Fellow Fibromyalgia MNers advice please

[MrsDeterminedandSpecialMum]

I've been diagnosed with Fibromyalgia.

Is there anything in my diet I need to eat/avoid to help me feel better?

TIA

Pin - I'm not a good sleeper anyway but even worse when I'm in a lot of pain.

I can take between 30 & 70mg of Amitryptiline a night depending on how I feel. Wouldn't take the max amount ever as I have an 8yr old & 10 month old DD's, so if they woke in night I'd be zombified on it. I feel okay on it. Guess am used to taking it now.

Do you take anything for helping to sleep? x

You must have your hands full MrsD. It's very difficult feeling poorly when you have to look after little ones too. I hope you also get some chance to rest. I can really relate to how you must be feeling. Although my health problem is different it has been such a hindrance over the last 8 years - trying to lead a normal life whilst feeling rubbish!! Nightmare

I'm not a great sleeper. I find it very difficult to relax. I think this is partly due to the years of worrying about my health and the fact that I am a natural worrier anyway. I have had the occasional Zoplicone when I have managed to get round my GP!! Apart from this I have tried drowsy-making antihistamines but TBH they leave me feeling terrible the next day! Take care x

I take Lyrica (pregablin), which has completely changed my life. It keeps my fibro difficulties down to a dull roar. I also bought two memory foam mattress toppers and stack them double thick, and that helps a lot as well.

Pin - I really would go back to your GP & request something for sleep.

I have effectively had this for 9 yrs but only just confirmed def diagnosis. I never really get time to rest and that is a big problem.

Soggy - memory foam are they good? x

Memory foam is brilliant, for me at least. It cushions and supports, and the toppers were much cheaper than the foam mattress. The only down side to it, IMO, is if you live somewhere hot. Where I live it is 38+ degrees for months at a stretch, and the way the foam retains warmth is not always appealing when it's that hot. I had to get an extra fan.

I live on south coast of England so no heat ever .

Will look into them thanks.

I slept ok last night only downside is because AF started yesterday on top of my joints hurting, I have backs & cramps

MrsD - How active are you?

I never sit down lol. I'm up at 6:15/6:30 am I get ready for work, then sort DD's out. I get them to school & nursery for no later than 8:15, then head to work. I work 4 days a week: 2 days 8:30 - 5:30/6pm 2 days 8:30 - 12:30pm. Once I'm home it's sort the girls out tea, bath & bed then housework then time to sit down which is about 8pm!

I get told off all the time for always being on the go!

Any suggestions?

Yes, something where you move different, and consciously. I found yoga incredibly healing. I would say tai chi would be similar.

I could do yoga. I try and do Zumba it's quite good once you get hang of it. I also used to swim once a week.

How is everyone feeling today?

Had a dodgy weekend - although I slept well .

How are you MrsD? Wow - your life sounds so busy! How do you cope with all that and your fibromyalgia? I'm in awe!

Pin. Good to see you slept well

Having at first being a single parent you get used to pushing through the pain and getting on with it. Now I'm married to a lovely man he takes some of the weight off but I do struggle sometimes. Home from work early today as knees & hips are really bad

Oh really sorry to hear that MrsD. Hope someone can make one of these for you

Yes - a really supportive partner is essential! Sometimes I get fed-up of having to tell my DH that I feel 'under the weather' again but luckily he is used to it and understands. I'm seeing the haematologist again this week so might get some answers about why I have felt so bad the last few weeks. Fingers crossed!

Ooo that reminds me - wonder if my BT results are back?!

Phone! x

All back normal....it's what I expected

Sorry to hear that mrs d
did you get a copy of all the results? Was the t4 high in range and the vit d over 90? Just because sometimes t4 and vit d is flagged as normal and is no such thing. Even tho the vit d might not solve everything, it could still be the answer to some of the pain

I'll e-mail and find out. Prob won't get an answer till tomorrow tho x

Morning ladies. How did you sleep?

I have fibro, but the past few years I feel much better. Nothing really helps when I am having a flare up though.
I avoid nightshade family veggies, as I also have osteoarthritis, and they have been linked with inflammation.
I tried trigger point injections which sometimes helped a lot, and sometimes made me feel worse.
I went for massage therapy for a while and that was the beginning of my feeling better. I have myofascial pain syndrome as well. Getting rid of our carpet and laying down hardwood also helped. There seems to be a link between my allergies and my pain and inflammation. Allergy tests showed all of the nightshade plants as well. I have a cat, and when we go away, to a cat free home, I feel better. (I am allergic to cats and dogs, horses and birds too) When we come home, I get sick. But the cat is 18 and we are not getting rid of her. We won't get any more cats though.
Is your skin sensitive?

Not sure if any of that helped, I can't think of anything else.
My son is hypermoblie and has a lot of knee pain, I don't know how you manage to do so much.

Musical Thanks for sharing. Will find out about allergies.
It is the case of pushing thru the pain and learning when to ask for help.

I've passed hypermobility on to my eldest daughter and she's got it in her legs too.

How are we all today?

I'm struggling at the moment so I might look into changing my diet (far too much sugar ) to see if that helps.

I realised this week that I can work or live but not both. If I go to work then I can't look after the kids properly (by my standards) or cook properly or keep on top of basic housework. If I don't work I can manage all this stuff (just) and I only work part time anyway.