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*tamoxifen* 31- in the bus shelter with the cheap booze

983 replies

Gigondas · 03/12/2012 17:13

Shiny new thread

OP posts:
Lomaamina · 13/12/2012 09:03

It was almost worth it all to hear DH just report to me that my gorgeous DS14, who had refused cuddles or any soppy stuff for years, legged it up the driveway to school this morning calling "send Mummy my love". Ah, bliss!

MaryAnnSingleton · 13/12/2012 09:19

aw bless loma Smile Hope recovery is swift and not too uncomfortable- agree with Dr topsy's recommendations
hope big gig's concert is fab - naughty little gig !
I too have nothing but praise for my team - everyone seems younger than me (except bcns !) though quite pleased that onc. thought I was about his age (about a decade younger Grin )
Blood test today,then a skip into Waitrose to see if there's any nice sushi.

Lomaamina · 13/12/2012 10:22

maranne sounds like waitrose is your 'treats' store - it certainly is in my case: I've just put an order in for their mixed marinated olives. Probably as calorific as chocolate but somehow feels more worthy.

All the best to readers if this board

Lomaamina · 13/12/2012 10:22

Of

smee · 13/12/2012 10:43

Yes, loma, Dr Topsy should be listened to, as her advice is excellent. I have nothing but praise for my team too. I think the NHS is amazing. Watch out for the post GA blues. Normal, but annoying! Smile

No news from HND. Hope she's okay.

Gig, that night waking's irksome. Glad leg feels okay though. Do you have to do exercises every day? Have fun at the concert. Is she a sheep or something sweet like that, or just singing?

MAS, how's the tummy and the hands today? Any better?

DH says he's not too keen on tampon decorations. Can't imagine why. Grin

MaryAnnSingleton · 13/12/2012 11:06

have just been to Waitrose and got my free coffee- always feel a little awkward about asking for it Grin I cannot resist their rustic bread,so have a lovely baguette which T will no doubt devour.
smee as an artist I'd've thought dh would like the tampon decs !
Tummy much better thanks- at least I hope so- hands still pretty awful- the nurse taking my blood said they looked red and told me her friend on chemo had the same,plus an alarmingly red face- yike. I had my bloods done sitting up this time- progress ! I feel a bit silly lying down- it took two goes to get any blood but she was lovely and very apologetic and kept saying how well I was doing in overcoming wimpishness - awww- another lovely NHS nurse.

HerNextDoorAt21 · 13/12/2012 11:18

Morning ladies,

Sorry I have not got back to you before now - I was rhather busy last night 1. helping out at the School's open night and 2. ringing and texting a gazillion people about my appointment. So here goes .....

I have got grade 2 DCIS over a 10 cm length (a string of pre-invasive cancerous calcifications) and will need surgery.

I have opted for a full mastectomy on the right side with immediate reconstruction by LD flap (the back muscle and tissue method) and will also have a silicone implant in there as I am large chested. 6-9 months later when the new bobbage has settled, they will undertake a reduction on the left hand side boobage to even our any wonkiness !

I will be having sentinel node biospy at the same time as surgery and they cannont completely rule out radiotherapy until they have the pathology back from the breast tissue but are hopeful that RT will be unneccessary.

Feeling relieved that they can do the majority of the big surgery in one go and at least I know what I am up against now. So ladies, I will be sticking around to annoy you for a while longer yet !!

Has any one had LD flap surgery ? any tips ? pros ? cons ?

HerNextDoorAt21 · 13/12/2012 11:22

smee
Xmas Decs

HerNextDoorAt21 · 13/12/2012 11:24

sorry smee

Xmas Decs

MaryAnnSingleton · 13/12/2012 11:24

HND well done for getting through that - how are you feeling about it all ?

smee · 13/12/2012 11:25

HND, you are amazing to be doing the Fair last night. Think I was in a heap at your stage. Is it good to know what's next? Must be a relief. Mastectomy sounds sane under the circa. I had immediate reconstruction, but just an implant, so no skin or tissue from elsewhere. Not sure anyone on here's had that done, but might be wrong. Do you have a date yet?

Glad tummy a bit better and well done on bloods too, Mas. You are v.brave. Smile On DH, yes he should be into it shouldn't he. He's quite an alternative sort of artist, possibly he doesn't like me being more alternative than him. Grin

MaryAnnSingleton · 13/12/2012 11:25

arfsome tampon decs !

smee · 13/12/2012 11:26

x-posted, fab link, HND! They're not bold enough though for my taste. I want red sparkly glitter! Grin

Gigondas · 13/12/2012 11:30

Well done you- have you tried deep breathing mas as that helped me.

I have found something on fb for you and smee

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Gigondas · 13/12/2012 11:31

Cross posted with hnd - fingers crossed for no rt.

