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Any old prolapse! Uterus/womb prolapse, rectocele, cystocele, enterocele, urethrocele, incontinence, pelvic floor, anterior and posterior repair, TVT etc part 7

1000 replies

gottagetthroughthis · 19/10/2012 00:38

This is thread 7 of a long-running series of posts from ladies suffering from pelvic prolapses to support each other through the process of diagnosis, repair and recovery.

Here are the previous threads:
Thread 1
Thread 2
Thread 3
Thread 5
Thread 6

Info from BBC Health

What is a pelvic prolapse?

As the muscles, ligaments and supporting tissues in the pelvis become weaker, they are less able to hold in the organs of the pelvis such as the womb (uterus) or bladder.

Gravity pulls these organs down and, in the more severe cases, may appear through the entrance to the vagina.

A variety of problems can occur, depending on where the weakness lies and which organs are able to descend, but in every case there is some degree of prolapse of the vaginal wall, which begins to invert (rather like a sock turning inside out).
Prolapse of the womb or uterus is the most common prolapse, affecting as many as one in eight older women to some degree
Prolapse of the bladder, known as a cystocele, is less common.
Prolapse of the urethra (the tube that carries urine out of the bladder) is known as a urethrocele.
Prolapse of the intestines is quite rare, and known as an enterocele or rectocele.

Symptoms

Symptoms depend on which tissues descend, and how severe the prolapse is.

They may include:
A sense of heaviness or pressure in the pelvis.
The appearance of a bulge of tissue in the genital area, which can be quite alarming, and is often red and sore.
Urinary problems, such as having to urinate more frequently, feeling the need urgently, being incontinent (losing control of the bladder) or, conversely, being unable to pass urine when you need to.
Pain in the pelvis or lower back.
Sexual problems, including pain and decreased libido.
Constipation.
Vaginal discharge or bleeding.

Treatment and recovery

Once a prolapse has developed, surgery to fix the affected organs is usually the only way to cure it effectively.

However, another option is to use a device known as a vaginal ring pessary. This is rather like a contraceptive diaphragm or cervical cap. It's made of silicone or latex, and placed in the vagina to push back the prolapsed organs and hold them in place. Many women happily manage their prolapse this way.

OP posts:
Nosleeptillgodknowswhen · 17/12/2012 21:11

Yes to splinting (didn't know there was a technical term!) after reading about it on MN. in fact i owe MN for my self diagnosis in the first place.

I have seen the GP re physio, but her view was that it wouldn't help (PF being cradle supporting everything, while rectocele is over stretched balloon) perhaps i should revisit.

WhoKnowsWhereTheMistletoes · 17/12/2012 23:28

I would agree that physio might not help as such, but it may stop it getting any worse. Did you discuss the pessary with the GP?

Rewy · 18/12/2012 00:02

Hi all ,im new to the thread and i only skimmed through some of it. It feels very strange to be back on this site ,its been a while and i have a new name and i dont 'recognise ' many posters now.
I am very very scared as i am scheduled to have surgery early january(found out today) I am having a posterior repair and surgery to the perinium to make the vaginal opening smaller . Post 2 dd's(11 and 6) ,My only symptoms and reasons for consulting the gynecologist were vaginal wind (very random) not just during sex ,getting off a chair ,turning in bed etc .Which is quite humilitating especially as i am in a new relationship . Other than this my only symptom is a feeling that something is 'there' and when using tampons i struggle to get them in because 'something is in the way'. I have no visable external prolapse .I do have the feeling somethimes when i open my bowel that it isnt empty , and fluctuate between having the runs or straining.
I am terrified should i have it done?
How will i survive for 6 weeks with no sex ,exercise etc?
I am also very concerned about finances as i do not get sick pay and have taken on a mortgage alone.
I will go crazy i reckon Sad

fengirl1 · 18/12/2012 16:25

Sorry Rewy - hope someone comes along to answer you in a while....
I just need to put this somewhere... (dd2 is with me) I'm sitting in the garage crying... Dd1 has been for her treatment today. Kidneys worse, will now be on blood pressure tablets permanently as her bp is around 200/100. Just don't know where this will go, and I bet she hasn't told them that her sinuses are really bad, she wheezes a lot now and is also having gut problems... I worry about her every day and can only help when she lets me. She should be having physio for a spine problem but won't. I know this should all be a thread of its own, but I don't want to talk about it over and over. It's just so hard to stand by while it seems she is taking steps closer and closer to being in her grave before I am in mine. Hmm

WhoKnowsWhereTheMistletoes · 18/12/2012 16:59

Oh Fen - just seen this and don't want to ignore you. I cannot imagine how you are feeling right now but I do want to send you a big virtual hug.

