Support thread for those awaiting medical appts,tests and surgery

[ohyouBadBadkitten]

It seems that there is probably rather a lot of us who are impatiently waiting to see consultants, have tests or waiting for surgery. So a thread for you to vent in or post your 'hooray's'

me. Am waiting to see my cardiologist. been a bit of a catalogue of delays and getting lost in the system. I have a wonderfully supportive gp who has just calmed me down after me losing the plot a bit when I found I wasnt on the appt system.

How about you?

goes not does

What a relief

It's great that you're flu-feeling is 'normality', or your body adjusting to it.... and I hope it lasts, lasts, lasts. I think I'm still not used to the sensation of adequate amounts of blood throughout my body... my fingers and nose and nose seem all tingly, and my mind feels clearer, too. Given that pre-surgery any form of energy drink used to do such evil things to my heart, I'm half tempted now to try a Red Bull merely to see how I feel... but I won't

kitten and mad... wishing you both all the best for tomorrow!

Hi all, quick hello, good news about the infection backpack sorry to here about upsetting notes breastmilk I would love to read mine but s bit scared to.
Have an ill dt2 at the moment every time he gets a cold he gets viral asthma he's had cold for s week and breathing bad again dispite 10 puffs of venrolin every 4 hours, l

Looks like a trip to gp's again tomorrow. In between my hospital visit.
Shattered

Poo just remembered dd1 has a piano exam
In the morning too, going to be a hectic morning

How are you? I just want you to see what I've been though to have a baby. When we first got married one year went by.
I went to a fertility Doctor at University hospital and was put on clomid nothing happen they told me my husband must come.
It took 10 years before he would finally go. Now I'm 40 years old they got 3 embryos from me and two was put back. It did not grow I had to have a D N C to take it out.
We found a donor in the family but there eggs was not good to go.
We decided to go on the donor list to find one here in cleveland this was a program cleveland clinic was doing. We stayed on it for two to three years before they called and said no black donors and i had to come off the list.
At age 47 we found a donor in Nigeria Cleveland Clinic was willing to work with her we just needed to get her here. The clinic put me on medicine thinking she was suppose to come soon and we keep sending her money for visa bus housing see always needed money but she never came. One day she wrote to say she got married. I felt we paid for her wedding.
Know I am here the first three embro failed before they could be put in and know 3 embryos are In and I had heavy bleeding for 4 day 5 days after transfere. I am praying for my baby to be alive by the grace of GOD
I just hope great out comes a baby. So you see I am mentally hurt but hopeful and I'm not going to stop until baby I font have to many more try's I just pray this is the one.

I was told it is too early to tell if I am pregnant.

Thank you all, got the colly wobbles this evening.

Backpack, that is great. Thank goodness for your sensible neuro.

LGR - asthma in kids is horrible and exhausting for the adults.

Good luck tomorrow Mad.

My thing is how am Im bleeding like a period and I have not had one in three years until this embryo tranfere.

Breastmilk How long do you think it will take to get used to the feeling? I was told it would take a few weeks to months which sometimes goes into a failure by the time patients get used to it. Before surgery I couldnt lift my head as it felt far too heavy or if it was lifted I had to rest it against something as it felt like my neck couldn'y hold it and it would fall of off. seems to be the reason I squirted my Surgeon again, he said he was lucky he had the face mask on or he would have tasted it

I have a fridge full of Energy drinks (I don't really like Redbull so I drink the 35p cheap ones) Which I am dieing to drink but I can't I don't know what to do with them.

I was also told I will always have sever headaches even when I go into Remission, the Surgeon and Neuro have not met anyone whos headaches have vanished at all so I need to find a way to cope with them as I will not be alllowed pain killers all of the time incase I get addicted to more or they cause more headaches.

Hope your DS is beeter soon LGoR

Hope you are ok now OYBBK

Good Luck tomorrow MAd and OYBBK. I will be thinking of you both :)

Rochele, I really hope it works out for you. You have been through a lot and must be feeling desperate.

Backpack, I don't know what to say, other than I guess try not to look too far ahead into the future if you at all possibly can, which is easier to say than do.

Rather nervous this morning. I have no idea what he will say. Going to have some breakfast in a bit and then a shower. Another beautiful day, so this afternoon I'm going to do some more weeding. I don't think my garden has ever been so weed free. Need to find some stronger sunblock though, the rash on my hands is awful - swollen and lumpy.

kitten It'd be lovely to see some pictures of your garden. Really thinking of you and wishing you the best for today... and Mad too.

Rochele welcome. Sounds like such an unrelentingly nerve-wracking time. Have you been on the Conception board? There are others there going through fertility treatment. Most of us here are from the UK but I think we get a reality series on cable which comes from the Cleveland Clinic!

LargeGlass You must be shattered! How's DT this morning?

