Hi spidermama,
I am so sorry to hear about your DS. Although diagnosed late (27 yrs old) I can certainly relate to all of the emotions he is feeling. As much as you may try to comfort him and remain upbeat, just understand that he might feel frustrated that he isn't "normal" like all of the other boys. I even had a period of 6 months after the diagnosis where I felt "broken" and didn't feel comfortable with people touching me.
Although I still get frustrated from time to time (2 years later) it does get easier with time. Just be prepared for him to have the occasional emotional set back.
The thing that I find most difficult about diabetes is when your sugar levels are high for no apparent reason. Remember, insulin only mimics normal body function--it doesn't replicate it. Sometimes there is no explanation for why sugar levels go high. So, as long as you and him are being vigilent about controlling it,there is no reason why he won't lead a long and happy life.
I am not sure what sort of insulin he is on now, but one thing that really helped me out was Lantus. It is a long acting (1 jab every 24 hours) that controls for the peaks and valleys. You still have to take the insulin before meals but it really helped me from the extreme swings from highs to lows.
I also found (having an incredible fear of needles myself) that certain injection sites are less painful than others. Your son might have a comfort level with where they were jabbing him in hospital but, once he is feeling a little more in control and adventurous, try out some other areas such as the bum, stomach (the fatty part) or the thigh.
I am so sorry that he was diagnosed with this disease but it is the best time in history to be faced with such a thing. Drug developments are constant and food manufacturers are coming up with new "low carb" "low sugar" products all the time! My favorite...low carb pasta!
Please feel free to ask any questions and good luck with everything!
HQ