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smee · 13/12/2012 11:50

You and HND are of the same mind, Gig. Grin

MaryAnnSingleton · 13/12/2012 11:58

I was breathing in a mindful way - I think I've convinced myself that blood isn't going to make me feel wibbly - though if any words like 'oozing' or 'bleeding' are mentioned I might find it difficult - that's what set me off before (interestingly my brother is exactly the same)

Gigondas · 13/12/2012 12:03

Sets me off too but mindfulness and visualisation (my favourite beaches of all time) helps.

Present wrapping (or not) here- it doesn't make me feel festive .

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HerNextDoorAt21 · 13/12/2012 12:33

gigs i have my first counselling session this afternoon and have no idea what to expect .... help !

Gigondas · 13/12/2012 13:08

Counsellor will introduce themselves , explain how long and maybe how many/when Sessions are. They wills probably ask you to talk about what you are there for and what you want out of it . To an extent you set the agenda .

Also depending of type of counselling you may get homework but it will be of the type of thing that mentioned other day - eg what are your feelings, when do you get them, how intense are they etc.

I hope it goes well.

OP posts:
Copthallresident · 13/12/2012 13:57

Loma Glad it wasn't too bad and you are recovering

hnd Now at least you know. I have three friends who had the flap but from the stomach rather than the back but can ask any questions you might have, they were not big boobed though so no implants. One like you had DCIS so mastectomy and immediate recon, one had chemo following and that is the only occasion I have heard of problems, the chemo killed off some of the flap, and the third had recon a couple of years after her mastectomy, chemo and Herceptin. My surgeon suggested I might need some evening up because it is harder to match little boobs - I started out with the smallest size of prosthesis (I haven't overcome my wimpyness felt the need to get recon so far - 11 years!!) so I got the impression that big boobs are easier, friends all medium sized. I think the only con is that it is a big operation, you wake up feeling you have been hit by a bus and you have to spend a couple of days in high dependency being kept very warm and sweaty to make sure all the plumbing works. They are all very happy with the result and glad they had it done.

I love the tampon crafts, if only I had seen that page when I was Rusty, the Beaver Scout Leader Blush don't ask!! (the things we do for our children)

MAS blood tests - aagh. Chemo left me with the veins of a drug addict, the only ones you can get to show are on the back of my hand and they collapse at the sight of a needle so it always takes extensive mining. I take one of those hand warmers with me when I go, a tip from my friend the nurse, that nurses and labotomists never seem to think of. I'm supposed to get regular blood tests for the chronic low white blood cell counts but I avoid them.

I think your book idea is great. A friend in publishing tried to fly the idea of a book of "emails from the chemo frontline", she collected a few up, but she was a bit disgusted that her company seemed only interested in trauma tales or books of pinkness and make up tips, and said that the Cancer book marketplace was very crowded, I think a couple of the Guardian journalists who have written about their experiences had the same reaction, but did get published eventually on the back of what they had written in the newspaper. I agree with smee that humour is your best friend when it comes to Cancer and it would be good to have a book out there that takes the piss out of it all and shows you can laugh after dx. Perhaps the Mumsnet connection might help?

gigs DD1 liked to disco in the night. She was a cot hurdler too. I'm afraid we became rigid disciplinarians, we couldn't even go into the room when she woke in the night or it would establish a pattern.On one night when she had learnt to talk she woke in the night and I was listening to her gurgling through the monitor (I would have had a webcam in her room if they had had them then) and she suddenly said "Head stuck" so I rushed into her room to see her stood up laughing. Can't get her out of bed now though of course!!

HerNextDoorAt21 · 13/12/2012 19:34

Mad I just saw your message there. I am feeling good that I can get the recon don

HerNextDoorAt21 · 13/12/2012 19:40

Doh it posted itself on my phone .... Sorry mas .... Yes feel good about recon at same time and scared to death of he after effects from surgery as I am usually pretty pewky and ill Hmm I am also very stressed and anxious from a very badly timed slagging off by text from my step daughter who thought i was ringing her last night to try and sort out hers and her dads failing relationship (she didn't answer my call as usual) its hard to go into but I feel like I have had my heart ripped out and stamped on. Thankfully the counselling looks like it is going to be a winner gigs the hour just flew .... I'm off yo luck my wounds and get some dinner now my little DS (4) is sleeping sounDly.

topsyturner · 13/12/2012 22:23

Am jealous that you get recon at same time as mx !
Am still waiting for mine .
Think I need your surgeon !

Is everyone fully prepped for Christmas ?
I'm not , but am getting there .
If my DDs main present arrives on Monday I shall be done .

Got our if family Christmas dinner on Sunday .
FIL takes us all (aprox 30) out to a nice hotel for lunch ,
And it's so nice as we we don't get together en masse like this very often .

Anyway , had a busy (for me) couple of days and I'm knackered now . So off to bed I go . Think I shall have a lazy day tomorrow , I forget how worn out I get these days !

jchocchip · 14/12/2012 07:17

Lol at the tampon decorations :)