TAMOXIFEN**33**

[MaryAnnSingleton]

new thread - bring the trolley over here....

Waving at GreyLady. You're amidst fellow worriers here.

Pen, x-posted with you too. Glad you're feeling a bit better.

great news about your scan MAS-continuous chem sounds grim but not as grim as the alternative

waving too to greylady
smee am imagining the bra contraptions - I love your boy
Have had several glasses of wine with parents so feeling quite jolly. Poor T is feeling poorly though, looks like another horrid cold.

B'ah on T's cold, MAS. Glad you've had wine. I have sent a photo of DS's bedroom to amuse you. No bra in picture, but other mad stuff! Can you tell I'm supposed to be working?

What's up Grey ?

yes, are you ok greylady ?
smee love the picture - Heath Robinson boy.
Poor T is in his bed,all shivery.

Evening all! bounces in

Good news about your scan, MAS! I know a lady who is on continuous chemo for a non-cancer illness and she has coped quite well.

I'm sure there was lots more I wanted to say but DP is next to me on the sofa, MOUTHBREATHING and the irritation I feel at that noise has driven everything from my head. So... I hope everyone is ok?

I got my blood test results this week. The GP receptionist told me everything came back as 'normal', which is actually not what I wanted to hear because it means the fatigue I get is not easily fixable. I was hoping for anaemia, pop a few iron tablets and away it goes! No such luck. I finished my radiotherapy last May and I'm still destroyed by it, energy-wise. I have a few friends with M.E. and the fatigue I get is very similar to theirs.

I'm getting better at remembering to take my tamoxifen. My new pill box arrived today, it's beautiful. A 7-day one, 3 compartments a day, inside a clear box and the 'days' are all in rainbow colours. I've put star stickers over the top and it looks amazing.

Hi to lizs. Sorry to hear about your elderly relative. The lumpectomy should be straightforward if they get clear margins. I'd second the thought that it wasn't the op but the radiotherapy that was tiring with all the travelling. At my centre you can book yourself an overnight to have a day off the travel. Of course it depends how far it is as to how much of an issue it is.

Morning all!
Cat is scratching at the bedroom door so guess I will get up now. Will put a on :)

User your pill box sounds a good idea. Don't think I need one for ond pill a day but may put a reminder in my phone, forgot to take yesterday...

Morning everyone. This thread fell off my actives so thought I'd check in. Remember my new lump on my rib area? Well I'm seeing the breast clinic on Wednesday so hope to get my mind put at rest. Gp wasn't worried but ill still be happier when it's checked.
Went for a thyroid scan on Thursday. The letter said ultrasound but it turned out it was an isotopes!! Meant I was there hours couldn't go back to work or be too close to my own kids for 24hrs. There was a mistake with the letter but it really annoyed me.
It was weird lying still under the machine though, memories of radio therapy came flooding back.
Hope you all have worry free weekends.

I am not surprised you were annoyed- slight difference in what you went for ledkr. Hope you get lump sorted- doubt Gp would be so blasé if had concerns .

Mas- yay for good scan!

Pen- sorry you are feeling rough.

Smee- hope you got your work done. Will dig out dosage info from my notes.

Grey- sorry you are feeling low.

For those that want it.

grr ledkr that is annoying. Lots of good luck with breast clinic x
usererror new pillbox sounds great - sorry that fatigue is troublesome.

In 1970 < yep I'm an oldie>, I had an Isotope with a radio active iodine injection beforehand. This enormous thing moved backwards and forwards over my Thyroid. Didn't know they still used it. I still have a photo in my mind of it.
.

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Just dropping in to say I am really struggling with feeling so so grumpy tired and irritable. More like raging, I am usually a placid sort and I feel sorry for my family. I just want to hibernate.
If you see me out in public do not approach me.

pen do you know why? I'm not sure what stage of the cancer crap you are at.

It is because I have been put in a sudden very hypothyroid state to prepare for my treatment, I was on a short acting thyroid med which is not nice to suddenly stop I feel terrible. The tiredness is manageable but the bad mood and depression is really hard. 2 more weeks to go. The isolation period in hospital for radiation treatment is looking very inviting now.

So rationally I know my moods are artificial but it s still getting to me.

Pen that is shit- do you start to even out a bit as you get used to no meds or just more of The same?

Must be horrid- only experience of anything like that is pregnancy mood swing but not same really (except that feeling that its a physical rather than real issue).

I don't know. I felt bad then ok for a day and a half now I feel terrible again but the mood is worse. It came on this afternoon.
Dh is taking the children out in the van for lunch / walk tomorrow and I may just stay in bed. I am being really horrible and can't stop it then I want to cry. Not like me at all. Paranoia making a huge appearance too.

Aw pen how shite. I can sympathise as I'm suffering from hyper parathyroid ism at the moment. Depression mood swings bone aches and extreme tiredness ago go. I've felt a lot better since I started St. John's wort and high strength vit d. Can you try that?
The isolation thing sounds fairly daunting. When does that start?

Trite but keep a food diary Logging when you feel most angry , paranoid etc. it may help a bit if you can moderate when and what you eat- more protein , less carbs and little and often. I was on point of taking anti depressants but found food made a big difference. Sadly sugar and coffee were big mood dampeners.

What are you going to do in your isolation period? And have you got some nice new pyjamas or something bought so you can be comfy. When I had to do inpatient chemo,I got new pyjamas , books and stuff to watch to pass the time.

I go into hospital on 18th to the lead lined room for 2-3 nights then have to stay away from people for another few days. No meds for 2 more weeks and a low iodine diet so I can't eat junk to cheer myself up. An apple does not cut it.

I have a good recipe for tea loaf that you can make with dried fruit and nut of your choice- can you have eggs and butter ?

I am not having caffeine or any processed or pre prepared food so think it is purely the sudden lack of thyroid hormones sadly.

Thanks for the support ladies. It really helps.

No eggs and minimal dairy. I am eating a lot of porridge as bread often has iodised salt and dough improver. Green and blacks dark chocolate is a feature of my life.
I can eat meat, veg, fruit, pasta anything with no salt.