads:

Thread 1
Thread 2
Thread 3
Thread 4
Thread 5
Thread 6

Info from BBC Health

What is a pelvic prolapse?

As the muscles, ligaments and supporting tissues in the pelvis become weaker, they are less able to hold in the organs of the pelvis such as the womb (uterus) or bladder.

Gravity pulls these organs down and, in the more severe cases, may appear through the entrance to the vagina.

A variety of problems can occur, depending on where the weakness lies and which organs are able to descend, but in every case there is some degree of prolapse of the vaginal wall, which begins to invert (rather like a sock turning inside out).
Prolapse of the womb or uterus is the most common prolapse, affecting as many as one in eight older women to some degree
Prolapse of the bladder, known as a cystocele, is less common.
Prolapse of the urethra (the tube that carries urine out of the bladder) is known as a urethrocele.
Prolapse of the intestines is quite rare, and known as an enterocele or rectocele.

Symptoms

Symptoms depend on which tissues descend, and how severe the prolapse is.

They may include:
A sense of heaviness or pressure in the pelvis.
The appearance of a bulge of tissue in the genital area, which can be quite alarming, and is often red and sore.
Urinary problems, such as having to urinate more frequently, feeling the need urgently, being incontinent (losing control of the bladder) or, conversely, being unable to pass urine when you need to.
Pain in the pelvis or lower back.
Sexual problems, including pain and decreased libido.
Constipation.
Vaginal discharge or bleeding.

Treatment and recovery

Once a prolapse has developed, surgery to fix the affected organs is usually the only way to cure it effectively.

However, another option is to use a device known as a vaginal ring pessary. This is rather like a contraceptive diaphragm or cervical cap. It's made of silicone or latex, and placed in the vagina to push back the prolapsed organs and hold them in place. Many women happily manage their prolapse this way.

OP posts:
Rewy · 04/07/2013 22:29

Hi NeopreneMermaid thanks for the welcome Smile

Yes have seen gp who is doing a gynea referrel and i saw the anaethetist a couple of months ago due to the buttock pain and he said it was unlikely to be nerve damage caused by the injection as the pain wasnt central or burning,although i did describe it as a numb been riding a horse type pain. Sad Now it is numb and burning and loss of feeling in vagina . My sex life is v important so im pretty scared i could end up losing sensation or ability to orgasm etc . It is v uncomfortable in my sacrum , feel like ive been dropped on it .

Rewy · 04/07/2013 22:30

Bladderama - Hope it works for you

Pitmountainpony · 06/07/2013 01:23

Hi wondering if anyone has any experience of this .....for the last month I have had this uncomfortable sensation in my internal area. I thought it could be thrush but tried cream and it is still there. I constantly feel I want to pee and often a small amount comes out....weirdly I get some relief by kind of pressing inside against the v wall towards my bladder......and often then more pee comes out. I will make an appointment with my gy ob but it is over a month till I can get in...it is not a uti...tested recently. I feel so uncomfortable all the time. Ice also helps to relieve the symptoms. Could this be connected to my bladder...uretha ....I had a second c section 15 months ago. It is making me so miserable and irritable. Feels like it came on after having intercourse maybe a month ago.

whoah · 06/07/2013 18:44

I had cystocele and rectocele surgery on May 3rd. My first symptoms were the usual pain and that feeling that something was falling out - but most prevalent to me was a new large brain looking thing/ball (an inch and half to two inches) at the entrance of my vagina (not the bladder it self).This was traumatizing to me and disgusting which of course is a horrible way to view ones body non the less your sexuality (I am 44 and have been married 13 years - known him for 15). So after the surgery my doctor said that everything should go back into place including that brain looking thing. Two months later, the pain has gone away - and I do not feel like anything is falling out however - I still have that huge ugly brain thing at the entrance of my vagina. When I go to the bathroom I can feel it protruding so much that it is right below my clitoris. It feels so fat and huge. I am freaking out - please tell me it will go away! Has someone been in the same boat (I have looked for this specific issue online but haven't found the answers). How long until it goes away? Will sex help it go into place? What can I do to get this thing gone!

kotinka · 06/07/2013 19:17

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whoah · 06/07/2013 19:41

My prolapse happened suddenly - I had both cystocele and rectocele surgery - everything came down at once - and that is when this brain thing suddenly appeared. I did not have anything like it before. So it all happened at once for me. Two weeks after this onset I had the surgery (that was 2 months ago). I asked my Dr about the brain thing during my six weeks follow up visit that is when she said that it would go back - but it hasn't yet. It is strange and horrifying to me!!! I am hoping there is something I can do -

kotinka · 06/07/2013 20:01

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Pitmountainpony · 07/07/2013 06:55

Whoah ..you poor thing...how distressing.
I have no experience if that but try to be kind to yourself...it is not disgusting but just part of your wonderful body that produced children.
Get back to the doc and get help. I know my grandma had a prolapsed womb her whole life as there was less help then but there is help now.

