Oh dear, we're none of us doing very well are we?
The mysteries of UC (and piles, allegedly for Katy) will forever be just that i feel.
Liking the 'brass band' analogy OldBag! Made me lol!
Ladies, i dunno if this will be of any use to you, but i went on the RADAR site www.radar-shop.org.uk/Range.aspx?id=0 and ordered a radar key for the disabled loos. They include UC as a diagnosis for having one. It cost me £2.25 plus p&p and means i can go urgently if i need to rather than waiting in a queue (cos this is impossible, as you know). It also means that the other stalls don't hear you playing with your trumpet, so to speak. I haven't used it yet but carry it with me, though be warned, it is big and heavy.
No phone call today from the hospital so decided today that i am not waiting around holding my breath any longer. I am going to have to attempt to make myself better with diet. I eat eggs a lot too OldBag. Also mash potato and some pasta. I try to keep it quite bland and try not to eat too much in one sitting or all hell is unleashed (wherever i happen to be). My appetite has certainly increased from it as i am always craving crisps and chocolate (not that this is new by any means, just i want more.)
Thanks Spider, that gives me a bit of hope. I am going to cut down my oral steroids slowly as they are making me very angry and sometimes quite aggressive. I feel i have gained nothing from being on them and was only keeping them going so that it wasn't such a shock to my system when i went on the IV.
Also, i read somewhere at the weekend that if you are on steroids for more than 3 weeks, you should be given a 'steroid card' to carry. I'd never been offered one so i asked at Boots and Superdrug but they had run out and had them on reorder. I got one eventually at Tesco pharmacy. You fill in the details and should show it to dentists, opticians etc up to A YEAR after taking them as it can still affect you. Also you should avoid chickenpox at all costs as it can cause (more) health problems apparently.