BackPack I'm sure you could donate the energy drinks to a good cause somewhere - a food bank, local youth club, church group... that sort of thing.

But yes, I can so relate to the worries about the future...

Sitting here with a cup of tea waiting for the painkillers to take effect. Finding it easier to move and get around now.

Thinking of everyone...

Hooray for the handsome neurosurgeon.

Hi Rochele,
You should also post on the infertility board. There will be lots more people who have shared experiences similar to yours. I know that infertility is like a big empty painful space, and I cannot imagine how it must feel to have battled for so long with it.

My appointment went very well today. It was just talking to the nurse and explaining the level of activity that I am currently at. She only took by bp and heart rate/ Sats which were all fine. No treadmill test, or anything like that.

She explained about maximum heart rates, and how they differ. It is 220 minus your age, so mine is 181. Then I take off another 30 for my betablocker so for me it is 151. My pacer does not allow my heartbeat to go above 130, and I was worried that was too low. She said that I should be aiming to not exceed 80% of maximum heart rate during exercise (121 bpm), so my settings are fine, and in fact 60% maximum heart rate was optimal for this stage of recovery.

It interested the geek in me anyway. She put me down as low risk, which made me very .

Wow thanks everyone for responding. I have no one to talk to because I would hate to open up to family and friends and still no baby. They would only say you are too old. Have anyone hard of heavy bleeding like this and still pregnant even when I had no period in 3 years. I need hope.

But although she said I was doing really well, I'm not ready for Zumba .

I think I can live with that.

Rochele When I was pg with my dd's I did spot both times. The blood was brown though, and not very heavy. I was worried with dd1, so I attended an early pregnancy unit at my local hospital (I was 6 weeks pregnant). There I was given a transvaginal ultrasound, because my pregnancy was too early to be detected by a normal ultrasound.

I think you need to call your clinic. I'm sorry I can't offer you any more reassurance, but here is a very unmumsnet (((((hug)))))

that is brilliant mad :) I am very pleased for you.

mine went ok-ish. Consultant was running behind be 1 1/2 hours but didnt mind at all, cos was grateful to be seen. Good news is that the 24 ecg didnt pick up any arrhythmias, the amiodarone is controlling things nicely and not causing any additional arrhythmias.

My QTc was quite long (but I knew that) He said it was clear that the amiodarone wasnt agreeing with me. Also my murmur seems to be rather more obvious.

So the plan is blood tests (taken), an echo, and a referral to someone who specialises in electrical issues (so no more info on the ablation yet).(goodness knows how long it will take, he said the chap was very busy). He was going to cut my amiodarone in half but when I said it was important that I get back to my job he has taken me off it altogether.

So, we shall see what happens.....it can take months to leave the system fully but hopefully I should be starting to feel better relatively soon. Just need to be aware that after these 2 months of struggling with drugs I could well end up back at square one (hopefully not in hospital this time)

That is a little frustrating OYBBK. It is good that he he has taken you off the meds, but a shame he could not offer you treatment sooner. Hopefully, you will be back to work after Easter, so the financial stress should subside.

I had rather hoped that your appointment was to see an EP. I think I may be sneaking you in my bag to my appointment after all, especially because I am feeling increasingly like I don't need to be seen at all. Obviously I will go to see the EP, but I do feel like I am coming out from the other side of hospitals and interventions. The nurse today suggested that the combination of pacemaker, warfarin and betablocker may be enough to keep the EP happy given that I'm symptom free. That will free up cath lab time for those that need it, so fingers crossed.

Let's hope that you don't face too many delays waiting for the EP, and that you get your echo results faster than I have

Feeling bad today :-( pain through the roof.

It's lovely and sunny and im stuck indoors. Don't even have enough energy to go in garden.
Missed Homestart play group today, and also cancelled my hospital appointment (because of pain plus I didn't want learn self catheters on my period, would be so messy)

I wish it had have been with an EP, think it could be months before I get anything proper done at this rate. Why, if he told my gp I'd need an ablation, didn't he refer me on to an EP at that point to get on to that waiting list I have no idea. It is really good that I've a good chance of getting back to work after Easter, but longer term it could leave a question mark in their minds as to how reliable I'll be if I need further treatment.
And on a very shallow level, we supposed to be going to visit family abroad in June, and I still can't book it as I have no idea when my next apts will be.

Can't believe you still haven't got your echo results!

How's everyone else?
(I haven't read through all the posts as there have been so many since I was last here)
Can anyone update me how everyone is?

I am grumpy, mad is happy, backpack is worried about the future, LGR is knackered with poorly dc and Rochel is feeling very worried.

Sorry you are in so much pain reeny, that sucks.

I can imagine it would depend on area, but in my areas GPs cannot refer on EPs - you need to be seen by a general cardiologist first.