Kotinka.......do you know what caused yours? How did you know to get physio? Went to a doc today got antibiotics for a uti but no bacteria in my urine sample, just white cells....I have felt symptoms for 5 weeks. I do feel a bit better for the antibiotics and am not urinating so much...but weird that I got relief from pressing against my vaginal wall inside...and that would enable me to pee several more bits......having kids does stuff to the body for sure......maybe I have just had a uti for 5 week...... I feel for everyone on here facing bigger bodily challenges. It really gets you down when your body is not working how it used to.

kotinka · 07/07/2013 09:35

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kotinka · 07/07/2013 09:36

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librarygirl55 · 07/07/2013 19:18

I am 57 years old and I had a cysctocele and recotcele repair 6 weeks ago. I am doing better but my urethra is still really swollen. I had a catheter for a week after surgery. Is this normal. It feels like I have a bulge because of this. Also I am going on a trip to the beach this week. Will just spend time sitting on the beach. My gyno approved but no getting in the water. Will it be ok to walk in the sand. Will this be too much pressure? Thanks for any advice

librarygirl55 · 07/07/2013 22:29

I am new to this and see that I have one reply to my message. How do I find it?

kotinka · 08/07/2013 08:45

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kotinka · 08/07/2013 08:46

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Edinburgh63 · 08/07/2013 10:55

Kotinka: hope you are feeling better today!

Neoprene: how is life with you? Have things calmed down?

Now 8 weeks post op and starting to feel that I am getting my life back. Apart from the niggling tailbone pain, tends to be more on my left side. Anyone else suffering from this pain? And if so, what do you do to give you some relief......

Library girl: I would agree with GP re not going into the water, I went to Center Parcs for my 50th, 4 weeks post op, and I came home with an infection a week later. Not worth it...... Enjoy the beach though

roseanna1 · 08/07/2013 11:50

Hello ladies,

I haven't been on here much lately - trying not to obsess too much about all this prolapsey stuff (not very successfully I might add!). I am 10 wks post op from a tvt and ablation, which have been quite successful (still a little bladder leaking but no periods so far - yay!).

Since it was all going so well I decided to go ahead and get the rectocele repaired, which was a repeat of the same op about this time last year which failed and I'm 6 days post op for that. It's been such a different experience this time round with bowel problems that are causing me incredible pain. I had two enemas and a suppository to help me go for the first time on Saturday night - had to go to the ooh doc as the pain was just too much. I can go now, but the pain I'm in is so intense. I had oxycodone when I left the hospital, but the doc saidto only take paracetamol as the oxycodone could be making things worse. I feel like I have to choose between a normal bm and being in lots of pain. Can anyof you ladies tell me what you used to strike the right balance?

kotinka · 08/07/2013 14:51

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Edinburgh63 · 08/07/2013 15:07

Kotinka: feeling much better than of late. Only a few issues, as I said in my earlier post I am having pain in my tailbone area, and only the left side. Also struggling with urgency issues. Now only taking lactulose one a day as twice as day was too much.
Roseanna1: I too had a rectocele repair 8 weeks today, the first BM was horrendous. But I have fresh orange juice and lactulose once a day, as prescription says twice a day but was causing me urgency issues. Somedays I couldn't go on my half hour walk. It will get better... Just give it time :-)

kotinka · 08/07/2013 15:20

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roseanna1 · 08/07/2013 20:02

Thanks very much all...will give it a shot x

NeopreneMermaid · 09/07/2013 13:58

Hi all, glad to hear we're all largely on the road to recovery, despite all the hitches.

I'm still not healing where I've lost a stitch but am feeling better in myself.

Roseanna, I ended up in a&e having enemas and passing out from the pain so I really feel for you and empathise. I think I had a similar thing in that everything was just so swollen after the op that nothing could pass through, even water. If that's the case for you too, then I recommend a&e.

roseanna1 · 09/07/2013 22:36

Thanks Neo...still in incredible pain for an hour or so before and especially during a bm even though its very loose now (sorry tmi). Went to the gp yesterday and she was very sympathetic, but could only give me cocodamol for pain relief because the oxycodone is too constipating and could put me back to square one. I agree with the logic in that, but its not helping the pain. Guess I just need to get through it, but its really tough right now.

Glad you're feeling better though - feels so good when you turn the corner x

Tr0ubled · 09/07/2013 23:14

Hi all, I haven't posted in a while but am always reading posts to see how everyone's doing. I'm not so great, which tbh is why I don't post.
Anyway I just wanted to jump in to say roseanna I had excruciating pains with BM's for a fortnight at least after my op - given I had 5 procedures I'm not quite sure which caused the pain tbh. But my GP gave me Diclofenac and Tramadol to take, plus paracetamol too. Cocodamol as far as I'm aware is codeine based, and anything with codeine should be avoided due to constipating effects. I think you should go back to your GP and ask for different painkillers, be firm and tell them what you need.

kotinka · 10/07/2013 00:04

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NeopreneMermaid · 10/07/2013 00:08

Cocodamol is codeine-based and therefore constipating. Anything stronger than paracetamol and diclofenac are the same unfortunately. But God, the pain! Worse than both my births and the only time I've ever passed out from pain (this wasn't such a problem in itself; the worst bit was that I came round pretty quickly!).

Troubled, sorry to hear it's tough for you. Please do feel free to share/vent if you'd like - we're all pretty battle-hardened now and can take it. No pearl-clutching on this thread. Smile

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