Rewy - I'll be back later with a few thoughts. Obviously only you can decide, a lot depends how much help you can get around the house and with childcare etc. The money thing is obviously a problem too. Are you a private patient or NHS?

wouldratherbeskiing · 18/12/2012 17:22

Oh Fen - so sorry to read about your DD - will not pretend to know what you are going through but do know how frustrating it can be when our children grow up and don't let us help, or do the things we want them to do. They like to handle things their way which is only right but oh so difficult as a parent especially when it concerns their wellbeing. A good shout and some company with those who know you well may help. Sending big hugs. Take care of yourself.

wouldratherbeskiing · 18/12/2012 17:36

Rewy - surgery is scary. I can only recommend you do as much reading as you possible can from these threads as there is a huge amount of information. Only you can make the decision. Very difficult to manage without sick pay. I guess receiving your appointment has given you a jolt that it is actually going to happen. Take a deep breath, work out your finances, could you work reduced hours after a period at home? How much help can you get with the children? Would you feel better getting it out of the way or could you postpone it for a while to enable you to save some money to tide you over? I had moments of panic but my overriding wish was to feel normal and the rectocele made me very tired and uncomfortable to the point that it effected all the things I was used to doing. Post-op was better than I expected but then I had really built it up in my mind. It does take time to recover and it must be so difficult with small children but I'm a great believer in looking forward and comfort myself with the fact that, say, in 3 months time it will all be sorted and know how time flies. Everybody's so different. Once your panic subsides hopefully you will know what you want to do - be prepared to still have doubts though - they have a sneaky way of pushing their way in even when you've made up your mind. Oh and make your 6 weeks 8-12 weeks to be more realistic for exercise and sex Shock.

frequentwee · 18/12/2012 18:19

Oh fen, so sorry to hear this. I don't know what to say except ((hug)). Please take care.

fengirl1 · 18/12/2012 19:49

Thanks for the messages. I'm feeling a bit calmer now, but very sad and tears are still quite near. I suppose I won't get over it but will get used to it iyswim.
Rewy, I can only echo what wouldrather has said.... Ultimately only you know whether you are prepared to carry on as you are, possibly getting worse as you get older (my symptoms have got noticeably worse as I approached menopause) or whether the hassle of the op will be worth it for you - but on the other hand, this could just be a case of cold feet? It's not a simple fix in that it's major surgery, but for me having my last op (rectocele and perineal repair) has given me my confidence back. Put simply, I just feel normal again!

Nosleeptillgodknowswhen · 18/12/2012 20:50

Whoknows - not didn't discuss pessary (as i didn't know about it) but GP is meant to be asking gynae about any non-surgical help and reporting back so i can ask then. (GP is also friend so i could nab her in the playground...or maybe not!)

Fen - sorry to hear that you and your DD are having a tough time. I've only just popped into the thread but if a hug from a random stranger would help, do have one.

WhoKnowsWhereTheMistletoes · 18/12/2012 21:20

Rewy - can't add much to what Wouldrather has said really. If you are private I would imagine it would be quite easy to postpone surgery until you reach a point where you really need it and have put in place all the necessary arrangements. I had a lot to sort out - I am the main carer for DCs aged 6 and 8 and the main do-er of housework too, but everyone really rallied round, DH, my parents, my MIL, other parents from school, I was on full sick pay though, so didn't have that to worry about. Although I still think it's going to take me months to catch up at work. I'm not sure what the situation would be on the NHS though, whether they would discharge you or be happy to keep you "on the books" as it were. However if you did get a worsening of symptoms you could be looking at a several month wait for surgery on the NHS. It might be worth a call to the consultant's secretary to find out how it would all work?

fengirl1 · 18/12/2012 22:16

Nosleep - hugs from random strangers are very welcome - we are all 'sisters under prolapse', see my post from 14/11 if you don't believe me! Thank you.Smile

gladitsallover · 18/12/2012 22:49

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WhoKnowsWhereTheMistletoes · 18/12/2012 23:04

Glad - I'm 12 weeks post op now and still avoiding any majorly heavy lifting, but that's partly because I still have an unrepaired cystocele which I don't want to make any worse. So, for example I am lifting baskets of laundry but not heavy bags of shopping - I get it delivered and carry the lighter ones through but any really heavy ones I take out a few things first. I noticed a dramatic shift towards feeling properly normal again at about 9 weeks, but was back at work (p/t) at 7 weeks and have been fully in charge of the DCs and all their ferrying around since about 7-8 weeks, ie on my feet quite a lot. I think the main things is to listen to your own body and rest if anything aches or you tire. Are you doing your PFEs properly? It really is important to try and remember to clench before lifting anything.

gladitsallover · 18/12/2012 23:15

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gladitsallover · 18/12/2012 23:46

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gladitsallover · 18/12/2012 23:47

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tinkxx65 · 19/12/2012 07:03

Hi everyone,

Just popping in to wish Troubled all the best for tomorrow xxx

frequentwee · 19/12/2012 07:55

Same from me Troubled.

Tink, hope you are feeling better too.

WhoKnowsWhereTheMistletoes · 19/12/2012 08:27

Yes, good luck from me as well Troubled

fengirl1 · 19/12/2012 15:12

Troubled, I hope all goes well for you tomorrow. Smile

wouldratherbeskiing · 19/12/2012 18:28

Troubled - Good luck - bet you've run yourself ragged getting everything sorted for Christmas. Wishing you a speedy recovery.

Tr0ubled · 19/12/2012 23:10

Thank you. Am so stupidly nervous, anxiety is such a nasty feeling. Everything today, taking kids to nursery and school, collecting them, grabbing my daily coffee, all made me weepy. The hardest was reading them their bedtime story and kissing them goodnight. So silly I know.

Fen I'm sorry I haven't had a chance to post sooner, but just wanted to send you an extra hug.
X

surewoman · 19/12/2012 23:16

Troubled - hope all goes well, best of luck xxxx

Tink - hope you are feeling a bit better

Fen xxx ((((hugs))) xxx

WhodveThought · 20/12/2012 04:59

Troubled, that doesn't sound silly at all. I get weepy when 'normal' is about to go out the window again too. Good luck!

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